Top Tweets for #DataForPIDS
This year #WPIW aimed to shine a light on the value of data in improving #PID care.
🖊️Don't forget to share your story in #DataforPIDs campaign and let us know "Why you think data saves lives?" 👇https://t.co/AHoCZqSSTL
Our first outcome data in #PID transplants with an overall survival of 95% and immunodeficiency free survival of 86%! Achieving comparable results to the developed countries @p_hiwarkar @WorldPIWeek @Info4PI @ipopi_info #DataforPIDs #WorldPIWeek
https://t.co/bhIv3wSYEV
On average, it takes 9-15 years from when symptoms start to be accurately diagnosed with a #primaryimmunodeficiency. Imagine if #machinelearning could help patients get a diagnosis sooner. Researchers are exploring just that: https://t.co/wotFYAsS1o #DataforPIDs
Join the #DataforPIDs online campaign! https://t.co/AHoCZqSSTL
1. Submit your quote
2. Receive the email update that it's published
3. Download the template to enter your quote
4. Share & Tag @WorldPIWeek
For Tonya (United States🇺🇸) increased data means increased accuracy of treatments. #DataforPIDs
Why do you think data is important in improving PID care?🔗 Follow the link & share your quote now! 👇https://t.co/AHoCZqSSTL
Reminder: participate in our online campaign #DataforPIDs! Share your views on why data matters to improve #PID care! https://t.co/AHoCZqSSTL
Today is the first day of Primary Immune Deficiency Week! Primary immunodeficiencies are rare diseases which occur when a person’s immune system is absent or does not function properly. Learn more, and help spread awareness here: https://t.co/2JY81OCjNd
#DataForPIDS #WorldPIWeek
Evangelia is right❗️Data helps reduce the knowledge gap among primary care physicians & specialists and helps reduce disparities in #PID awareness across the globe!
Follow the link to join #DataforPIDs campaign!🔗 https://t.co/AHoCZqSSTL #WorldPIWeek
We continue receiving your views through our #DataforPIDs online campaign!
For Christiana, data is very important for a better quality of life!
❓ Why do you think data is important in improving #PID care? Share with us now 👇 🔗https://t.co/AHoCZqSSTL
🔍Data allows enhance care and deliver improved or new treatments, leading to better patients' health outcomes and enhanced quality of life!
Join our campaign #DataforPIDs & share your views as to why data helps improve #primaryimmunodeficiency care!
👉https://t.co/AHoCZqSSTL
🇬🇧Helen from the United Kingdom is among the first to share views on "Why data is important in improving #PID care?
🔗Join our #DataforPIDs campaign and support #WorldPIWeek! 🌍👉https://t.co/AHoCZqSSTL
📢Today at 15h00 CET, our online campaign #DataforPIDs goes live to ask:
"Why is data important in improving PID care?"
1. Submit your quote
2. Receive the email update that it's published
3. Download the template to enter your quote
4. Share & Tag @WorldPIWeek !
#WorldPIWeek 2023 celebrates the success of real-world data in creating better care for people with #PID.
A new online campaign #DataforPIDs will go live on 22 March! We will invite you to share your views on "Why data improves care for PIDs?" Stay tuned https://t.co/DQXlKhXcyg
📢Save the Date for #DataforPIDs Campaign!
On 22 March, we will launch an online campaign to shed a light on the value of “data” on PID care & invite our global community to share their thoughts! 👇🔗https://t.co/KRoSVrfyyP
Stay tuned for more, for this year’s #WorldPIWeek focusing on 4 key issues under the topic of data:
•Diagnosis
•Treatment & Care
•Research & Innovation
•Medical Education
📢Coming soon, Factsheet on health data & #DataforPIDs online campaign! https://t.co/zU3Md3QtAD
Two months until #WorldPIWeek! We will continue to spread global awareness of #PID data and your thoughts with a new campaign “#DataforPIDs” launching in March to improve care for patients! Stay tuned! Sign up for updates here: https://t.co/k2hEIgPZOH
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