Top Tweets for #BeyondHAE
It’s the last week of the 2022 HAE Youth Advocacy Month!⭐️💙
All you need to do is wear your favorite blue shirt, take a photo or video, share on social media, and write in the caption what do you do #BeyondHAE! Be sure to use the hashtag💙
#AdvocatetoEducate #HAE #HAESA
October is HAE Youth Advocacy Month. The HAEi Youngsters' Community joins the @US_HAEA Youth in their #BeyondHAE campaign:
Post a photo/video of yourself wearing something blue
Write in the caption what you do #BeyondHAE
See the HAEi Youngsters' posts-> https://t.co/cJGdZXgLPN
This month's episode of the #BeyondHAE podcast features four young people with HAE between the ages of 7-11 who talk about what it's like to have HAE.
You can listen to #BeyondHAE on Apple Podcasts, Spotify, or wherever you find your favorite podcasts!
#HereditaryAngioedema
📣 This month's episode of the #BeyondHAE Youth Podcast features HAEA Youth Advocate Sydney, who interviews Lisa Facciolla. Lisa talks about her life with HAE, challenges that she overcame, and how she found independence through self-administration.
#HereditaryAngioedema
📣 Have you listened to the March episode of #BeyondHAE?
You can listen to this episode on Apple Podcasts, Spotify, or wherever you find your favorite podcasts!
#HAEA #HAE #HereditaryAngioedema #HAEAyouth #Advocacy #Podcast
Have you listened to the latest episode of the #BeyondHAE podcast?
This month’s episode features Kira, who discusses what it’s like to be the first in her family to have HAE.
Listen to #BeyondHAE on Apple Podcasts, Spotify, or wherever you get your podcasts!
Why do you advocate for HAE? We all have something that drives us to do what we do. What drives you?
“I advocate for HAE because I want a better life for the future generations of people with HAE.” - Jack
Why do YOU advocate for HAE?
#BeyondHAE #HereditaryAngioedema
“Advocacy aims to bring about change. Being an HAE advocate allows me to bring my voice to life about topics that I am passionate about and feel I am making an impact within the HAE community. ” - Hannah
#HAEAYouth #YouthAdvocate #BeyondHAE #HAEYouthAdvocacyMonth
“Hi, my name is Paige. I was 2 years old when I was diagnosed with HAE. Something interesting that I like to do #BeyondHAE is going longboarding To me, longboarding means that there is more to my life than HAE.”
#HAEAYouth #YouthAdvocate #HAEYouthAdvocacyMonth
“Hi everyone, my name is Alex, and I am 22 years old. Being active #BeyondHAE means I am not limited. HAE throws many obstacles in our paths but I refuse to let it hinder me from participating in the things I love.” - Alex
“Hi, my name is Allie. I was diagnosed with HAE at the age of 21. HAE has stolen so much and dictates a lot of our life, but it did not stop our dream of becoming foster parents. I live every day #BeyondHAE as I care for the tiny humans that need me.”
In the latest issue of Global Perspectives, the HAEi Youngsters share that they are kick-starting their Blog with Pravalika's story. Pravalika is from India. In the blog, she tells us what #BeyondHAE means to her, and she shares 3 fun things about herself:
https://t.co/MmDKQ3vcTs
🎈 #TBT to the HAEA youth campaign #BeyondHAE! Our youth members loved sharing what it means to live life #BeyondHAE!
What does living life #BeyondHAE mean to you?
#HAEA #HereditaryAngioedema #HAE #HAEAyouth #Advocacy
🥋 #TBT to the HAEA youth campaign #BeyondHAE! Our youth members loved sharing what it means to live life #BeyondHAE!
What does living life #BeyondHAE mean to you?
#HAEA #HereditaryAngioedema #HAE #HAEAyouth #Advocacy
The HAEi Youngsters share a new blog post on their website: Pravalika’s story
Pravalika is from India and in the blog post she tells us about what #BeyondHAE means to her and she also shares 3 fun things about herself 🤗
Get to know Pravalika here: https://t.co/MmDKQ3vcTs
Listen to our latest #BeyondHAE podcast! Episode 26 is hosted by HAE patient, Sophie and her mom, Melanie.
Listen to Sophie’s episode of the #BeyondHAE podcast on Apple Podcasts, Spotify, or HERE: https://t.co/wOX6kvTSad
#HAE #HAEA #HereditaryAngioedema #Advocacy
#TBT to the HAEA Youth #BeyondHAE campaign! Our youth members loved sharing what they like to do #BeyondHAE.
What does #BeyondHAE mean to you? Let us know in the comments below!
#HAEA #HereditaryAngioedema #HAE #HAEAyouth #advocacy
#TBT to the HAEA youth challenge #BeyondHAE! Our HAEA youth members had so much fun showing us what #BeyondHAE meant to them!
What does #BeyondHAE mean to you? Let us know in the comments below!
#HAEA #HAEAyouth #HereditaryAngioedema #HAE #Advocacy
🗣️ Have you listened to the HAEA podcasts yet? We offer two great options: HAE Speaks and #BeyondHAE! These podcasts are designed to connect our community through our shared experiences.
#HAEA #HAE #HereditaryAngioedema #Podcast #Avocacy #HAEAyouth
#TBT to our 2019 HAE IN-MOTION® events! What is your favorite memory from an HAE IN-MOTION® event? Let us know in the comments below!
#HAEA #HereditaryAngioedema #HAE #HAEInMotion #BeyondHAE
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