#BehcetsUK - Twitter Hashtag

over 3 years ago

@Ring20UK @HastingsJ123 Real privilege to chair excellent panel. Many important issues raised#RareDiseases #FoG2023 #BehcetsUK

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TonyThornburn @TonyThornburn

over 3 years ago

Excellent initiative, very much looking forward to hearing more. #DareToThinkRare, #rarebeacon, #camraredisease, #behcetsuk, #CaS_Genomics

Genetic Alliance UK @GeneticAll_UK

almost 4 years ago

We're delighted to announce that we are partnering again with @ITNBusiness for #RareDiseaseDay 2023! Our programme, 'Caring Together for Rare Conditions' will air on 28 February 2023. Find out more here: https://t.co/uWZ3wFvAzx #CareForRare #RareDisease #genetic #undiagnosed

GeneticAll_UK's tweet photo. We're delighted to announce that we are partnering again with @ITNBusiness for #RareDiseaseDay 2023! Our programme, 'Caring Together for Rare Conditions' will air on 28 February 2023. Find out more here: https://t.co/uWZ3wFvAzx
#CareForRare #RareDisease #genetic #undiagnosed https://t.co/KajdsWLCHW

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Michelle 💙 @MHNurse94

about 5 years ago

I’m tired, he’s exhausted and we feel like we’re fighting a losing battle. This is his life. This is his reality. #invisibleillness #behcets #behcetsuk #behcetsdisease #RareDisease #TakeHisPainAway #Scotland (4/4)

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Rising From the illness @woodlepops

about 5 years ago

A year ago @lillibadcock and I raised over £1,000 for @behcetsuk by holding an online festival featuring the most talented of people! Can we do it again PLEAAASEE! Maybe we can do it for real next time?! Who’s in?? 🙋🏻‍♀️😎 #behcetsuk #charityfundraiser #behcetsdisease #RareDisease

woodlepops's tweet photo. A year ago @lillibadcock and I raised over £1,000 for @behcetsuk by holding an online festival featuring the most talented of people!

Can we do it again PLEAAASEE! Maybe we can do it for real next time?!
Who’s in?? 🙋🏻‍♀️😎
#behcetsuk #charityfundraiser #behcetsdisease #RareDisease https://t.co/gPurHziiwI

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Jan Mather💙 @janlmather

over 6 years ago

Today is Rare Disease Day (the rarest day of the year!) There are between 5,000-8,000 rare diseases. each affecting less than 0.1% of the UK's population, but together they affect the lives of 3 million people. Join us on #rarediseaseday to raise awareness. #behcetsuk #eurodis

janlmather's tweet photo. Today is Rare Disease Day (the rarest day of the year!) There are between 5,000-8,000 rare diseases. each affecting less than 0.1% of the UK's population, but together they affect the lives of 3 million people.
Join us on #rarediseaseday to raise awareness. #behcetsuk #eurodis https://t.co/Jc1e4qMdvO

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Carol Bassi @carolblondon

almost 7 years ago

Following up an issue about signage on behalf of the @PatientPanelRLH Checking out signage for the Behcets clinic at the @RoyalLondonHosp #behcetsuk #RLH

carolblondon's tweet photo. Following up an issue about signage on behalf of the @PatientPanelRLH Checking out signage for the Behcets clinic at the @RoyalLondonHosp #behcetsuk #RLH https://t.co/IKQ9f0JwqB

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Behçet's UK @BehcetsUK

over 7 years ago

There's only 46 days until #Christmas Remember we are registered with @giveasyoulive @GivingMachineUK and @easyuk so you can donate to us for FREE whilst you get everything on their Christmas lists! ❄️🎄🎅#easyfundraising #fundraising #xmas #behcets #BehcetsUK #charity #donate

BehcetsUK's tweet photo. There's only 46 days until #Christmas Remember we are registered with @giveasyoulive @GivingMachineUK and @easyuk so you can donate to us for FREE whilst you get everything on their Christmas lists! ❄️🎄🎅#easyfundraising #fundraising #xmas #behcets #BehcetsUK #charity #donate https://t.co/aQFKJLiY74

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