Top Tweets for #Bounce4batten
Busy in the lab, but @keigotakahashi6 and Ewa couldn't let International Batten Disease Awareness Day go by without brining some #Bounce4Batten to their work! #battendisease #battendiseaseday2023 @BDSRA
Today is International Batten Disease Awareness Day 2023. Families affected by this disease live the reality every single day. They need our support and our research efforts in order to make progress towards treatments @BDSRA @BattenDiseaseuk #Battendisease #BOUNCE4BATTEN
Doug the dog supports #BattenDisease Awareness Day: a group of rare, genetic, neurodegenerative conditions with childhood onset. 🧠You can donate here to support #bdsraaustralia ➡️ https://t.co/StUxsOExg5 #Bounce4Batten #BattenDay2023
International Batten Disease Awareness Day is this Sun, 9 June. It's a great day to raise awareness about Batten disease & to do something special to honour the children & families affected by this rare disease. More: https://t.co/F78GkDEw6O #bounce4batten
It's such a privilege to report on this story. Today the Federal Government announced they will fund Brineura, a treatment which slows the progression of Late Infantile Batten Disease, a devastating and fatal childhood illness #bounce4batten @abcnews https://t.co/UYvVtn6uJL
Such a powerful message of hope from an Australian Rare Disease mum Peta Murchinson. #Bounce4Batten https://t.co/yCYKnusABk
Aquí la querida @DanielaRuah, de #NCISLA sumándose a #Bounce4Batten, un movimiento que concientiza sobre enfermedades en niños. ¿Te sumas?
Basically, just 🙌🙌🙌 @sunriseon7 #bounce4batten
#Repost @petaelizabeth
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The team at Weekend… https://t.co/dozpThyw31
Wonderful @petaelizabeth story on @sunriseon7 this morning. Link in bio #bounce4batten… https://t.co/kjAXXHsE8i
I #Bounce4Batten Disease the rare neurodegenerative genetic condition robs otherwise healthy children of ability to walk,talk,eat, see&smile
What living with a dying child taught this mum about living https://t.co/WrFr1L99wf @DailyLifeAU @PetaElizabeth @hausofcomms #Bounce4Batten
This one's for you @BecBrownComms !!!
#Repost @petaelizabeth
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THE WIGGLES #bounce4batten… https://t.co/EkA08Oa37P
It is actually not that easy to get a good #bounce4batten shot. It is also not easy to get a… https://t.co/2IXIUm0XTL
Great #bounce4batten Toby 🙌🙌🙌 all the action from this morning's @OacChildcare @petaelizabeth… https://t.co/aUFO4hJa14
That is fabulous @JulieBishopMP Love that you're supporting one of the myriad of debilitating diseases affecting our youth. #Bounce4Batten https://t.co/yAaGDgr2qo
Today is National Batten Disease Awareness Day, rare degenerative genetic condition affecting kids’ movement & development #Bounce4Batten
My hero @juliebishopmp and one amazing #bounce4batten !!! So much 😍😍😍
#Repost… https://t.co/ExGr49Am8k
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