Top Tweets for #FHChildScreening
Kristýna Čillíková from ČAKO shared how patient organizations improve care at #ISA2024 in Oman.
ČAKO has been pushing for a Czech cardiovascular plan since 2023, with its launch set for December.
#AmbassadorsInAction #PragueDeclaration #FHchildscreening
Big news from France on #FHchildscreening! Senator Philippe Mouiller & Anhet.f gathered experts & 14 societies urging 🇫🇷 parliament to commit to paediatric #cholesterol screening. Next step: preparation of a bill on paediatric cholesterol screening.
#PreventThePreventable #FindFH
Today at the French Senate, Senator @Philippe Moullier Chairman of the Committee on Social Affairs, and the French FH patient org. @f_anhet advocating for FH paediatric screening and a launch of a pilot study in #France.
#FHChildscreening #PreventThePreventable @PERFECTO_FH
It all started in 2020 with the #FH paediatric screening Best Practice recognised by the @EU_Commission. It led to a high level technical meeting under the Slovenian Presidency. From then on some countries implemented #FHChildScreening & prevent CVD! Hvala Mojca Govec @TBattelino
Inspiring and rewarding to hear @MHornaCieslak pick up the importance of #PragueDeclaration in the context of children’s rights.
Just like when presenting in Prague and presented by @bleddyn_rees who talked about the #FHchildscreening in the context of human right to health!
An absolute delight to see the grassroots work carried out in #Poland promoting #FHchildscreening at schools. What seemed impossible shocked everyone. Little citizens together with parents and school leaders were very supportive and collaborative.
#FindFH @A_GorgonKomor
@EcoSerce on fire today at the Polish Senate in Warsaw, advocating for #FHchildscreening, representing a very strong & clear voice of patients & citizens in Poland!
Thank you for paving the way Senator @A_GorgonKomor
#FindFH #PreventCVD #CVD #cardiovascularhealth #CVH #PERFECTO
At the invite of Senator @A_GorgonKomor we’ll present #FH paediatrics screening & policy achievements #PragueDeclaration supporting #CVD prevention, #CVH promotion to #PreventThePrevebtable & to save lives in #Poland!
#FHchildscreening #FindFH #FHEurope #Perfecto #EU4Health
📣A landmark publication in @TheLancet demonstrates the importance of early universal #cholesterol screening, #FH paediatric screening, to prevent heart attacks & #ASCVD in #children, their relatives & the wider population
https://t.co/eY1bVs6hgc
#CVD #FHchildscreening #FindFH
#Croatia launches its 1st national patient organization for people with dyslipidaemias. It’ll bring together under people affected with dyslipidemias like #FH, #HoFH, elevated Lp(a) #lipoproteina & #FCS.
#DYK Croatia haslaunched its #FHchildscreening program earlier this year.
It’s NO longer a question whether to #screen or not to screen #children for familial hypercholesterolemia #FH.
Any country not screening for #cholesterol & missing to detect the genetically driven high #LDL-c early in childhood - looses. That’s a fact!
#FHchildscreening
@monash Throughout her extensive research Zanfina demonstrated the cost effectiveness and even return on investment #ROI in case of #FHchildscreening and treatment. An important set of evidence which is fundamental in our advocacy efforts for implementation of early #screening.
Live from #FHWeek webinars series organised joint with the @society_eas! 3 incredible speakers and ambassadors- advocating for #FHchildscreening to prevent #CVD and to promote #CVH!
#PragueDeclaration was presented earlier today at #UNGA78 in New York at @ECHAlliance event!
We are so proud to be in New York, at the @ScienceUnga connecting with @bleddyn_rees and @ECHAlliance who have been supporting our efforts with the #FHchildscreening and the #CVD prevention in the context of detection!
We continue to advocate for early #screening for #FH and detection of FH and it’s rare and severe form #HoFH!
Educating about the #PragueDeclaration #FHchildscreening with our scientific advisors and supporters!
A true honour and a privilege to meet today with Prof. Hristo Hinkov, Minister of Health in Bulgaria, on behalf of @fhpatienteurope.
Together with @BulgarianForum we’ve discussed #FHChildscreening & #PragueDeclaration, a blueprint for #CVDprevention & #CVH promotion.
#FindFH
We’re delighted to attend the Annual Congress of the Bulgarian Patient Forum Federation 2023 in #Sandanski.
Patients from all over the country, representatives of small patient organizations and healthcare professionals will join the event.
We’ll be talking #FHchildscreening.
J. Ryan from @EU_Commission talks about the EU health strategy and tools to address the issues. Great to hear him refer to the Public Health Best Practices Portal, #EU4Health and the #Right2beforgotten
#FHChildscreening is an EU best practice!
We are thrilled to see the #PragueDeclaration taking the center stage in the #EASCongress2023 FH paediatric symposium as an outcome of the patients’ community driven #publichealth #advocacy and multidisciplinary collaboration to make #FHchildscreening a reality.
#FindFH #KnowFH
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