Top Tweets for #HAESA
Identifying triggers can help patients with HAE manage their lives better.
App available in English, Afrikaans & Zulu!
๐ https://t.co/ntGPXRH3Jy
#hae #haesa #hereditaryangioedema #haesouthafrica #haemanagement #TogetherWeCan #careforrare #rarediseasessa
Recognising a throat attack ๐ฃ๏ธ๐จ
โ๏ธSensation of having a lump in your throat
โ๏ธFeeling of tightness
โ๏ธVoice changes
โ๏ธCoughing
โ๏ธDifficulty speaking
โ๏ธStridor (a high-pitched wheezing sound caused by disrupted airflow)
โ๏ธLaboured breathing
#hae #haesa #hereditaryangioedema
Did you know...... ๐ฃ๐จ
Trauma to the mouth caused by dental procedures or surgery to remove the tonsils are particularly critical, as they can cause swelling in the airway or throat (larynx).
๐๐ Find out more: https://t.co/Br8REpx7U5
#HAE #HAESA #knowhae #TogetherWeCan
4. THERE ARE NO MODERN MEDICATIONS CURRENTLY REGISTERED IN SA FOR PREVENTING ATTACKS
๐
88% of patients who completed our survey have been prescribed tranexamic acid or Danogen because no modern medications are available.
#haeday #haeday2024 #haesa #haesouthafrica
Hae day :-) is coming up in a few short weeks and we wish to share findings from a recent South African HAE patient survey ๐๐๐ #HAEDAY
1. EDUCATING THE MEDICAL COMMUNITY
IS KEY!
#haeday #haeday2024 #haesa #haesouthafrica #careforrare #hereditaryangiodema #TogetherWeCan
HAE S.A held our 2024 Annual Patient Meeting in Cape Town on 6 April. As we celebrate our 8th year in patient advocacy!
Thank you to our speakers & our sponsors, Takeda & Pharvaris for making this event possible!! ๐ฉท
#patientmeeting #capetown #haesouthafrica #hae #haesa
Greetings of the season from @hae_southafrica โจ
We wish you a holiday season filled with joy, peace, and good health. ๐๐๐๐๐
#haesa #HappyHolidays #MerryChristmas #SeasonsGreetings #haesouthafrica #TogetherWeCan
Patient Support ๐
HAE S.A. is a dedicated patient support and advocacy association which is affiliated to HAE International.
Visit our website for more info and chat to us ๐ https://t.co/bUrgukuYS3
#hae #hereditaryangioedema #togetherwecan #haesa
Welcome To The World of HAE- Diagnosis and treatment of HAE (Part 3)๐
WELCOME TO THE WORLD OF HAE๐
A three-part video series explaining symptoms, triggers, types, genetics, diagnosis and treatments!
Watch full video here: https://t.co/nTFOGrHtV1
#haeawareness #hae #haesa
Commemorating a Decade of Excellence!
Step into a world of grandeur as HAE marks the momentous milestone of the department's 10th anniversary.
Anticipate ๐ฅ๐ฅ
@haesaofficial
#HAESA
๐ซ๐ซ๐ซ๐ซ๐ซ๐ซ๐ซ๐ซ๐ซ๐ซ
Commemorating a Decade of Excellence!
Step into a world of grandeur as we mark the momentous milestone of our department's 10th anniversary.
Refer to the official flyer for a comprehensive program schedule and an array of extraordinary festivities!
#HAESA
Stay connected with loved ones: HAESA encourages you to reach out and inquire about their well-being through our 'Have You Heard From a Friend?' Project. Strengthen relationships and reinforce belonging to the community. Enjoy your vacation and continue supporting #HAESA
With only 6 days to go to #haeday2023 and 35 countries participating, we have generated 63,314,147 steps so far, which is 1.2 trips around the world!! Keep going!
๐Keep up to date with the stats here: https://t.co/jerXboUOQK
#HAESA #TogetherWeCan #careforrare #HaeDay #HAE
As we welcome the holy month of Ramadan, we extend our warmest greetings to our Muslim friends and colleagues in HAESA. May this month bring you closer to Allah and help you find peace and solace in his love. Wishing you a blessed and meaningful Ramadan.๐๐ #RamadanKareem #HAESA
Itโs the last week of the 2022 HAE Youth Advocacy Month!โญ๏ธ๐
All you need to do is wear your favorite blue shirt, take a photo or video, share on social media, and write in the caption what do you do #BeyondHAE! Be sure to use the hashtag๐
#AdvocatetoEducate #HAE #HAESA
Congratulations BERNICE OHENEWAA ASARE.
HAESA WELFARE OFFICER ELECT.
Congratulations ๐
#HAESA
Congratulations dear Juanita Acquah-Greens for being elected as the HAESA Gen. Secretary!!
#thepenlady congratulations #HAESA
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