Top Tweets for #CureLGS
Grab your walking shoes, bikes, wheelchairs, etc. and come walk and wheel with us! #CureLGS #WalkForLGS2022 #RareDisease #PurpleDay #LennoxGastautSyndrome
Register NOW and join us virtually Saturday, March 26th as we step towards a cure for LGS, together.
https://t.co/Qp8khpfwLK
#WalkForLGS #WalkForLGS2022 #LennoxGastautSyndrome #LennoxGastaut #LGS #RareDisease #Epilepsy #Walk #PurpleDay #Awareness #StepTowardsACure #CureForLGS
It’s time to end the devastation caused by LGS. Join us!
For most patients, the odds of achieving seizure freedom are less than 15% and the odds of having typical intellectual ability are less than 5%.
https://t.co/2DzUJ8ATfk
#LennoxGastautSyndrome #RareDisease #CureLGS
Today we lost 2 kids to LGS. Many more in the ICU. A beautiful 13yo & 12yo. Never having a chance at life without unrelenting seizures. Yet they taught us daily how to truly live. Most days, I dig in & fight harder. Today, though, I just want to cry. 😢 @LGS_Foundation #CureLGS
Doing some filming today for @LGSFoundation and #LGSAwarenessDay on Nov 1. I’m not cut out for this hair, makeup, and camera stuff but Savannah is in heaven. #CureLGS
We want a different future than the one these diseases have in mind for us and our loved ones. We will fight! @LGS_Foundation #CureLGS #LennoxGastautSyndrome #RareAsOne #RareDisease
None of us knows what tomorrow will bring, but I know this: we will fight, we will make a difference and we will end ALS, together. #IAMALS
https://t.co/DKTC9GViFL
Some 6 months ago we gathered at a vet clinic for the 1st #interneuron transplant on this “sweet boy” | 180+ DAT seizure free & happy again @Cronutt1 @SeaChangeHeal
We are very excited to see new options for LGS and Dravet families coming down the pipeline. Seizures continue to run rampant in children and adults with LGS and we are desperate for more options. Thank you! @curedravet #CureLGS #RareIsNotRare #RareAsOne #DEE
As part of our ongoing collaboration with @TakedaPharma, we are pleased to share results from the Phase 2 ELEKTRA trial in children w/ #DravetSyndrome and #LennoxGastaut syndrome. Read more: https://t.co/LeBxuw9EkG
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