Top Tweets for #BioSummit20
In honor of #RareDiseaseDay, we’re taking a look back at #BIOSummit20 where @jmaxlevin, @rburdine1, and @TJBichell discussed the unique experience and lessons learned on forming a patient advocacy organization focusing on a rare disease. Watch: https://t.co/8qsYKIqN4X
We were proud to sponsor @IAmBiotech’s #BIOSummit20 last month, where Biogen’s Chirfi Guindo spoke to the value and role of patients and patient advocacy groups in drug development and health policy. Learn more:
#GoodDayBIO: Recap of #BIOSummit20. @LanzaTech announced a partnership to make cosmetic bottles from recycled carbon. Welcome new members #EvrysBio, @topadur, @JoynBio, @Passage_Bio, #AxterTherapeutics, #DalanAnimalHealth, #EightyEightPharma, #Aviabiotic. https://t.co/9OSkVCGBRg
Thank you to our #BIOSummit20 sponsors! Great conversations between industry and patient advocacy organizations discussing how we can put patients at the center of our work. Catch up on the highlights: https://t.co/k0iZSAytIO
"Patients are our purpose," says @JulieGMD of @Merck at #BIOSummit20. Hear her discuss the importance of the patient voice: https://t.co/4D5O5VyGDI
#IamBIO Dr. Jeff Allen discusses his work at @CancerResrch: “Our main goal is to accelerate the pace in which science is moving and ultimately provide better treatments for patients, faster.” #BIOSummit20
More: https://t.co/5SWMMrNr3l
The experiences of those impacted by cancer is central to our commitment to putting patients first. Hear from our Head of Global Oncology, Patient Value, Policy, & Access, Liz Lewis, as she shares her perspective with fellow biotech leaders via @IAmBiotech. #BIOSummit20
Why does the patient voice matter? Leaders from @AcordaNews, #GlycoMimetics, @AstellasUS, @VertexPharma, @RetrophinRare, @TakedaOncology, @biogen, @nkartatx, @Alnylam, @Merck discuss. #BIOSummit20. Watch: https://t.co/uCdvyR3JvW
"If you're holding an absentee ballot right now that you haven't sent in, take it to an absentee dropbox or make sure you vote in person to make sure your vote is counted," advises @Redistrict. #BIOSummit20
Figure out your voting plan with Biotech Votes⬇️https://t.co/ReKXkOcMTh
Can we still trust the polls? Polls are a lot like GPS in that they can get you into the right neighborhood, but not exactly the right address, said @Redistrict. Take a look at the averages and keep a long view of the race. #BIOSummit20 https://t.co/3IItgpPhrg
Just 5 days away from #ElectionDay, we’re closing Day 2 of the #BIOSummit20 with policy and #election predictions from @CookPolitical’s @Redistrict. Follow on the live blog: https://t.co/3NQoHizH66
Decentralized #clinicaltrials allow “for greater enrollment and increased access for our patients, which addressed one of the biggest barriers to #healthequity,” said @SungPoblete of @SU2C #BIOSummit20 https://t.co/V2Ne1k5pwB
We're collaborating w/ @blkwomenshealth and @SU2C on a @PCORI-funded initiative called Project TEACH that is beginning to address clinical trial involvement and access issues for Black women. #BIOSummit20 #clinicaltrials
What has #COVID19 taught us about access to #clinicaltrials? @Cartier91 discusses with @CancerResrch @ParentProjectMD and @SU2C @SungPoblete at #BIOSummit20. Check out the live blog: https://t.co/fo68FmFuxl
What advice would @TJBichell and @rburdine1 give to individuals interested in starting an advocacy organization in a new disease area? Check out the #BIOSummit20 live blog for some tips: https://t.co/ZqjcSOg3DI
#biosummit20 is always a great opportunity to connect with other stakeholders whose goals align with ours – quality, affordable healthcare for all. We’re excited that this year, we were still able to network virtually! @IAmBiotech @BIOConvention
"This is the year that #AngelmanSyndrome changed forever," said @jmaxlevin. @OvidRx is developing a potential therapeutic for Angelman's - a rare neurodevelopmental condition - the first to undergo a phase 3 trial. #BIOSummit20 #raredisease https://t.co/rEG94X6Wqb
Up next at #BIOSummit20: fireside chat with @jmaxlevin of @OvidRx, @TJBichell of @combined_brain, Rebecca Burdine of @Princeton discussing the unique experience and lessons learned on forming a #patient #advocacy organization focusing on a #raredisease. https://t.co/boqxXnhy1w
Transitioning to a virtual environment is a huge opportunity to engage #patients in #advocacy, says Heidi Ross of @RareDiseases. “It’s a small silver lining of a terrible global pandemic.” #BIOSummit20
“Unless you’re a man between a certain age range who’s never been sick before, you need the ACA...we all have pre-existing conditions...If you have ever been pregnant that’s a pre-existing condition." Elizabeth Franklin, @CSCCancerPolicy #BIOSummit20
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