Top Tweets for #Cfcantwait
Amazing news from #Turkey today - CF patients aged 6+ will have access to #Trikafta. ❤️
BUT… Why did it take 6 years whilst @VertexPharma blocked efforts to access affordable alternatives? How many young lives were lost? 😞
And 000’s globally are still waiting 😡
#CFCantWait
13 YEARS since @VertexPharma’s 1st #cysticfibrosis medicine was approved. A groundbreaking moment—one that brought hope to 000’s.
Yet, 000’s of children are still waiting.
Shocking. Inhumane. Unacceptable.
It’s time for Vertex to do the right thing.
#CFcantWait #Access4All 💊🌍
I advocate for affordable drug prices because around the world tens of thousands suffer and many will die prematurely, while @VertexPharma sit and counts their billions $$$ - Support @VertexSaveUs @justtreatment https://t.co/OzTL9kkLjP #CFCantWait #kfbekleyemez
Why do YOU advocate for lower drug prices? Share your 'why' below! ⬇️
Today marks 5 years since Trikafta's approval, yet thousands of #cysticfibrosis patients like Patrick from Ecuador are still waiting ⬇️.
📢 @VertexPharma, it's time to make this life-saving drug accessible to all!
#ShameonVertex #CFCantWait
Today marks 5 years since Trikafta's approval, yet thousands of #cysticfibrosis patients like Patrick from Ecuador are still waiting ⬇️.
📢 @VertexPharma, it's time to make this life-saving drug accessible to all!
#ShameonVertex #CFCantWait
We are shocked & saddened that the @brkthroughprize is giving @VertexPharma an award whilst their exorbitant drug pricing means that many #CysticFibrosis patients are left to suffer and die without access.
There can be no celebrations without access for all. 💊🌍 #CFCantWait
We are outraged that the @brkthroughprize is giving @VertexPharma an award, while Vertex's exorbitant drug pricing leaves many #CysticFibrosis patients suffering and dying without access.
#CFcantwait
Thousands of #CysticFibrosis patients are dying w/o access to lifesaving drugs.
This is the impact of @VertexPharma’s greed ⬇️
Let’s end this injustice. Watch, share & join our fight. https://t.co/dVgvW2FUcC
#RightToBreathe #CFCantWait @JustTreatment
Lives are at stake as #cysticfibrosis patients worldwide struggle to access vital medicines.
This is the devastating impact of @VertexPharma's greed ⬇️.
Let's end this injustice. Watch, share & join our fight.
#RightToBreathe #CFcantwait https://t.co/gVHcpjlnn6 @VertexSaveUs
🧵6/ This is not the final decision but parents seek certainty.
Vertex’s high prices can’t put children’s lives and health at risk. #CFcantwait #cysticfibrosis
🧵3/ Gayle, @VertexSaveUs & @JustTreatment member, shares the life-changing effects these meds have had for her daughter and the urgent need to address Vertex's high price tag.
#RightToBreathe #CysticFibrosis #CFcantwait
🧵1/ Parents in the UK are on edge as NICE reviews funding for #CysticFibrosis drugs amidst concerns over Vertex Pharmaceuticals high pricing.
#itvnews #RightToBreathe #CFCantWait
@VertexSaveUs @strawfie
🚨BREAKING: US drug giant @VertexPharma has just been called out by #RightToBreathe campaigners over its scandalous drug pricing.💊
How many billions is enough?
We demand that lives are put before profits.🌍 #NACFC2023 #CFcantwait
Don't make these young people with #cysticfibrosis wait for access to a life-saving drug that is available in wealthier countries - but not in most low & middle income countries #CFCantWait #nacfc #NACFC2023 #trikafta #kaftrio @cfaware @VertexSaveUs @MarcCotterill @liammchugh1961
The burning question - "How many billions is enough?"
Can anyone at #NACFC2023 ask @VertexPharma for the answer?
#globalaccessplan #trikafta4all #cfcantwait #kaftrio #trikafta #nacfc #cfawareness
BREAKING: #CysticFibrosis families from @VertexSaveUs & advocates confront @VertexPharma at their head office in Boston.
"How many billions is enough?"
They are here to challenge the exorbitant $326k/year charge for life-saving CF meds, leaving only 25% of patients with access.
I joined @CFCanada to help get #Trikaftaforall who need it by writing a letter to my local officials because #CFCantWait! Join me and write your letter now: https://t.co/DRgvTnPjBY
I joined @CFCanada to help get #Trikaftaforall who need it by writing a letter to my local officials because #CFCantWait! Join me and write your letter now: https://t.co/pwbmtCjwV7
I joined @CFCanada to help get #Trikaftaforall who need it by writing a letter to my local officials because #CFCantWait! Join me and write your letter now: https://t.co/vK2aBr7OLM
NEW: 100+ #cysticfibrosis clinicians & health professionals from across the world have signed an open letter to @VertexPharma demanding urgent action to ensure global access to lifesaving treatment.🌍
Read more 👇 #CFcantwait #RightToBreathe @VertexSaveUs
https://t.co/UTZKm5MvHw
Heartbreaking. Our #Farwell4Hire fund supports research that has helped develop the life-saving treatment, Trikafta. But our fund cannot be used to sponsor an individual to pay for the drug. Health Canada + Ontario's health ministry need to act on this. #CFcantwait
@farwell_WR please help
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