Top Tweets for #CarePartnerSummit
A Parkinson’s diagnosis launches a long journey with uncertain turns, starting in 2009 for Marlene and Bill Perdan. She tells how knowledge, information, & preparation guides them. #Parkinsons #SubstantialMatters @ParkinsonDotOrg https://t.co/DQ5HoXDrQd #CarePartnerSummit
Incredible resources being discussed in this panel! #carepartnersummit
How can I arrange for care for my loved one at home as long as possible? How do I know when it’s time to change my home to make it "PD-friendly"?
-#OccupationalTherapists can provide in home assessments.
Contact our Helpline for referrals: 1-800-473-4636 | [email protected]
In the middle of the challenging moment for #Parkinson #carepartner DO 5 THINGS
find ✅5 things to look at
✅4 things to touch
✅3 things to hear
✅2 things to smell
✅1 thing to taste
#Mindfulness #carepartnersummit @ParkinsonDotOrg
Such powerful session - amazing examples of #carepartner #resilience
Commonly #Taboo Challenges are all discussed:
#Resentment #Identity #FeelingSad #Maintaining_Love_Relationships
@ParkinsonDotOrg #carepartnersummit
Join us online May 16 for a series of panels answering #caregiving questions submitted by YOU like this one that will focus on 💆 #selfcare 💆♂️ as it pertains to #ParkinsonsDisease. Register today for updates and more information: https://t.co/k9xEn21DSt
#CareChat #Care4PD
Self care for #Parkinson 🌷 #carepartner 🌷
💙Be kind to yourself - #EMPATHY is your #superpower - not keeping tight control
💙Take a break: mental ☕️🎧, physical 🚴♀️🤸or spiritual 🧘⛪️🕌🕍
💙Create a village of helpers around your #Parkinson partner #carepartnersummit
@ParkinsonDotOrg #carepartnersummit Elaine Book “it’s okay to not be okay, and to have a bad day” allow yourself to have a bad day. #parkinson’s
@ParkinsonDotOrg #carepartnersummit nice reminder for self-care to be kind to yourself and don’t always expect perfection. It’s okay to leave a task undone, like the dishes, if it means you can get rest and give yourself time. Let go of expectations of perfection.#selfcare
And here are to more accomplished and inspirational 🙌💙Elaine Book, MSW, RSW, Pacific Parkinson’s Research Center
💙Joan Hlas, MSW, LISW, Struthers Parkinson’s Center
💙Jessica Shurer, MSW, LCSW, @UNCneurology @ParkinsonDotOrg Center of Excellence #carepartnersummit
Current session on cognitive impairment is GOLD!! Absolutely to the point evidence - based advice from people with tremendous experience and knowledge #carepartnersummit
@ParkinsonDotOrg
@ParkinsonDotOrg great tip by Helpline counselor Amanda 2 allow 4 time counting out “Mississippi” & allowing for a FIVE count It’s a nice simple tool 2 remember how long 2 slow down 2B sure 2 engage a loved one who may struggle 2 jump into the conversation. #carepartnersummit
@ParkinsonDotOrg #carepartnersummit I liked Dr Turner’s comment in the 1st session about how ppl don’t need a psychologist/psychiatrist all the time. They should be used when an issue arises. Good to think of them like any other doc, who is used to fix a prob., not permanent.
@ParkinsonDotOrg Dr Turner’s message that “cognitive behavior therapy is a work out” is important. It’s not supposed to be easy, if you want to make progress you have to put the work in. #Parkinsons #CarePartnerSummit
Did I spend an hour tying these ribbons? Yes. Was it worth it? Yes. Am I ready for Christmas? You bet.
@ParkinsonCanada #CarePartnerSummit
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