#PromisingPathwaysAct - Twitter Hashtag

about 2 years ago

Thanks @AlMusella, for advocating for #GBM families like mine. When we think of cancer, we tend to think of the physical pain, but the mental health toll on patients & families is endless. Knowing #NWBO #DCVAX is close has been a great comfort. Support #PromisingPathwaysAct

Lisa🇺🇸🇺🇦 @LisainNJUSA

about 2 years ago

Dear #Cancer Families, The physical, mental, & emotional toll of cancer is one of life's greatest challenges. Small biotech, #NWBO created nontoxic, no side effects #DCVAX. Soon to be approved in the UK. Call your reps for faster @US_FDA approvals. Support #PromisingPathwaysAct

LisainNJUSA's tweet photo. Dear #Cancer Families,
The physical, mental, & emotional toll of cancer is one of life's greatest challenges.

Small biotech, #NWBO created nontoxic, no side effects #DCVAX. Soon to be approved in the UK.

Call your reps for faster @US_FDA approvals. Support
#PromisingPathwaysAct https://t.co/WDFi32zVsI

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Lisa🇺🇸🇺🇦 @LisainNJUSA

about 2 years ago

Dear #Cancer Families, The physical, mental, & emotional toll of cancer is one of life's greatest challenges. Small biotech, #NWBO created nontoxic, no side effects #DCVAX. Soon to be approved in the UK. Call your reps for faster @US_FDA approvals. Support #PromisingPathwaysAct

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Lorri Cavaliere

@LorriCav

over 2 years ago

@onein300 @AKJKLove4Ever @MinoSean @bsw5020 @sabrevaya I think most pALS would be willing to take the chance. It could be the hope pALS are looking for. #PromisingPathwaysAct will be a real game changer! 🙏🏻🙏🏻🙏🏻

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Cassi Friday, PhD @CassiFriday03

over 2 years ago

Thank you @SenatorBraun and staff for the chat today about Promising Pathways to drug approval for rare disease patients. For diseases like HHT where no FDA-approved therapies exist, this legislation will be a game changer. #PromisingPathwaysAct #CureHHT #Hoosiers

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The Cure Starts Now @CureStartsNow

over 2 years ago

@SenateAgingGOP @SenatorBraun @SenFettermanPA @ReverendWarnock @PeteRicketts @JDVance1 @SenWarren @marcorubio @ScottforFlorida @SenMarkKelly @SenBlumenthal @SenGillibrand @SenBobCasey @ReflectsOfGrace We believe that this Act benefits children and adults with rare diseases by gaining meaningful access to drugs and therapies as they race against time. - Tamara Ekis #PromisingPathwaysAct

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The Cure Starts Now @CureStartsNow

over 2 years ago

@SenateAgingGOP @SenatorBraun @SenFettermanPA @ReverendWarnock @PeteRicketts @JDVance1 @SenWarren @marcorubio @ScottforFlorida @SenMarkKelly @SenBlumenthal @SenGillibrand @SenBobCasey It ensures that appropriate drug options and therapies would be available within their lifetime, without relying on petitioning for compassionate use. - Tamara Ekis #PromisingPathwaysAct @ReflectsOfGrace

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The Cure Starts Now @CureStartsNow

over 2 years ago

The #PromisingPathwaysAct is important to us because it allows children diagnosed with the rarest and most virulent brain cancers options that our daughter was not afforded. - Tamara Ekis https://t.co/22ya4fheNL

CureStartsNow's tweet photo. The #PromisingPathwaysAct is important to us because it allows children diagnosed with the rarest and most virulent brain cancers options that our daughter was not afforded. - Tamara Ekis
https://t.co/22ya4fheNL https://t.co/f2OsSIHVja

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Clay Heald

@citgoman21

almost 4 years ago

@DivineRickee @alexeades1 This is so true. No one should have to travel internationally for potential life-saving therapy that is available anywhere else in the world today. Absolute #BS #promisingpathwaysact #DCVax #FDA #Glioblastoma #GBM #POTUS #FDA #BigPharma

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Clay Heald

@citgoman21

about 4 years ago

@LisainNJUSA @FlemmingBruce @HenryMuney @Twitter The more people that request/demand it, the more pressure we are applying. There’s also the #promisingpathwaysact that could allow therapies like this to be used. I don’t know the full details of it, but something else to look into.

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Clay Heald

@citgoman21

about 4 years ago

@DrKatHitchcock I sincerely hope for you and anyone with #gbm that $NWBO #DCVax gets some form of approval very, very soon. Just making sure people are aware of the therapy! #promisingpathwaysact #allsolidtumors

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Dean Clancy @DeanClancy

about 4 years ago

Why not save lives by applying the lessons of Operation Warp Speed to other therapies? @WashTimesOpEd #promisingpathwaysact @SenatorBraun #personaloption https://t.co/yJVR9FVpXJ

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Governor Mike Braun

@GovBraun

about 4 years ago

We must take a stand for those who can't. #PromisingPathwaysAct @bsw5020 https://t.co/dlBAd15fsZ

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Josselin Castillo @Josselinsweet

about 4 years ago · Kansas City

Congress should apply lessons learned from the pandemic and remove red tape to increase patient access to life saving treatments. @SenatorBraun #promisingpathwaysact

Americans for Prosperity @AFPhq

about 4 years ago

Patients living with life-threatening diseases are at the mercy of the FDA's antiquated approach. Americans with ALS and other terminal diseases are denied access to drugs available to Canadians and Europeans. https://t.co/lY2UR06zVA

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Governor Mike Braun

@GovBraun

about 4 years ago

Great video that underscores the importance of the #PromisingPathwaysAct for terminal patients and their families. Check it out ⬇️

The FGA @TheFGA

about 4 years ago

Dr. Gavin Bumgardner, medical counsel for @CureStartsNow: The #PromisingPathwayAct "provides a potentially lifesaving pathway for terminal patients and their families to gain access to drugs they might not otherwise be afforded." WATCH: https://t.co/Nr6wrk2bhR

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Beth Steckler (she/her) @purplemamabear

over 4 years ago

#PromisingPathwaysAct what you need to know ⬇️ check it out!

Patient’s Right to Know 340B @340BPatients

over 4 years ago

(1/2) The Promising Pathways Act would require the FDA to establish a priority review system & an Office of Patient Advocate General that would provide assistance to patients that rely on provisionally approved drugs.

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Traci Cotton @tao_cotton

almost 5 years ago

@PattyMurray , @RepRickLarsen , @SenatorCantwell this is a fellow #PacNW #ALS warrior. We need you to #ACTforALS. @iamalsorg #promisingpathwaysact #EndALS @AlSvets @US_FDA

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Kandy Simons @KandySimons

almost 5 years ago · Coral Terrace

Thank you again for conducting the hearing for neurodegenerative diseases @EnergyCommerce ! #LetsFundEAP #AACTforALS #HR3537💪 #PromisingPathwaysAct💪 #DrugsInBodies. Thank you for listening to the #ALS community

I AM ALS @iamalsorg

almost 5 years ago

Thank you @EnergyCommerce Health Subcommittee for hosting last month's hearing on neurodegenerative diseases! We appreciate your dedication to ending ALS. Signed, The I AM ALS Thank You Squad 💖

iamalsorg's tweet photo. Thank you @EnergyCommerce Health Subcommittee for hosting last month's hearing on neurodegenerative diseases! We appreciate your dedication to ending ALS. Signed, The I AM ALS Thank You Squad 💖 https://t.co/cTWyRkf2gn

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Andrea Pauls Backman (she/her) @AndreaBackman05

almost 5 years ago

We need #ACTforALS and the #PromisingPathwaysAct to take bold, urgent steps toward drug approval and access. Read more here.

Les Turner ALS Foundation @LesTurnerALS

almost 5 years ago

Our CEO @AndreaBackman05 was quoted extensively in the FDA News article: “ALS Community Fires Back at Cavazzoni Following Hearing on Neuro Diseases.” The congressional hearing focused on the slow pace of FDA approvals for neurological drugs. Read more: https://t.co/sWtKQo2cH6