#EdeLife - Twitter Hashtag

National Foundation for Ectodermal Dysplasias @NFED_ORG

almost 3 years ago

Learn about the positive progress of six boys treated with an experimental medicine for X-linked hypohidrotic ectodermal dysplasia before birth. Find out more at https://t.co/79x5rvimrQ. #xlhed #sweating #EDELIFE #XlinkedHypohidroticEctodermaldysplasia

NFED_ORG's tweet photo. Learn about the positive progress of six boys treated with an experimental medicine for X-linked hypohidrotic ectodermal dysplasia before birth. Find out more at https://t.co/79x5rvimrQ.
#xlhed #sweating #EDELIFE #XlinkedHypohidroticEctodermaldysplasia https://t.co/TMgKDzakV2

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National Foundation for Ectodermal Dysplasias @NFED_ORG

over 4 years ago

Learn how another NFED mom helped them decide to do it, how baby Bennett is doing, and how it’s impacted his “Papa” - https://t.co/Iz2H8aA6ik #ectodermaldysplasia #XLHED #research #EDELIFE #sweat

NFED_ORG's tweet photo. Learn how another NFED mom helped them decide to do it, how baby Bennett is doing, and how it’s impacted his “Papa” - https://t.co/Iz2H8aA6ik

#ectodermaldysplasia #XLHED #research #EDELIFE #sweat https://t.co/beAJC08gC7

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Edelman Spain @Edelman_Spain

over 7 years ago · London

Hoy, nuestro equipo de tecnología visita @EdelmanUK en una fantastica reunión del equipo de comunicación responsable de la cuenta de HP en EMEA #Edelife #besteamever