Top Tweets for #CureNpc
In mice missing NPC1, one IV dose got the liver making the protein again. Autophagy came back toward normal. Lipid and liver-injury markers improved.
Keep dosing, keep the protein. A functional-cure path. Not the finish line.
https://t.co/8ch9CoNVTH
#CureNPC #NiemannPickDisease
Huge thank you to everyone who helped make our bake sale a huge success! We more than doubled our fundraising goal for today. @pinkboxdoughnuts @behindtheblue_nv
#cureNPC #Life4Liam #niemannpickdisease #advocacy
Whenever you find yourself doubting how far you can go, just remember how far you have come. Remember everything you have faced, all the battles you have won, and all the fears you have overcome.
#cureNPC #hopeforlife #niemannpicktypec #raredisease #hopeinscience #rarekido #life4liam #childrensalzheimers #childhooddementia #keepmovingforward #niemannpickdisease #hopeforNPC #medicalresearch #genetherapy #fightingforacure
Help us raise awareness for Ultra rare Diseases πβ€οΈπ
Any amount will help β€οΈβ€οΈβ€οΈ
#cureNPC #HOPE #togetherwearestronger
https://t.co/enbOweJw8e
Meet Alec Koujaian. He works at Menards and likes to play basketball and video games with his dad. He also lives with #NPC.
Notre Dame works with rare disease patients like Alec and their families through advocacy, education and research: https://t.co/fNLXKXeZrI
#RareDiseaseDay
Thank you @DRoschNews3LV and @News3LV for helping us share Liam story!
#NPC #NiemannPick #CureNPC #ChildrensAlzheimers #LVMPD #BehindTheBlue #VegasStrong #Life4Liam
We extend our sincere gratitude to the Las Vegas Metropolitan Police Department (LVMPD) for their support of our family and supporting the fundraising efforts to find a cure for NPC and to help save Liam.
#cureNPC #niemannpick #niemannpicktypec #niemannpickdisease #childrenalzheimers #lvmpd #fightingforacure #fundaneed #rarediseasekids #rarediseaseparenting #raredisease #rarekido #life4liam #liamstrong #raisingawareness #keepmovingforward #dontstopthescience
Cyclo Therapeutics to Present at the 2022 NPC Patient and Family Conference Hosted by the Australian NPC Disease Foundation.
https://t.co/TAOCO1gRg5
$CYTH @NiemannPickOz #NiemannPick #NPC1 #NPConf2022 #cureNPC
Come out tomorrow & help us find a #curenpc #hopeforhayley @HerseyHuskies @coachpardun @JhhsOlympics @herseygirlspolo
Craft fundraiser for Hope for Hayley May 6-7 Prospect Heights IL All proceeds go towards Research for a Cure #CureNpc
$CYTH to Present at the 2021 NPC Patient and Family Conference Hosted by the Australian NPC Disease Foundation. @NiemannPickOz
https://t.co/F1VSZrtzI1
#NiemannPickDisease #NiemannPickC #NiemanPick #NPC #NPC1 #cureNPC #npdawareness
Niemann Pick Type C an Ultra Rare progressive genetic disorder. The body is unable to transport cholesterol & other fatty substances (lipids) inside of cells. This leads to the abnormal accumulation of these substances within the brain & various tissues of the body. #curenpc
On DNA Day (4/25) we are holding a Stripes-a-Thon and spotlighting 12 rare genetic conditions -- one each hour from 9am-9pm PST! If you want to see a genetic condition you care about spotlighted on our Twitter feed and Instagram story, let us know below.π
@MNK @Ameriburn Can you continue to support our life saving drug for NPC patients? Quality of life matters. Itβs a matter of life & death. #curenpc #saveourmedicine #dontgiveuponnpc #npcwarriors #RareDisease
https://t.co/PlbrjMW2uw This is a glimpse of a few face of NPC. Please if you can help our families. For Alec, Hayley & all fighting his horrific disease. #dontgiveuponNPC #dontgiveuponUS #CureNPC π
@MichelleObama @BarackObama Thank you for being part of @CripCampFilm loved it. My daughter was lucky enough to go to Camp Blackhawk for a few years. She had many wonderful memories. #dontgiveuponNPC #CureNPC #raredisease #dontgiveuponUS
@MNK New consent form to sign for todays treatment. You bet he signed it, why.. because the treatment/drug works β€οΈ #dontgiveuponme #cureNPC #showyourstripes #dontgiveuponus #npcwarrior #hopeforhayley #keepitcoming Tandem walk backwards with eyes closed β€οΈ
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