Top Tweets for #DSFInDFW
Weren't able to make it to this year's conference?
You can still catch all of the great presentations, along with the valuable information and resources shared, by watching our conference recordings here: https://t.co/6x8ktY8xTU
#Dravet #DravetSyndrome #DSFInDFW #DSFConference
We're already thinking back to what a wonderful time we had at the DSF Conference! 💜
Didn't get to make it? Our recorded sessions are now available for you to view on our website so you can catch up on everything you missed!
https://t.co/kgj3rPJVC5
#DSFInDFW #CureDravet
An amazing finale to the conference from these beautiful kids 💜💜 #DSFinDFW
Sonny Burgess is the Director of Clinical Programming at @CookChildrens and a legend in the Texas country music scene- he was gracious enough to lead our Dravet conference kids in song on the last night of the conference!
#DSFinDFW @curedravet
Such an incredible conference. Inspired by some amazing families and faculty. Thank you @curedravet @TheNotoriousEEG. Will be using these ideas for our transition clinic @CUAnschutz @ChildrensColo #DSFinDFW
Getting ready to start day 3, the final day of #Dravet Syndrome Family and Prof conference! I want to thank all the amazing faculty for attending and sharing their expertise with us💜and look forward to continuing the work to cure Dravet! #DSFinDFW @curedravet
Sonny Burgess is the Director of Clinical Programming at @CookChildrens and a legend in the Texas country music scene- he was gracious enough to lead our Dravet conference kids in song on the last night of the conference!
#DSFinDFW @curedravet
I’m so grateful to be carrying home a Build-a-Bear dino (yet to be named) to my daughter, courtesy of @Cookchildrens Hospital! They have been an amazing host and sponsor for this years Dravet conference @curedravet #DSFinDFW #dravetsyndrome
Time to speak up and speak out | not my typical #DSFinDFW post, but not a typical day in America either
Two fantastic pieces of art 🖼 made over the last couple days by parents, siblings, caregivers, researchers, doctors and other partners in the fight against #Dravet! #DSFinDFW @curedravet
We’re back at #DSFinDFW with @curedravet - day 3. Starting strong with legend @BarabanLab talking zebra fish. (cc @DallmanLab & @BCH_PoduriLab) sharing their work to #cureDravet. It’s an inspiring story.
What a beautiful morning here in Ft. Worth 💜 a butterfly release honoring the many individuals touched by Dravet Syndrome @curedravet @CookChildrens #DSFinDFW #dravetsyndrome
Getting ready to start day 3, the final day of #Dravet Syndrome Family and Prof conference! I want to thank all the amazing faculty for attending and sharing their expertise with us💜and look forward to continuing the work to cure Dravet! #DSFinDFW @curedravet
Ending day 2 of #DravetSyndromeConference with @DrDaniAndrade ‘s key talk on Dravet Syndrome in Adulthood because children with DS #transition to adult care
#Genetics #DSFinDFW #DravetSyndromeConference #DSF2022
So honoured to share the stage with Dr. Linda Laux and talk about our research in #SUDEP in #Dravet syndrome. Thank you to the Dravet Syndrome Foundation for this amazing opportunity and Dr. Scott Perry for welcoming us to Fort Worth! @curedravet @TheNotoriousEEG #DSFinDFW
This talk was punctuated by @melissabaltuano presenting her data assessing risk factors for #SUDEP in #Dravet. Even better, she is a Peds epileptologist with interest in Dravet who will start practicing in Oklahama City in the coming month!! Glad to have her in our region!
Somehow we convinced @a_brunklaus to give TWO talks at our conference today- he is just doing so much important work for the #dravet community - we are so grateful! @curedravet #DSFinDFW
Next to last talk for today at #Dravet Family and Prof Conf - all the way from Glasgow to Ft Worth! Dr Andreas Brunklaus @a_brunklaus covering Natural History Studies in #Dravet and their importance to understanding the condition. #DSFinDFW
What a way to end today’s education at #Dravet Family and Prof conference.! Dr Danielle Andrade @DrDaniAndrade from Univ of Toronto presenting on #Dravet in adulthood - a topic we need to learn so much more about! #DSFinDFW
Next to last talk for today at #Dravet Family and Prof Conf - all the way from Glasgow to Ft Worth! Dr Andreas Brunklaus @a_brunklaus covering Natural History Studies in #Dravet and their importance to understanding the condition. #DSFinDFW
Dr Ronald Kanter of @Nicklaus4Kids speaking on cardiac 💜 issues in #Dravet. Highlighting results of a small population of children with Dravet using loop recorders- none had significant cardiac rhythm disturbances over multiple years of monitoring. #DSFinDFW
Thanks to Dr Zelime Elibol of the @CookChildrens Child Study Center for discussing #behavioral problems in #Dravet at the Dravet Family and Prof conference! #DSFinDFW
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