Top Tweets for #CMTdoesNOTdefineME
Welcome 2 my 🌎 #CharcotMarieToothDisease #SeptIsCMTawarenessMonth #IamTheFACEofCMT #CMT1A #1IN2500 #NOtreatment #NOcure #RareDisease #CMTdoesNOTdefineME #CMTwarrior #fatigue #spoonie #falls #surgeries #LifeOfCMTer #knowCMT #CMTweGOTthis #CMTA
Charcot–Marie–Tooth disease type 1A patients name weakness and fatigue as their most impactful symptoms in a recent real-world disease study. https://t.co/Gg7xG9gV7L
#IamTheFaceOfCharcotMarieTooth & I have invisible disabilities but #CMTdoesnotdefineme & I'm hopeful a treatment for my #raredisease will happen 1 day. We must work together 2 raise awareness of invisible disabilities & related issues 💛
It's #CMTawarenessMonth I'm a #CMTwarrior #CMTdoesnotdefineme learn about #CharcotMarieTooth & #CMT impacts #1in2500 Did u know it's a #RareDisease
It's #CMTawarenessMonth I'm a #CMTwarrior #CMTdoesnotdefineme learn about #CharcotMarieTooth as #FundedResearchBringsResults & #CMT impacts #1in2500 Did u know it's a #raredisease with #nocure help find one! Learn more about #CharcotMarieTooth
https://t.co/IxMcKwc355
Catch up on our latest #CMTupdates!!! Link in bio!! #CMTawarenessmonth #CMTwegotthis #HNF4CMT #CharcotMarieToothDisorder #CMTupdate #Rarediseases #CMTneuropathy https://t.co/cQBEktf6Ul
What is #CharcotMarieTooth?!
I have #CharcotMarieTooth its
#CMTawarenessMonth #CMT impacts #1in2500 but #CMTdoesnotdefineme #SeptIsCMTawarenessMonth a #raredisease but I'm a #CMTwarrior with a #invisibledisease #chronicillness Please help find a cure!
https://t.co/S6YDTwsYdh
What is #CharcotMarieToothDiseasr?! Get your information on #CMT and a free essential guide!! https://t.co/A5WDJ1xAqY #CMTawareness #HNF4CMT #CMTwegotthis
#SeptIsCMTawarenessMonth Learn more about the disorder which challenges me & my fellow CMTers learn about #myCMTstory
#CMTawarenessMonth
#FunnyNameSeriousDisease #1in2500 #CMTdoesnotdefineme #butyoudontlooksick #cmt #CharcotMarieTooth #raredisease #CMTwarrior #invisibledisease
Thank you #PRNewswire for your support in spreading the word about my #raredisease #CharcotMarieTooth aka #CMT as #SeptIsCMTawarenessMonth #CMTwegotthis #BeYourOwnAdvocate #CMT1A #CMTdoesnotdefineme #CMTaRareNeurologicalDiseaseNotJustMusic #nerves #nocure
Happy #CMTawareness month!! A big thank you to #PRNewswire for helping us spread the word on #charcotmarietoothdisease!! https://t.co/KUQHv8aGg1 @CisionPRNews #HNF4CMT #CMTawarenessmonth #CMTweGotthis
I dream of finding a cure for my rare disease #CMT aka #CharcotMarieTooth which impacts 1 in 2500 ppl in the USA which means today 131,738 are impacted in a variety of ways. I have #CMT1A but #CMTdoesnotdefineme
To live with disease is to live with a dream. A dream of a tomorrow. A relief. A cure.
So, reply, retweet or @ me in the next 24 hours with the answer to “I dream of ending ____” and I’m def following you.
Because dreams are way more powerful when shared.
@MeghanMcCain @SelmaBlair @JaniceDean My 💖 goes out 2 all #WarriorWomen who R dealing with #invisibledisease & #chronicillness we understand & can uplift each other like no other. I have a #raredisease #CharcotMarieTooth & #CMTdoesnotdefineme just like I know MS doesn't define U. May you feel never ending support💞
Save the date!!!! Our next summit is November 8th and 9th at @Ability360Sport!!! 👏 #cmtmovement #hnf4cmt #ability360 Sign up here to be notified when registration begins!!! #hnf4cmt https://t.co/4xw6pTzdf5
Did you know I was rare?
Today is #nationalrarediseaseday please learn more about my disease
#CharcotMarieTooth #FunnyNameSeriousDisease #CMTawareness #1in2500 #CMTdoesnotdefineme #CMTwegotthis #CMTA #chronicillness #invisibledisease #nocure #hnf4cmt #raredisease #nocure
Please watch if you can my fellow #CMTwarriors as the Warren family graciously opens up to share their #VoiceOfCMT thank you to #hnf4cmt #CharcotMarieTooth #FunnyNameSeriousDisease #raredisease #CMT1A #1in2500 #CMTdoesnotdefineme #CMTwegotthis #chronicillness #invisibledisease
Day in the Life of CMT: The Warren Family https://t.co/PP0AAzoAKm via @YouTube #CMTwegotthis #CMTawareness #PFDD #CharcotMarieTooth #HNF4CMT
@marklarkin1 is attending the 2018 @AANEMorg Annual Meeting & will present the newly launched @CMTandMeApp w/ @Pharnext & @CMTNeuropathy today from 8AM local time. Don't miss it!
#realworldevidence #realworlddata #CMT #charcotmarietooth #keepingitreal
#Vitaccess and #Pharnext Launch International CMT&Me Observational Study
https://t.co/zBCx94QNVW
Learn more about #CharcotMarieTooth Type 1A and other #RareDiseases at #CheckOrphan - https://t.co/uong3CyZhF #researched by @Pharnext @Rare
#CMTweGotthis So emotional, thank U 2 these brave young people 4 sharing💜💪#CMTawarenessMonth
#FunnyNameSeriousDisease #1in2500 #CMTdoesnotdefineme #butyoudontlooksick #cmt #CharcotMarieTooth #neuropathy #raredisease #CMTwarriors #invisibledisease #chronicillness #hnf4cmt
When the children speak we need to listen!! #PFDD #CMTwegotthis #CMTstrong #HNF4CMT #PatientVoices #FacesofCMT #CharcotMarieToothDisease #CMTstrong
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