Top Tweets for #CSDSyd
Mycket trevlig och givande möte i går i Lund med #HHT patienter, #CSDSyd och #RiksförbundetSällsyntaDiagnoser . Tack alla. #sällsyntaliv #oslerssjukdom #CSD
@csdsyd HHT Faktablad för sjukvårdpersonal. Dags för Sverige att vara med. Dags att ha dem till hands pa svenska #vascern #leavenononebehind #osler #hht #csdsyd
Dos and donts #factsheets for #HHT, #Marfan, #vEDS and #PPL a great accomplishment! #VASCA starting soon! Already translated in various languages for some! Find them here: https://t.co/S9XdlIkAwe #ERNeu @robert_leema @MiikkaVikkula @judbacke
Knowledge is the 'rare' side effect of information
Sällsynta aktörer angriper gemensamma kommunikationsutmaningar
#sällsyntaliv #CSDsyd
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