Top Tweets for #FIGHTEB
๐จ Latest research. So proud of it.
Unlocking the potential: m6A-RNA methylation in severe epidermolysis bullosa simplex https://t.co/zUzZfXbzxO
#EB #EpidermolysisBulloa #fightEB @CharityDEBRA @UoB_Dentistry @unibirm_CMH
Dean Clifford was born with epidermolysis bullosa, a rare genetic skin condition that makes the skin extremely fragile. Despite this, heโs become a dedicated weightlifter and successful motivational speaker.
Iโll be interviewing him soon to learn more about his journey. #FightEB
Fabulous day at the #ButterflyRun and #FamilyDay. A few photos today, more to say tomorrow!
Thank you to all who participated and to the scientists who gave up their time to come and talk to us
#Cure #EB #FightEB #HealEB #research #GOSH @GSTT @GOSH @QueenMarys @Kings
#TomHolland Sam and Harry playing to win at the #BMWPGA #Rolexseries golf tournament wearing the @CureEB logo! ๐ฆ
Thank you so much @Tbrotherstrust raising awareness of research to #cure #EB #fightEB #healEB @TomHolland1996
Fab photos taken by super mum #NikkiHolland ๐
Wow, another incredible challenge from @CharityDEBRA and Graeme Souness. Click the post below to find out what they are doing, how you can follow their progress and, support them. #FightEB
Team DEBRA are back with a new challenge!
If you missed @bbcbreakfast this morning, that's right! This September, the team are back with another epic challenge to โBE the difference for EB.โ
Find out more and donate today: https://t.co/PlUua6X2BP
#GraemeSouness #BBCBreakfast
I am thrilled to announce that Iโve been granted the @Haleon_health Award by the ORDT to start a new exciting pilot study on Epidermolysis Bullosa. Canโt wait to get started. #FightEB ๐ฆ
A perfect cup of tea is only possible with a perfect mug. Romeo seems to think so too. The new mug is available now via our shop with all proceeds going to @CharityDEBRA #FightEB
Click the link https://t.co/ATfF3O7D18
#thebrotherstrust #brotherstrustmug #tomholland #debra
#HappyBirthday precious Sohana. Living a #life with #EB is gruelling but somehow you do it with #humour and a #determination to not be defined by it. #Love #fight #resilience #inspiring #intelligence #beauty #cure #EB #fightEB #healEB
Fantastic evening at our #SilverButterflyDinner at @RIBA last week. What a delight to spend an evening with so many of you, while raising funds for #EB #research
Thank you to our patron @lewis_damian for hosting. More photos to follow!
#CureEB #ResearchtheCure #HealEB #FightEB
Did you know a group of butterflies is called a kaleidoscope? ๐ฆ
Visit https://t.co/ZS2S0mvUpS to learn more about becoming a #KaleidoscopeFriend & support our mission to #CureEB & give hope to our butterfly children
#ResearchtheCure #Donate #EndEB #HealEB #FightEB #Research
Great webinar by @InterDEBRA discussing benefits of patient engagement in drug development and role of patient support organisations ๐ #FightEB #clinicaltrials
HardMoors โ๏ธ 110 training plan done โ๏ธ.
What a 10 months it's been, truly incredible feel ๐ช and ready to go ๐โโ๏ธ.
Taking on this epic adventure for DEBRA UK.
https://t.co/7US8u0h1SO
๐ฆ #FightEB #NoMorePain
Just 3 weeks until I take on my biggest challenge ๐โโ๏ธ. It would be amazing if anyone would like to support and donate to my https://t.co/7US8u0h1SO for this fantastic @CharityDEBRA. #FightEB #FindACure
Evolution of genome diagnostics in epidermolysis bullosa: Unveiling the power of nextโgeneration sequencing - via @TheJEAVD
#FightEB
https://t.co/EXse8zzERE
Please support #RareDiseaseDay2024 and share.
No-one should have to go through life like this so more awareness we create the more chance we have in raising vital funds so one day a cure can be found. ๐ฆ
#NoMorePain #FightEB
Today we stand in solidarity with the rare disease community on #RareDiseaseDay.
Living with a rare condition, like epidermolysis bullosa (EB), means you are more likely to face misdiagnosis, treatment inequality and isolation.
RT this post to help raise awareness of EB!
๐ฆBE the difference for EB๐ฆ @CharityDEBRA aims to raise ยฃ5 million in 2024 to provide enhanced EB community care, support for today, and effective drug treatments. To learn more and how to help, click the post below.
#thebrotherstrust #debrauk #fighteb
๐ฆ Together we can BE the difference for EB ๐ฆ
Our aim? Raise ยฃ5 million in 2024 to provide enhanced EB community care and support for today, and effective drug treatments for all types of EB for tomorrow.
Please donate today: https://t.co/io4o7NHjgK Thank you for your support.
Thrilled to connect with the incredible @jnnyHarris through X! ๐ She just sent these fascinating pieces of EB research history to me, and wow!
Also, the @charityDebra logo looked completely different back then! ๐ฐ๏ธ #fightEB #EpidemolysisBullosa #AcademicTwitter
Who fancies a challenge for 2025?
Check this out ๐
https://t.co/oXL33zFbkD.
If you sign up for the challenge by January 31st you can use the following code to get a 20% discount on your registration fee.
NY2024
#FightEB ๐ฆ
@CharityDEBRA
๐ So thrilled to share my first publication as senior author! ๐๐ฌ Grateful for the incredible team and mentors who made this possible. #AcademicChatter #fightEB
Genotype-phenotype correlation in Junctional Epidermolysis Bullosa: si... https://t.co/Zis4mc1qJB
Our annual Fight Night event has raised over ยฃ180,000 to #FightEB, making it DEBRA's most successful Fight Night in 15 years!
Thank you to @FrankWarren, @Queensberry, the staff at @theBreweryVenue, our sponsors, auction donors, and everyone else who made the event so successful.
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