Top Tweets for #EquityInGenomics
We validated 22 #BreastCancer polygenic risk scores across ๐ช๐ช ๐ฑ๐ป ๐ณ๐ฑ ๐ง๐ช. The result?
Performance varies by populationโand so should your models. Precision needs representation.
#PRS #EU4Health #EquityInGenomics
A great course on #equityingenomics happening on campus in September - join peers to discuss and help action plans in Genomic Research, making sure this benefits all humans.
Join us to explore building equitable and trustworthy practices in genomic research, data collection and usage with @drraghibali @Ayub1985 @Sarah_Finer @KKuchenbaecker @rjmilne @sandrasoojinlee @ThinkSpeakMavi @SFatumo @Shenriques3 @MaleboMalope @alicepn ๐ #EquityInGenomics
Come join us for the upcoming Equity, #Diversity and Data! #EquityInGenomics workshop to discuss and action plan equitable and trustworthy practice in #GenomicResearch.
Apply by 25 July โก๏ธ https://t.co/GyoxtiEUPt
@ConnectingSci @eventsWCS
Welcome to the Canadian #genomics enterprise, Wesley! We look forward to working together with you towards #EquityInGenomics.
#IndigenousGenomics
๐ข Please join us in welcoming Genome Canada's new Director, Equity and Indigenous Engagement, Wesley Oakes!
#TeamGC #CanadasGenomicsFuture
๐ข Please join us in welcoming Genome Canada's new Director, Equity and Indigenous Engagement, Wesley Oakes!
#TeamGC #CanadasGenomicsFuture
In a recent publication #GeneMAP Director, Prof Ambroise Wonkam, presents the vision of a newly conceived project-The Three Million African Genomes (3MAG). 3MAG, like @H3Africa seeks to advance genetic medicine in Africa & globally. #EquityInGenomics
Read: https://t.co/BLdiF8HTy3
The next session @metadac is attending at the @FoGenomics is Gender, Genealogy and Justice: Who is genomics for? By Arianne Shahvisi #healthdata #healthequitt #equityingenomics #datagovernance
Thank you @GwenDarien @NPAF_tweets for inviting me to share my journey and talk about the importance of Personal and Cultural Barriers to Genomic Medicine. Barriers and Solutions to Accessing Genomic Medicine: Realizing the Benefits of Genomic Medicine for All #EquityInGenomics
Thank you @NPAF_tweets for convening this Consortium to highlight and strategize on barriers and solutions to #EquityInGenomics and thanks to all of the presenters and panelists!
Remember, says @RebeccaKirch: patients don't fail treatments, treatments fail patients. #equityingenomics
For some context to the barriers and difficulties facing patients: PAF case managers, on average, make 19 phone calls on behalf of their patients. For the personalized medicine care line patients, they make over 60 calls per patient. #equityingenomics
Can you imagine if we taught health care literacy in high school? If students were taught what a copay is, or how to appeal an insurance decision? #CaseManagerWisdom #equityingenomics
Education is essential - too many patients don't know what their benefits are or what their rights are, let alone how to appeal an insurance appeal. #WisdomFromCaseManagers #equityingenomics
Even patients don't know their entire clinical history - if you're interested in clinical trials, bring the ones that interest you to your doctor so that they can review and make recommendations! #equityingenomics
Marc Schwartz, PhD, from Georgetown Lombardi talks to patient advocate organizations from around the U.S. about the importance of genetic testing and reducing barriers to access. #EquityInGenomics @NPAF_Tweets
Time now to hear from Patient Advocate Foundation case managers! #EquityInGenomics Remember to catch the livestream at https://t.co/968xHXnPFR
What are barriers to genetic counseling and testing? Marc Schwartz from the Fisher Center โฆ@Georgetownโฉ explains there are plenty: #EquityInGenomics
Wish I were onsite for this great @NPAF_tweets event, but am following dialogue from afar and couldnโt agree more. Thereโs so much we need to do as a community to promote access to personalized healthcare for all. #EquityInGenomics @FoundationATCG
Simply wowed by @KellanEBaker and @colon_survivor articulating the complexities and fears of LGBTQ & minority communities about genetic testing; who has access to results and what do they do with it. Will it be used to erase these communities? #EquityInGenomics @NPAF_tweets
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