Veronica Hood

Scientific Director at the Dravet Syndrome Foundation; PhD from CU-AMC. Views and opinions are my own. Science & advocacy with a splash of puppies and TheOffice

[Gaia Colasante @ColasanteGaia]

📢If you want to challenge yourself with an exciting gene therapy project for DEEs and join a fantastic, passionate and motivated team, do not hesitate to apply for this position.

[Veronica Hood @Science_Hood]

@TheNotoriousEEG My gosh- save us please! The Notorious Dark Horse!

[Dravet Syndrome Foundation @curedravet]

2024 DSF Research Grant applications are now open!

We offer five grant categories! To find out more details about each grant category and apply today, visit https://t.co/yBW7Kylc37!

[Dravet Syndrome Foundation @curedravet]

Today, we honored our loved ones during our 3rd annual butterfly release at our Wings of Hope event. 🦋✨ Each butterfly represents a story of resiliency, love, and our collective hope for a cure.
#DSFConference #DravetSyndromeAwarenessMonth #CureDravet #DravetCommunity

[Dravet Syndrome Foundation @curedravet]

Welcome to the 2024 DSF Family & Professional Conference! 🌟 Now that our setup is complete, we’re ready to embark on a journey of learning, sharing, and connecting with all of you.

[The Notorious EEG (M. Scott Perry MD) @TheNotoriousEEG]

The @CookChildrens art robot 🤖 #Spikelangelo is back at work today on another portrait for #DravetSyndrome Awareness month! Stay tuned to see the final product later today! @curedravet

[Veronica Hood @Science_Hood]

Loved getting to meet and hear more about the research Dr. Alhajj and her colleagues at @UHhospitals have done looking at limb swelling in #Dravet.

[NeurologyLive® @neurology_live]

We just spoke with a trio of experts this morning on limb swelling in #Dravet syndrome at #AANAM! Featured below are Mandy Alhajj, DO, James Dolbow, DO, & Neel Fotedar, MD, from @UHhospitals. @AANmember @curedravet

[Veronica Hood @Science_Hood]

I'm looking forward to hearing more from Dr. Papedlis about his work on biomarkers for #Dravet at the upcoming DSF Conference! Are you joining us? See the agenda and register: https://t.co/Mdboxe5PMf

[NeurologyLive® @neurology_live]

Christos Papadelis, PhD, director of research at @CookChildrens, talked about ongoing research on biomarkers to enhance treatment and improve cognitive outcomes. #NeurodegenerativeDisorders #BiomarkerEnhancement

Watch here: https://t.co/xcZfBJNjht

[UCB US @UCBUSA]

At UCB, we understand the power of listening to and learning from patient communities to help us deliver better outcomes. This #PurpleDay2024, learn from rare #epilepsy leaders Karen and Veronica in our most recent episode of Raring to Listen.

Click to listen⬇#EpilepsyAwareness

[Veronica Hood @Science_Hood]

It was my pleasure to be a guest on UCB's Raring to Listen Podcast discussing quality of life for families and patients living with a rare epilepsy

[UCB US @UCBUSA]

As Scientific Director for @curedravet, Dr. Veronica Hood understands the power of patient communities coming together and advocating to solve unmet needs. Hear more from Dr. Hood in the latest episode of UCB’s Raring to Listen. 📻

[St. Jude Research @StJudeResearch]

Catastrophic neurological disorders in children are often caused by a single gene mutation. Most have no effective treatments, making it a huge unmet need. @hcmefford, MD, focuses on neurological diseases like epilepsy & works with PTNI to alter the landscape of these disorders.

[Dennis Lal @LalDennis]

This position is still open for US board certified epileptologists who want to care for people (adult+peds) with genetic forms of epilepsy. Strong clinical genetic support and research environment provided.

[International League Against Epilepsy @IlaeWeb]

Time is ticking... The #ILAE e-Forum: Optimal models of care during transition from childhood to adulthood is in 2 DAYS on 16 February at 14:30 UTC. Register now for free and gain access to the pre-reading materials: https://t.co/V9K4r9EKtf.
#epilepsy #epilepsyeducation @yesILAE

[Veronica Hood @Science_Hood]

An important announcement this morning for the #Dravet community as Encoded Therapeutics shares regulatory clearances enabling them to move forward with trials for their #genetherapy candidate in the US and Australia

https://t.co/xpbdnZRJg4

[SUDEP Action @SudepAction]

"A comprehensive & innovative approach to reduce sudden death in patients with epilepsy.”

Our SUDEP & Seizure Safety Checklist is a simple tool that enables health professionals to have that conversation with patients about risk safety.

Find out more: https://t.co/s7iua0XJ3v

[International League Against Epilepsy @IlaeWeb]

Key point: "Discovery of SCN1A variants as genetic biomarkers for Dravet syndrome has aided diagnosis & may partly explain the higher number of articles identified for Dravet syndrome than Lennox–Gastaut syndrome."
Find this & more from @EpilepsiaJourn at https://t.co/KvicAPlGGO.

[Dravet Syndrome Foundation @curedravet]

A heartfelt 💟Thank You💟 from #TeamDSF to each and every member of our incredible community. Your unwavering support, generous donations, and inspiring stories fuel our mission every day. 💜🦋 #dravet #dravetsyndrome

[Veronica Hood @Science_Hood]

Great insights as always on #AES2023 from @CNSdrughunter! Lots of promise for #Dravet and other DEEs, but still some challenges to overcome

[Ana Mingorance @CNSdrughunter]

Here are my main insights from #AES2023
-Epilepsy as a collection of rare diseases
-Gene therapies also for non-genetic epilepsy
-All syndromes need better treatments, even #Dravet
-The 3 mountains to climb for dis-mod therapies
-Impressive patient groups

https://t.co/3mG1FI4ld5

[Stoke Therapeutics @StokeTx]

@curedravet kicked off the weekend at #AES2023 by bringing together researchers, physicians, advocates, & industry for their annual Research Roundtable, which focused on research projects the DSF has funded to address challenges associated with Dravet syndrome and other DEEs.

[BarabanLab @BarabanLab]

We greatly appreciate the funding support provided by @curedravet to work w/ @LoriLIsom1 on a new #MGE transplantation project in rabbits

https://t.co/hgejywF0X1