#DIEDWAITINGALS - Twitter Hashtag

over 5 years ago

@alsassociation why aren’t you helping those of us with ALS to LIVE? We are begging you to join our fight for our lives. Please work for us. Fight for ACT for ALS, NurOwn, and a VOICE! You have the power. We are begging you! #DiedWaitingALS #axeALS @JoeBiden @FLOTUS

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Mad de Carvalho @carvalho_mad

over 5 years ago

@Cylebo Pat Quinn is a hero and ALS champion. RIP. Everyone suffering from horrific ALS deserves NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS

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Eli Oliveira @EliOliv63796578

over 5 years ago

@Cylebo Pat Quinn is a hero and ALS champion. RIP. Everyone suffering from horrific ALS deserves NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS

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@ALSEUROPE @ALSEUROPE1

over 5 years ago

@Cylebo Pat Quinn is a hero and ALS champion. RIP. Everyone suffering from horrific ALS deserves NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS

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Hope ALS Portugal - ELA ESPERANÇA PORTUGAL @AlsPortugal

over 5 years ago

@Cylebo Pat Quinn is a hero and ALS champion. RIP. Everyone suffering from horrific ALS deserves NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS

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M.G. @MG34760670

over 5 years ago

@Cylebo Pat Quinn is a hero and #ALS champion. RIP. Everyone suffering from horrific ALS deserves #NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS @LuchaEla

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Juliet @Julia70256353

over 5 years ago

@Cylebo Pat Quinn is a hero and ALS champion. RIP. Everyone suffering from horrific ALS deserves NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS.

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Viola Serena @Violaquadri1

over 5 years ago

@Cylebo @LuchaEla Pat Quinn is a hero and ALS champion. RIP. Everyone suffering from horrific ALS deserves NurOwn. @SteveFDA needs to move quickly to approve. @SecAzar @FDACBER @HHS_ASH The wait has gone on long enough. #approve #diedwaitingALS #DyingwaitingALS

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Nicole McCabe @NicoleALSJurney

over 5 years ago

My Gma #diedwaitingALS for treatment options We have no blood relation because my dad was adopted Sadly 5yrs later at the age of 34 I am also #dyingwaitingALS when is it enough #NurOwn & other options R stuck n trials #EndALS @HHS_ASH @realDonaldTrump @SteveFDA @VP @US_FDA @NIH

NicoleALSJurney's tweet photo. My Gma #diedwaitingALS for treatment options We have no blood relation because my dad was adopted Sadly 5yrs later at the age of 34 I am also #dyingwaitingALS when is it enough #NurOwn & other options R stuck n trials #EndALS @HHS_ASH @realDonaldTrump @SteveFDA @VP @US_FDA @NIH https://t.co/CJfLi2wbBw

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No More Excuses ALS Watchdogs!

@als_now

over 5 years ago

#DIEDWAITINGALS IN MEMORY: Joseph Gregory, Lisa Wittenburg, Tony Barrett, Mike Thomsen, Pam Crowson, Mark Harrison, Eric Swartz, Robert Quinn, ALL WAITING ON #NUROWN @US_FDA @FDACBER #ALS #ENDALS @realDonaldTrump @VP @WhiteHouse @SecAzar @SteveFDA @NIHDirector #HR8662 @nomoreals

als_now's tweet photo. #DIEDWAITINGALS IN MEMORY: Joseph Gregory, Lisa Wittenburg, Tony Barrett, Mike Thomsen, Pam Crowson, Mark Harrison, Eric Swartz, Robert Quinn, ALL WAITING ON #NUROWN @US_FDA @FDACBER #ALS #ENDALS @realDonaldTrump @VP @WhiteHouse @SecAzar @SteveFDA @NIHDirector #HR8662 @nomoreals https://t.co/cqpem7zA8b

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@ALSEUROPE @ALSEUROPE1

over 5 years ago

@LuchaEla @US_FDA @EMA_News @BrainstormCell @SteveFDA @SKyriakidesEU @EU_Commission @vonderleyen @Cylebo @ralph_kern @MaryKayTurner1 @alsassociation @EUpALS #diedwaitingals #nurown now!

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Author Kris Francoeur (aka Anna Belle Rose)

@KFAnnaBelleRose

over 5 years ago

How many will die waiting? #diedwaitingALS #dyingwaitingALS @FDA @FDACBER @steveFDA @HHS_ash @realdonaldtrump @VP @STATNEWS @CNNHEALTH @FOXNEWS @CNN @NIH @secazar

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Kim French @kimfrench0405

over 5 years ago

@SteveFDA @SecAzar @FDACommissioner @FDACBER @US_FDA @HHSGov @realDonaldTrump @VP @SenDuckworth @SenatorDurbin @CNN @FoxNews @NBCNews @ABC @DrWoodcockFDA @als_now #diedwaitingALS #NurOwn #ENDALS

Rich @Richard52950257

over 5 years ago · Falkirk

@US_FDA @SteveFDA Elsie begged you FDA !...you said you could do Nothing !. Covid comes and you change and make new rules daily. ALS is a beast !. Your archaic thought process is murdering innocent people. Approve Nurown today ! ELSIES LAW !!

Richard52950257's tweet photo. @US_FDA @SteveFDA

Elsie begged you FDA !...you said you could do Nothing !. Covid comes and you change and make new rules daily. ALS is a beast !. Your archaic thought process is murdering innocent people. Approve Nurown today ! ELSIES LAW !! https://t.co/pldLokTEb5

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@ALSEUROPE @ALSEUROPE1

over 5 years ago

#diedwaitingALS #Nurown NOW PLEASE!

Julia Cantero @JuliaCantero9

over 5 years ago

More and more Als diagnoses,more and more young and more and more death every day.Als 100%fatal #nurown must be approved below already.Slow bureaucracy does not kill, murderer!because they are preventable deaths @BrainstormCell @EMA_News @US_FDA @JoeBiden @SteveFDA @Europarl_ES