Top Tweets for #CureMLD
Heartbreaking diagnosis for my sweet niece. Appreciate all the support we can get ❤️❤️❤️
#cureMLD #RareDisease @cure_mld @MLDfoundation @GRateFoundation
https://t.co/umtgyrQyxO
Cure MLD is celebrating #LeukodystrophyAwarenessMonth this September by posting leukodystrophy facts everyday. We also have a surprise tomorrow!
Please consider making a gift to Cure MLD today so we can continue supporting families like yours: https://t.co/3hF7KykI8a
#CureMLD
Cure MLD is proud to partner with the ULF for their annual family conference. Register today! See below details. There will be a session to get specific MLD upates. This session will also be streamed - sign up today to attend in person or access the virtual stream!
#CureMLD
The 2022 Scientific Symposium and Family Conference Registration is NOW OPEN! Check out our tentative agendas, register, and book your rooms on the ULF website!
https://t.co/s53qARJAdP
https://t.co/roRIZgdgtK
#ULF #40YearsofHope #NotGivingUp
Watch live tomorrow at 8:30 am as the AZ legislature hears testimony in support of #RightToTry for Individualized Treatments: https://t.co/fjeKoEXXPH
You can learn more about Right to Try 2.0 here:
https://t.co/nAqsvNyVJZ
Happy 12th birthday, Cal! 🥳🎊
Today we celebrate the beautiful Calliope Joy, without whom Cure MLD would not exist. We are so grateful for everyone's support this year. Thanks to you, we can continue to support kids like Cal and their families all around the world.
#CureMLD
This Leukodystrophy Awareness Month, it’s time to enroll in the Metachromatic Leukodystrophy Community United Research and Engagement Survey (#MLDCures) and challenge others to do the same.
Join at https://t.co/GjCzR4G1M0.
#LDAwarenessMonth #MLD #CureMLD
Thank you @AhwatukeeFN for the lovely update on our family since receiving treatment for Keira! ❤https://t.co/M2ohJV7jic #RareDisease #MLD #miracles #AZ #family #curemld
A HUGE thank you to Jim Flynn who helped raise nearly $20,000 this month after running @theSFmarathon earlier this week!
Read more about Jim running to support MLD families here: https://t.co/rjCqQfTYzw
#CureMLD
Happy 2nd birthday Cure MLD!
On the 5th of July in 2019, Cure MLD was launched with a coalition of MLD patient families.
Help us celebrate Cure MLD's big day by donating to continue supporting our work: https://t.co/3hF7KykI8a
#happybirthday #CureMLD
My son got a zoom call with Norman Reedus today, Norman is awesome and my son Raife is beyond happy.#MakeAWish #WalkingDead #NormanReedus #leukodystrophy #curemld
We are so grateful to be a part of this incredible achievement. And we hope to continue the effort to one day #cureMLD.
#LEUKORUNNERS
Estamos trabajando para cuando volvamos a correr.
Ya estamos preparados!
#PorUnMundoSinLeucodistrofias #Leucodistrofia #TeDamosPelea
#ForAWorldWithoutLeukodystrophy #CUREMLD
En esta cuarentena seguimos trabajando para ser visibles!!!!
Esperamos com ansias el momento en que podamos vernos y repartirlas!!
#PorUnMundoSinLeucodistrofias #Leucodistrofia #TeDamosPelea
#ForAWorldWithoutLeukodystrophy #CUREMLD
Ayer ISABELLA recibió su primer dosis de la TERAPIA DE REEMPLAZO ENZIMATICO PARA MLD en Porto Alegre
Pasó una noche tranquila con un poquito de fiebre pero era lo esperado
Seguimos todos juntos pensando en vos
#PorUnMundoSinLeucodistrofias #Leucodistrofia #TeDamosPelea
#CureMld
Thank you @LifeSciencesPA CEO #ChrisMolineaux and #CitizensBank CEO #DanFitzpatrick for having me be a part of your #CSuite #VIPBreakfast and #ConferenceKickoff #BreastCancerAwareness #CureMLD #AwesomeVivianFamily #ELLA #ELI
We #curemld moms were so honored to attend the fabulous @KrabbeConnect gala this past weekend! So many exciting advances happening in the leukodystrophy space. #STRONGERTOGETHER @caljoyfndtion @UMNews @RareDiseases
Exited that amazing French footballers @_OlivierGiroud_ and @ZidaneOfficial_ are also good humans raising awareness for MLD as ambassadors for @ELAOfficielle . Chloe, being half French, must be shouting from heaven #allezlesbleus ! #cureMLD @MNUFC @UMNChildrens
Gavin Flying for a Cure mom Shanna and me hanging out with one of our heroes, Dr. Gelb. He just presented data on an effective screen for MLD coming down the road! #curemld @caljoyfndtion
@Chloes_Fight founder and #MLD mom Erica Barnes & #MLD mom advocate Shanna Quimby are @EveryLifeOrg #Newbornscreening #bootcamp. #cureMLD #newbornscreeningsaveslives
Thank-you CanadaHelps... maybe we can win that $10,000 for Research right here in London!! #curemld🎉 https://t.co/rSuwZZIe3M
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