Top Tweets for #CureID
We are excited to see the head of #CUREID recognized on behalf of the whole team for their efforts to advance #drugrepurposing and patient health! Please vote for @IDEpiHeather for the Health Advocate Flywheel Award below by July 17th.
I'm honored to be a finalist for the GovCIO Media & Research Health IT Summit Health Advocate Flywheel Award for my work with @US_FDA and @ncats_nih_gov on CURE ID (https://t.co/pKQytfUhhT) @id_cure. I'd greatly appreciate you taking a moment to vote: https://t.co/Cacq1Ryxil
https://t.co/pSllPI7KQB: Share CURE ID with your healthcare network, classmates, and friends interested in clinical research. Collaborative discussions on rare cancers, infectious diseases, and treatment strategies can inspire the next breakthrough in medicine. #CUREID
https://t.co/pSllPI7d13: Help spread the word about CURE ID to colleagues, students, patients, and researchers. By sharing clinical experiences and literature on rare cancers, infectious diseases, and repurposed medications, we can drive innovation in medicine together. #CUREID
Most federal workers are there to meet a challenge for a personal reason, not for money. This segment highlights Heather Stoneโs mission at #CUREID. Cc @DrJudyStone
Author Michael Lewis went behind the scenes to meet with the unsung heroes of American government. In the first part of our conversation, he told me their stories and about the problems of American life they are working to solve.
To everyone answering this on #LongCovid from @ahandvanish , please enter your experience into the #CUREID registry at https://t.co/h5VgUhZ3TP. It will help direct choices for clinical trials. ๐
If you were writing a list of treatments to give to a clinician to have their #LongCovid patients try, what should be on that list?
Can include current drugs, supplements, and off-label uses (ie maraviroc, rapamycin, valgancyclovir), but shouldn't be an unavailable treatment.
#RecoverTLC tapes are up at last! #CureID for #LongCOVID: Heather Stone
https://t.co/BFJ7A6kSOn and Selecting and prioritizing interventions https://t.co/lLYBtHTUAi
@ImmunoFever @MikeZ____ @bhanlon15 @betsyladyzhets You can also follow friends of #CUREID at @id_cure for more on drug repurposing and #LongCovid
@profhelenward Thank you so much Helen for highlighting #CUREID and for all of your guidance on how to meaningfully involve patients as true partners! Your comments really resonated and hopefully sent an important message to NIH and others about the difference between engaging and involving.
@doctor_zeest @meighanstone Thanks for the shout out for #CUREID and how hard @IDEpiHeather works to include the #LongCovid community in their planning. And yes, they do need more funding! ๐
If you have experienced #LongCOVID, please add your case report to #CureID, to help researchers learn what treatments helped you, and what didnโt help. This is a study designed BY patients FOR patients, supported by the FDA. Visit https://t.co/DLpxVy2uDx to enter your case.
It's critically important to gather more #LongCovid patient experiences. Please submit your cases to #CUREID, at https://t.co/h5VgUhZ3TP or QR code below
Excited to be presenting on #CUREID at 11:15am today and its potential to be a resource for #RECOVERTLC to use to inform its selection of treatments to trial in their RCTs. CURE ID can be a powerful tool for hypothesis-generation.
Thank you @doctor_zeest for sharing the opportunity #CUREID presents for both #LongCovid patients and clinicians to be heard!
We hope #RECOVERTLC will use this incredible resource to inform which drugs are studied in their trials. To make it all it can be, add your case today!
In DC, it's already the day @IDEpiHeather will the showcase @id_cure at #RECOVERTLC .
As #LongCovid funding drys up, @id_cure highlights the need for continued research.
Her panel starts at 11:15 EST. Listen and share your story https://t.co/sYnYfivsnC
Looking forward to speaking about the potential for #CUREID to help identify promising treatments to study in #LongCovid clinical trials! Hoping we can use this opportunity to increase the cases in CURE and show its value to trialists. Add your treatment experience today!
Join @IDEpiHeather on Tuesday September 24th to discuss CURE ID: A Platform for Long COVID.
Help us get to 500 cases by Tuesday! We hope the treatment experiences captured in CURE ID can help to inform the selection of drugs to be studied in RCTs.
https://t.co/sdj9of9LqU
@Comm_in_Care @TheWHN @Nat_E_Pearson @LongCovidItalia @LongCovidAdvoc @ELHopkins @kprather88 @Saffiya_Khan1 @scott_squires @keetmuise @jheighton3 @COVID_Advocacy @LongCovidKids @LongCovidSOS @longcovidIRE @LCKIreland @LCKScotland @ZeroCovidScot @LongCovidAP @LongCFoundation @catladyactivist It would be so helpful if @TheWHN boosted #CUREID, and more patients reported experience w #LongCovid treatments to https://t.co/h5VgUhZ3TP
#DrugRepurposing cc @julia_doubleday @DrEricDing @DFisman @TaylorLorenz @yaneerbaryam #pwLC @DesertDracula has a great guide ๐
Thanks for putting a link to #CUREID's #LongCovid data collection @violetblue. Here's more info: https://t.co/wZysC5uA3r
Patient reports are critical in guiding further treatment. #longCOVIDsharewhatworks! "Listening to patient experiences are our only hope."-@resiapretorius
There is a database of different Long COVID treatments.
Here's what you need to know...๐งต
@BrainInflCollab Thank you so much for bringing attention to #CUREID! @id_cure Such a great thread #LongCovid #LongCovidKids
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