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Our panel of ambassadors are sharing personal experiences of when fear, courage, and vulnerability intersect at Bravery.
#dsfconference #dravet #dravetsyndrome

Today, we honored our loved ones during our 3rd annual butterfly release at our Wings of Hope event. π¦β¨ Each butterfly represents a story of resiliency, love, and our collective hope for a cure.
#DSFConference #DravetSyndromeAwarenessMonth #CureDravet #DravetCommunity
Save the Date: Our 2024 DSF Biennial Family & Professional Conference will be held next year in Minneapolis, Minnesota, on June 20-22!
Learn more about next year's conference here: https://t.co/2CyaePe06q
#Dravet #DravetSyndrome #DSFConference #CureDravet #Epilepsy
Weren't able to make it to this year's conference?
You can still catch all of the great presentations, along with the valuable information and resources shared, by watching our conference recordings here: https://t.co/6x8ktY8xTU
#Dravet #DravetSyndrome #DSFInDFW #DSFConference

One of our favorite things about the DSF Conference was watching our attendees enjoy the Dravet Activity Room, sponsored by Ciara's Light Foundation! Here we were able to play games, make music and meet new friends! π
#Dravet #CureDravet #DSFConference

Thank you @curedravet for hosting us at this year's #DSFConference! Our CMO, Ann Barbier, presented on our programmable therapeutics and #RegRNA Actuator to upregulate expression of the SCN1A gene. More than 80% of #DravetSyndrome patients have a mutation in this gene.

Big thank you to @curedravet for letting @cureSYNGAP1 crash #DSFConference in Ft. Worth, headed up by @TheNotoriousEEG! Great spending time w/ #SYNGAP1 families, & learning from the best! Connecting w/ @JazzPharma, @StokeTx, @UCBUSA/@zogenix, etc.! & mini SYNGAP1 meeting! ππ§¬

Thank you to @BiocodexBenelux, Stoke, Takeda, @camp4tx, @NeurelisInc, @Epygenix77, Longboard, @UCBUSA, Encoded Therapeutics, and Consumer Cooperative Association for supporting this week's conference.
Without your support, we could not continue our mission.
#DSFConference

We would like to extend a heartfelt thank you to Cook Children's Medical Center and @TheNotoriousEEG. Without their assistance and collaboration, we couldn't continue our mission or put on this week's conference.
Please join us in thanking them! π π¦
#DSFConference

@NumCogβs son using @MathforLove #tinypolkadots to link symbolic and non symbolic number representations. #dsfconference

Low working memory predictive of children who will have difficulties in learning #dsfconference
Hot topic @ #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
RT@Doculabs Hot topic @ #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDy
Hot topic @ #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
Hot topic @ #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
Hot topic @ #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
Hot topic @ #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
Hot topic at #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
Hot topic at #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
Hot topic at #DSF16: #bigdata. @joeshepley gives an overview of what to expect in this #DSFconference session. https://t.co/0RDyVR7X5J
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