Top Tweets for #CureHHT
Mark your calendars! We're 100 days away from HHT Awareness Day. Let's start the countdown and spread awareness.
#HHTAwareness #100DaysOut #CureHHT #SeeBeyond
#GivingTuesday is almost here! 🚨
On December 3rd, your support fuels research, resources, and hope for families impacted by HHT. Let’s make a HUGE impact together! 💙
Mark your calendar and get ready to give! #CureHHT
Learn more: https://t.co/o5um0GPvqL
Feliz de asistir al 15th HHT International Scientific Conference. Hemos tenido la oportunidad de compartir espacio e impresiones con los/as referentes mundiales en esta enfermedad y nos volvemos a casa con la maleta llena de ideas y ganas de seguir trabajando.
#CureHHT
Amplia representació de @InternaHub a dos congressos d’àmbit internacional en els respectius camps: Immunodeficiències #ESID2024 i #HHT #cureHHT 15th International Scientific Conference
🎙️ Riley Blevins shares his #HHT journey on @StoryCollider, revealing the silent struggles families face with #raredisease.
Chosen as part of the @ChanZuckerbergInitiative #RareAsOne project, his story embodies the hope and resilience of #CureHHT.
👂 https://t.co/u7nfUW15DU
Celebrating a remarkable evening for #RareDisease researchers!
Shoutout to Dr. Anthony Anzell, our #CureHHT MVP, and huge thank you to @UpliftingAthletes!
📷 Check out unforgettable #YID24 moments where Dr. Anzell took the spotlight pushing #HHT research forward.
We are excited to announce our collaboration with @UpliftingAth to award Dr. Anthony Anzell a $20k grant in support of his research to #CureHHT! Join us in celebrating Dr. Anzell at the Young Investigator Draft on February 3! #YID24 https://t.co/q46iNM5qoq
Thank you @SenatorBraun and staff for the chat today about Promising Pathways to drug approval for rare disease patients. For diseases like HHT where no FDA-approved therapies exist, this legislation will be a game changer. #PromisingPathwaysAct #CureHHT #Hoosiers
@catgyoung I am the Director of Research and Grants for a rare disease patient advocacy organization. It is an amazing job full of variety and certainly not lacking science! Not to mention two of my kids have this disease, so it is also a work of passion. #CureHHT
At #CureHHT, we directly support researchers and scientists to help usher in breakthroughs for our disease.
Learn more about our work and thank you for considering donating to support our mission: https://t.co/RHvfNwzn3l
At #CureHHT, we work tirelessly to keep us #OnTheCuttingEdge of science and medicine. This year end appeal, a gift of any kind truly helps us push for continued progress: https://t.co/RHvfNwzn3l
#GivingTuesday is here! Today, we’ll highlight a few of our standout HHT young scholars – starting with Varun Singh, who aspires to be an #HHT CoE director.
Please consider #CureHHT this #GivingTuesday https://t.co/Y6gDI5cibP
When I grow up I want to be a....?
The goal of our young scholar program is to have more and more aspiring clinicians and researchers dream to become tomorrow's #CureHHT heroes... just like Anna Gong and Lea Scherschinski! Learn more and donate here: https://t.co/Y6gDI5tT3n
30 years ago, there was one #HHT CoE in the US. Today, there are aspiring clinicians & researchers who hope to focus their careers on HHT – thanks, in part, to our Young Scholar Award program.
Please consider #CureHHT this #GivingTuesday
Support #CureHHT while you shop this #BlackFriday! When you shop through https://t.co/C8CbHKgA5h, Amazon donates a percentage of eligible purchases to the charitable organization of your choice for no fee and no extra cost. Be sure to select Cure HHT!
#GivingTuesday is just around the corner! Stay tuned as we’ll be highlighting a few of our standout young scholars who help keep us #OnTheCuttingEdge.
Please consider #CureHHT this Giving Tuesday: https://t.co/Y6gDI5cibP
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