Christina

[Christina @ChrisAz2015]

#CMT #CharcotMarieTooth #fatigue IS REAL help bring awareness & treatment 2 #RareDisease #NOcure #NOtreatment use the @CMTandMeApp #CMTdoesNOTdefineME #spoonie #CMT1A #InvisibleDisease #CMTwarrior YES I work FT Volunteer & live MY best life with #AFOs #walker #powerchsir #VMIvan

[CMT & Me @CMTandMeApp]

Summer is officially here! Does it help with your #CMT? Complete the Brief Fatigue Inventory to record if it makes a difference or not. #charcotmarietooth #fatigue #summer #sumersolstice
@ecmtf @AssoCMTFrance @Federacion_ASEM @ACMT_Rete @CMTUnitedKdom @CMTNeuropathy @cmtausa

[Christina @ChrisAz2015]

@BravoTV 🍸🍸🍸🍸

[Christina @ChrisAz2015]

@Steve_Irvin Great 2 👀 you on TV tonight!!

[Christina @ChrisAz2015]

@1capplegate as a person that traveled a similar journey with a neuromuscular disease remember YOU R A Warrior & U got this🤗My CMT has no treatment no cure,my family carries me on their shoulders & my tools help conquer roadblocks everytime ❤️ my 80 yr old mom is my 🪨

[Christina @ChrisAz2015]

@ACMawards If you weren't able to sing any longer & had to retire due to a progressive neurological disease like CMT, which Alan Jackson & I have, what would be your career choice?

[Christina @ChrisAz2015]

#cmtlife #mydisease #CMTAWARENESS #charcotmarietoothawareness #RareDisease #NOtreatment #NOcure
#CMTdoesNOTdefineME #FundedResearchBringsRESULTS #CMTwarrior #CMTwillNOTstopMe #iamfaceofcmt

[HereditaryNeuropathy @CMTNeuropathy]

We are thinking of you #AllenJackson!! #cmtstrong #hnf4cmt #cmtwegotthis #cmt #cureCMT #charcotmarietooth

[Christina @ChrisAz2015]

Thx U @JimmieAllen so much #FreedomWasAHighway was the song me & my dad would sing together as he drove me around as my chauffeur back/ forth 2 work & just everywhere due 2 my neurological disease CMT. Since he passed unexpectedly in March #YouWobtBeAlone comforts my ❤️

[Grand Ole Opry @opry]

Our friends @circleallaccess are running a @JimmieAllen takeover on Saturday, October 15th!

We’re celebrating by giving away an autographed “Bettie James" Gold Edition vinyl!

To enter, share your favorite Jimmie Allen song! We'll pick TWO winners tomorrow at 10am.

[Christina @ChrisAz2015]

@bsw5020

[Christina @ChrisAz2015]

Now we need another season 3 please sooner than later #bloodandtreasure 🙏

[Blood & Treasure @TreasurePPlus]

Lexi and Danny's adventure is almost over 😧

Stream the season finale of #BloodandTreasure now on Paramount+.

[Christina @ChrisAz2015]

Dad must be watching today. I spy a double rainbow 💗 Mom gets 1 & I get the smaller 💖 https://t.co/gsIcnekpRb

[Alexandra Cavaliere @ajcavaliere]

Shame on you @Delta

[Christina @ChrisAz2015]

#HarkinsSmileSweepstakes ❤️ Halloween season & decorations 🧛‍♂️🧛‍♀️🦇🎃👻

[Christina @ChrisAz2015]

Please donate if possible If everyone did just $5 Brian could & would continue 2 soar in this mission. Thank you

[Brian Wallach @bsw5020]

Update on the birthday fundraising campaign: Team #GoodNightMoon has jumped to the lead!

But wait, I thought this would happen so I have an amazing donor who will give $15K to team #NotTodayALS!

Keep the tweets and donations coming—this will be close!

https://t.co/TkKscOfssQ

[Christina @ChrisAz2015]

#knowCMT #CMT1A #CharcotMarieTooth #spoonie #invisibledisease #hnf #1in2500 #cmt #mydisease #CMTAWARENESS #RAREDISEASE #1in2500 #cmtdoesnotdefineme #IAMCMT #IamTheFACEofCMT

[Christina @ChrisAz2015]

@JimmieAllen Arizona!!

[Christina @ChrisAz2015]

#SeptCMTawarenessmonth #beyourownadvocate
#1in2500 #NOtreatment #NOcure #invisibledisease
#CMTdoesNOTdefineME #FundedResearchBringsRESULTS
#CMTnotCountryMusicButImpacts2Many
#CMTwarrior #CMTwillNOTstopMe #MobilityToolsGiveMeIndependence #walker #powerchair #WAV #iamfaceofcmt

[Pharnext @Pharnext]

FOr the last day of #CMTAwarenessMonth, it’s important to emphasize the lack of approved curative medications to treat #charcotmarietooth disease.

Current methods consist of supportive care and occupational therapy or surgery to alleviate the pain but don't treat the condition.

[Christina @ChrisAz2015]

#SeptIsCharcotMarieToothAwarenessMonth #mydisease #CMTAWARENESS #charcotmarietoothawareness #RAREDISEASE #1in2500 #cmtdoesnotdefineme #IAMCMT #IamTheFACEofCMT

[Christina @ChrisAz2015]

#SeptIsCMTawareness #CharcotMarieTooth Many #CMTers work full time #IAMtheFaceOfCMT until our #RareDisease w/ #NOcure #NOtreatment IS 2 much remote working is great; nothing replaces ur #2ndFamily=Work Thx U 2 my employer @vmivans they're 100% supportive #disabilities #adaptive

[Christina @ChrisAz2015]

#SeptIsCharcotMarieToothAwarenessMonth #mydisease #CMTAWARENESS #charcotmarietoothawareness #RAREDISEASE #1in2500 #cmtdoesnotdefineme #IAMCMT #IamTheFACEofCMT #cmtwarrior #knowCMT #FundedResearchBringsResults #NOtreatment #NOcure

[Christina @ChrisAz2015]

Proud & lucky 2 call Bernadette friend & #CMT sister. 1st person I ever knew w/ #CharcotMarieTooth besides me. #SeptIsCMTawarenessMonth & grateful Bern helped in many ways, both seen & unseen💞 #WEareCMT #WeGotThis #CMTwarrior #BeYOURownADVOCATE #IamTheFACEofCMT #knowCMT

[HereditaryNeuropathy @CMTNeuropathy]

From a girl with a family secret to the star of a documentary, Bernadette brought her family's struggle with CMT into the spotlight https://t.co/Uv6WttelJW #cmtwegotthis @MDAorg #cmtawareness #bernadettecmtmovie #throwback #mda #charcotmarietooth