Top Tweets for #CFTRModulator
Our new study, where we found Tezacaftor/Ivacaftor #CFTRmodulator therapy has negligible effects on the #cysticfibrosis gut microbiome.
Out now in @JournalSpectrum
@RyanJosephMarsh @DWRivett @GIFT_CF_Fellow @AlanRSmyth
Thanks to @cftrust for funding
https://t.co/lK9w3Dw6pn
INCREASING EVIDENCE SUPPORTING EARLY #CFTRModulator TREATMENT FOR #ChildrenWithCF
The 2020 US #CysticFibrosis Foundation Patient Registry reflected for the first time a reversal of the historically described annual decline in #LungFunction.
https://t.co/lW3oHANl9S
#CFcommunity
AI your thesis @ #UNSWPRW2022 #Personalisedmedicine: #CysticFibrosis lung models to predict #CFTRmodulator drug efficacy in matched patients #miCFAvatar
@UNSWObGyn_Paeds @schf_kids @kids_research @KatelinAllan7 @ShafaWaters
https://t.co/1sDTbllnJo
CHANGE IN VERTEX COPAY ASSISTANCE: CONTACT YOUR GPS CASEWORKER TO REVIEW YOUR INSURANCE POLICY
Effective January 2023, #Vertex will reduce #CopayAssistance to those whose plans include #CopayAccumulator programs.
https://t.co/59bZxvoqjX
#cysticfibrosis #CFTRmodulator #trikafta
Fantastic to see @NEEMOcf highlighted as part of the discussion around the need for preventative inhaled therapies alongside #CFTRmodulator treatment. Thanks to Maggie McIlwaine for including our study in this #NACFC2022 session. More information here: https://t.co/4pXrQrVrra
EVIDENCE GROWS IN SUPPORT OF EARLY #CFTRModulator TREATMENT FOR CHILDREN WITH #CysticFibrosis
The availability of #Trikafta for younger populations offers hope that disease progression can be slowed or even prevented.
https://t.co/e7G3aCX9MT
#kaftrio #CFresearch #MedTwitter
An excellent review from the University of Torino on
"CFTR Modulator Therapy for Rare CFTR Mutants"
📜https://t.co/HXXWj5UFrp
#cysticfibrosisnewstoday #cysticfibrosis #CFnews #CF #treatingCF #CFTRModulator
@CFNewsToday @CFAware @CFAwareness @CFawarenesss @KnowCF @unito
Kither Biotech is planning to launch a Phase 1/2a clinical trial of KIT2014, an experimental therapy to treat cystic fibrosis, in 2023. https://t.co/uhmSiTPIwU
#cysticfibrosisnewstoday #cysticfibrosis #CFnews #CF #treatingCF #CFTRModulator
For the 10% of cystic fibrosis patients who can't benefit from a CFTR modulator, seeing others treated is "both uplifting and disheartening." https://t.co/sQWcYgzQS5
#cysticfibrosisnewstoday #cysticfibrosis #livingwithCF #CFTRmodulator
#TRIKAFTA RESCUES #CFTR AND LOWERS MONOCYTE P2X7R-INDUCED INFLAMMASOME ACTIVATION IN #CysticFibrosis
Researchers concluded that P2X7R may be a promising target to reduce inflammation in those with CF who are not eligible for #CFTRmodulator therapy.
https://t.co/EB3sw2iRmi
🧀 #NationalCheeseDay
🫕 Who doesn't love a cheese pull?
🍕Cheese can be great to provide fat for taking a #CFTRmodulator or increasing your #calcium / calorie intake!
🥪 Whats you favourite way to eat cheese?
@CF_physios @bda_cf @cftrust #CF #CFnutrition #Cysticfibrosis
FDA TO REVIEW TRIKAFTA FOR PATIENTS AS YOUNG AS SIX YEARS
Trikafta has been found to be safe in children as young as 6 in Phase 3 clinical trials.
https://t.co/zRCHiJz7Ql
#cysticfibrosis #trikafta #CFTRmodulator #CFTR
🤔What food do you take your CFTR modulator with in the morning?
Some ideas include:
🍳 eggs - fried/poached/scrambled/boiled
🥛 1/2 pint milk
🥞 3-4 small pancakes
🥑 avocado
🧃 supplement drink
🥪 bacon/sausage sandwich
#cfnutrition #heartlandscf @cfaware #cftrmodulator
#CysticFibrosis #CFTR #CFTRModulator #drugs #F508del #health #research #wordsbyfrank https://t.co/HiYFYs9uhz
Leann Rittenbaum Ott of Atlanta passed away last fall from complications from cystic fibrosis. Now there is a significant scientific breakthrough in its treatment. @EmoryUniversity and @childrensatl are two of many clinical sites. https://t.co/LuvfFhuM61 @11AliveNews #CF
Great to meet the scientists in the labs at @GalapagosNV today
They have spent 8 years working on CFTR modulators and we are pleased to be opening the first Galapagos triple combination study in a few weeks @meutrials
Ask in clinic for details! #clinicaltrials #cftrmodulator
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