Top Tweets for #ESSDAI
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#Rheumatology #Sjogrens #AutoimmuneDisease #ClinicalTrials #MedicalEducation #ESSDAI #ESSPRI #EULAR #RheumTwitter #Rheumatology #Immunology
#Sullysrounds #MedX #Medtwitter #Mnemonics #Medicine #History
@DrAkhilX @IhabFathiSulima @Janetbirdope @Lupusreference @RheumNow #MedTwitter #RheumTwitter @CelestinoGutirr
+RCT in #pSjD #Sjogrens #Disease
#Leflunomide + #hydroxychloroquine
Vs #PBO
2nd study to show this - same group
need to know
▶️what pt to use this in
▶️is there diff organ improvements
⬆️#ESSDAI
⬇️RF ⬇️Ig’s
Easy to prescribe
?early, mild dx
#EULAR2025 @RheumNow @eular_org
More and more, I see that despite its prevalence, #Sjogrens is left off of medical lists.
I'd add that common, and certainly devastating, neuro symptoms from this horrible disease are left off of #ESSDAI questionnaires.
C'mon, folks - STEP. IT. UP.
#NeuroSjogrens
Sjogren’s is an autoimmune rheumatic disease with a similar prevalence to RA. It is left off of almost every list despite its heavy burden of systemic disease, increased mortality, and quality of life worse on average than RA or lupus.
La #neuropatia de fibres petites no s'inclou dins #ESSDAI #Sjögren Així doncs, l'abordatge dels #pacients amb aquesta #malaltia no és correcte ja que existeix un buit/gap significatiu en l'atenció i la inclusió en la investigació 👇 @RetamozoSole @consellpacients @reuma_santpau
Omitting small fiber neuropathy from the Sjogren's ESSDAI unfairly excludes patients with Sjogren's and neuropathy from vital trials, denying them access to new, effective treatments. This oversight leaves them without potential benefits when these medications become available, highlighting a significant gap in care and research inclusion.
#Raynaud és una de les manifestacions sostèmiques en el #Sjögren però no està contabilitzat xq no està inclòs a #ESSDAI Tenim molta feina a fer!!!👊😎👊 #autoimmune
Raynaud's is one of the many systemic manifestations of Sjogren's. It impacts up to 30% but "doesn't count" bc it is not included in the ESSDAI. I had pernio (chilblains) from this the past 2 winters, despite gloves, hand warmers, and living in a mild climate.
@DrChadJohr I'm sceptical of #ESSDAI. I have other diag but I suspect #Sjögren makes me more ill (incl fatigue, myalgia, neuralgia) than just severe #Sicca. But nodes & lungs OK so "Symptomatic Rx only". All docs have refused Rx to modify the disease & thus *prevent* lethal complications
#TDirigidas22 en #Sjögren - Dra. Álvarez
Múltiples moléculas ensayadas:
🟢 RTX (MEG, parotidomegalia) - BEL (Ro/La+, articular, parot.)
🟡 ABA - Ianalumab - Iscalimab (CD40)
🔴 TNFi - IL6 - JAKinibs
🔎Necesidad de nuevas medidas de desenlace más allá del #ESSDAI
@SEReumatologia
A 27-year-old woman with #Sjögren's syndrome (2016 #ACR-#EULAR 7 points, MSGB: FS=3,5 + germinal centers) with clinical and serological activity (#ESSDAI 12, #ESSPRI 4) presented for bilateral #parotidomegaly. We performed #ultrasound (#POCUS, #US) finding...🧵
The #Sjögren Big Data Consortium is an international, multicentre registry based on worldwide data-sharing cooperative merging of pre-existing databases from leading centres in clinical research in Sjögren’s syndrome from the five continents 🗺️ #phenotype #diagnosis #ESSDAI
https://t.co/i9NRzHdHh5
Tuve la ocasión de reclutar 2 pacientes para el #ensayoclínico de #lanalumab en #Sjögren. No es fácil cumplir #endpoint de eficacia con un índice tan "blanco o negro" como el #ESSDAI. ¡¡Crucemos los dedos!!
Within the big #data sjögren project the authors depicted being male, severe oral symptoms, #cryoglobulinemia and high systemic features in the #ESSDAI phenotypic for #lymphoma in #Sjögren patients. #EULAR2019
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