Top Tweets for #EuropeanReferenceNetwork
ERN GENTURIS - A Tribute to Those Diagnosed with a Brain Tumour and to Their Families
https://t.co/1P3rrLWaXQ
#OncoDaily #Oncology #Cancer #Health #Medicine #MedTwitter #MedEd #MedOnc #MedNews #ERN #EuropeanReferenceNetwork #BrainTumour @CancerWorldmag
๐ก Did you know there is a specific #EuropeanReferenceNetwork for rare ๐ป๐ฒ๐๐ฟ๐ผ๐บ๐๐๐ฐ๐๐น๐ฎ๐ฟ ๐ฑ๐ถ๐๐ผ๐ฟ๐ฑ๐ฒ๐ฟ๐?
@euro_nmd is a network of healthcare centres that works to boost research and improve the standards of care for these pathologies ๐ https://t.co/SqZjx5oJUg
Opening of the #EndoGA2024 of @RareEndoERN, the largest #EuropeanReferenceNetwork, by @AlbertoMPereir1 and Olaf Hiort in Milano, Italy : two days of conferences, updates and meetings - glad to represent France !
๐กHow do we improve the rare adult solid cancer care within the European Union?
โ We are patient centred all over the EU
โ We ease the link between patients and expert centres
#rarecancer #raresolidcancer #rareadultsolidcancer
#ERN #Europeanreferencenetwork #EuropeanUnion
๐ Join us this #InternationalNetworkingWeek as we celebrate the #EuropeanReferenceNetworks! ๐Read about them here: https://t.co/81JSZWp6lj
#NetworkingForChange #ConnectAndEmpower #EuropeanReferenceNetwork #RareDisease #UroSoMe #SoMe4PedSurg #PedUro #FPMRS #UroOnc
๐ It's #SaferInternetDay! Did you know the #EuropeanReferenceNetwork's secure Clinical Patient Management System is revolutionising patient care in the EU? ๐ Read more here: https://t.co/ATUQjf5Sm0
#RareDisease #UroSoMe #SoMe4PedSurg #PedUro #FPMRS #UroOnc
New #ERNsOnAir!
In this episode, @BarbaraBrunmair of @SIOPEurope discusses techniques her #EuropeanReferenceNetwork has employed to fast-track patients to vital, virtual, specialist advice.
Listen now! ๐ง https://t.co/PQohdVb5Uq
@DonnellyStephen @LeoVaradkar @MichealMartinTD @mmcgrathtd @Paschald
It's #Budget2024 Day!
Time to #ThinkRare. 300,000 people living with #RareDiseases. 31% have no access to expert care. Support #EuropeanReferenceNetwork integration into HSE.
@roinnslainte @BernardGloster
Alongside representatives from the 24 European Reference Networks, we have written to the EU leaders to insist on the renewal of key support for the Networks and the vital work that they do. โ๐ช๐บ
โ๏ธ Read more: https://t.co/yn2jsZJw96
@annnlynch @RareDiseasesIE @padraigosull @ERNIthaca As soon as I heard your #europeanreferencenetwork was @ERNIthaca I had to find you this from actual Ithaca!
You can watch 'ESE Talks... Rare Diseases: MEN-1' joint webinar from @ESEndocrinology, @RareEndoERN and @EuroSPE on the ESE YouTube Channel! https://t.co/qjFBYkgbg8
#Endorcrinology #BecauseHormonesMatter #EuropeanReferenceNetwork #OurEndocrineCommunity #EndocrineNeoplasia
We used the opportunity of the #RomeWorkshop22 to have a face-to-face Executive Committee meeting !
Always nice to get together and discuss important issues in person.
#RareEpilepsy #ERNs #EuropeanReferenceNetwork
๐ข#WeAreHiring โผ๏ธ
ERN EURO-NMD is looking for a :
๐ Project Manager (M/F)๐
๐ซCome and work with a great team in the heart of an amazing European capital city !
APPLY NOW ! ๐ฒ๐https://t.co/9xN0Or9V8u
Prof. Milan Macek @FnMotol introduced the #EuropeanReferenceNetwork. It is necessary to support further development of #EuropeanReferenceNetwork to bring the value for both patients and healthcare professionals #HealthOfEurope
๐ข ERN-EuroBloodNet Co-coordinator Bรฉatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN!
โก๏ธThe achievements & challenges of the #ERNeu actions are being discussed.
#RareDiseases
๐ขLive from Brussels
The 17th meeting of the #EuropeanReferenceNetwork coordinators with the European Commission is underway!
VASCERN Coordinator @JondeauG is present. The accomplishments & #challenges of the #ERNeu, #registry + more are being discussed.
#RareDiseases
๐ฃ#EuropeanReferenceNetwork healthcare professionals
Would you like to take your collaboration to the next level with visits, trainings, knowledge sharing?
Apply to the #ERN exchange programme!
Hear from past participants to learn more
๐https://t.co/xIgrRiGhxz
A new paper recently published on registries "An overlook on the current registries rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET".
@ern_reconnet is a great #EuropeanReferenceNetwork
We are the #EuropeanReferenceNetwork for rare and complex epilepsies.
But what constitute a rare and/or complex #epilepsy ? See Prof. Arzimanoglouโ slide below ๐๐ป
Still time to meet us room C at the #EEC2022 for more info!
@IlaeWeb
The Endo-ERN newsletter is out now! Read more about the joint webinar from ESE, Endo-ERN and ESPE, upcoming webinar, CPMS Newsletter, ESPE 2022, Call 4 new ePAG Advocates and much more! https://t.co/QGfEarmy1B
#EuropeanReferenceNetwork #RareDisease
Time for an update on our #EuropeanReferenceNetwork by our coordinator, Alexis Arzimanoglou.
ยซย our main mission is to share expertise and advices on state of the art practices aiming at improving accessibility of diagnostics and treatments for #rareepilepsiesย ยป
#EEC2022
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