Top Tweets for #CaptureALS
CRU representation at #ENCALS2024 this week! Nisha Pulimood (r) presented a poster on darifenacin, a selective M3 muscarinic receptor antagonist, and its impact on #NMJ function in #ALS. HyungMo Kang's (c) poster outlined findings from Canadian biobanking initiative #CAPTUREALS.
Today I had my first visit @Sunnybrook for #CaptureALS #LivingWithALS I know how important it is to participate in any way to help #EndALS hopefully help save my life, my children’s & future generations #C9orf72 #FamilialALS pls consider participating 💜let’s do this together!
Did you know that healthy research controls are needed in addition to people living with #ALS to gather comparative data? This #JuneAwarenessMonth, you can support people living with ALS by being a part of CAPTURE ALS. To learn more, please contact [email protected].
Understanding why each person's journey living w/ #ALS is so unique is essential to identifying new treatments. Our 2024 Federal Pre-Budget Submission advocates for an investment in #CAPTUREALS, a platform that'll lead to more robust clinical trials: https://t.co/y6Ps4wgwnr.
1/2: While #Budget2023 made important commitments to improving public health care and the collection of health care data, we were disappointed not to see any funding allocated for innovative research or #CAPTUREALS.
This is what today’s budget invests in: the possibility for every single Canadian to share in the remarkable opportunities that Canada provides—and in the new era of prosperity that we will build together. https://t.co/HNLLGYVnMs
Understanding why each person's journey living w/ #ALS is so unique is essential to developing new treatments. Our 2023 Federal Pre-Budget Submission urges the gov't to invest in #CAPTUREALS, a project that'll lead to more effective therapies: https://t.co/W00TpEWOyZ
In today's Media Digest: Alberta man first to be recruited for CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS
@ALSCanada #CAPTUREALS
https://t.co/rvjISdfiYw
An exciting Canadian research platform for #ALS w collaboration w international projects. @ALSCanada has been critical to development & funding. Exciting to see PALS start to be enrolled. Thank you Garry for being the first. #AFutureWithoutALS #CAPTUREALS https://t.co/LGkTKIe3do
Garry Zelasek is the first person to be recruited for #CAPTUREALS, a Canadian platform dedicated to understanding why #ALS is different in each person and accelerating therapy development. Read Garry’s story: https://t.co/CX61HIrqd6.
TY @ChrisSnowCGY @kelsieswrites & their two young children for continuing to share their journey with #ALS & raising awareness about the disease. The funds the Snows have raised to support #CAPTUREALS will also help to unlock answers to the causes of ALS. @hockeynight #AfterHours
For long conversations I tilt my head fully back or lie down. The angle change compensates for a weak soft palate, an atrophied lower lip and a never-quite-clear throat. Felt empowering and affirming to sit tall and talk live to Canadians coast to coast. https://t.co/kCyxB3SMfu
What were the most newsworthy #ALS research stories of 2021? Dig into the summary our research team has put together, including information about #AMX0035, #tofersen, oral #edaravone, #captureALS and more: https://t.co/sOOgoEV87o
Thank you MP @Francis_Drouin for your support of the ALS community and for sharing your voice to open the @ALSCanada Research Forum. Great to see your 'purple'. @AFutureWithoutALS #TimelyAccesstoALSTherapies #CAPTUREALS #ALSResearchFunding
A very big week. So pleased to see the support from funding partners for CAPTURE ALS - government, donors and industry, with researchers and clinicians working together on an important platform for ALS research in Canada and globally. @ALSCanada #AFutureWithoutALS #CAPTUREALS
Together w/@BrainCanada excited to announce $2.85M for CAPTURE ALS, which will help create stronger clinical trials, transform the way we understand ALS and accelerate ALS drug development. @Alnylam @Regeneron Learn more: https://t.co/nCSFdjd8SO
Un énorme merci à tous ceux qui ont participé à cette campagne en ligne. Plus de 2,350 Canadiens ont envoyé un courriel à leur député demandant un financement dédié à la recherche sur la SLA. Ensemble, on est plus fort. #alsresearchmatters #captureALS https://t.co/308xkgpmWO
A big thank you to everyone who took part in the recent online MP letter-writing initiative. Over 2,350 Canadians sent emails to ask the federal government for dedicated ALS research funding. Together we are stronger. #alsresearchmatters #captureALS https://t.co/jshUCBq9EP
I just emailed my MP to help support a future without ALS. Please participate and lend your voice to ask the federal government for critical funding for ALS Canada and the ALS community #emailyourMP #captureals https://t.co/JrjFSj31cS
Today is the last day for you to send a message to your MP that Canadians need dedicated funding for #ALS research. Over 2060 letters have already gone out - sign your name before midnight - together we are stronger. #alsresearchmatters #captureALS https://t.co/jshUCBq9EP
Jan 21 is the last day to make your signature a powerful way to support people with ALS! Add to the momentum and join over 1,850 Canadians who have emailed their MP to secure dedicated ALS research funding. #alsresearchmatters #captureALS https://t.co/jshUCBq9EP
I just emailed my MP to help support a future without ALS. Please participate and lend your voice to ask the federal government for critical funding for ALS Canada and the ALS community #emailyourMP #captureals https://t.co/3DFAG87nlm
Avant son décès, Eddy Lefrançois a exhorté les canadiens à envoyer un courriel à leur député afin de demander un financement gouvernemental dédié à la recherche sur la SLA. Aidez-le à atteindre son objectif de 1500 courriels d'ici le 21 jan. #captureALS https://t.co/jshUCBq9EP
Before his passing, ALS Canada ambassador Eddy Lefrançois urged Canadians to email their MPs asking for dedicated government funding for ALS research. Please help realize his goal of 1,500 emails sent by Jan 21. Lend your support in 60 seconds. #captureALS https://t.co/jshUCBq9EP
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