Top Tweets for #HHTawareness
NORD Member @curehht is bringing #HHTawareness to DC at their HHT Capitol Hill Day, March 18.
Be an #HHT advocate! Join them to urge Congress to commit to the progress we know is possible for hereditary hemorrhagic telangiectasia. No experience needed. https://t.co/ypRZHFSZxm
This is it.
We're so close to our goal, and yet so far away. We're calling for final donations before the end of June to help us get to our goal of $100,000 so we can utilize all of our match dollars.
Give today: https://t.co/w5Y1U8XB8G
#SeeBeyond #HHTAwareness
Today we're watching how Hollywood portrayals hereditary hemorrhagic telangiectasia (HHT) by watching Chicago Med, season 1 episode 10 (Clarity). Watch along and tell us what you think they got right and wrong.
#SeeBeyond #HHTAwareness
One of the hardest parts of HHT can be the feeling that other people don’t understand it. Events are a great way to connect with other people in the community while also supporting awareness & education. Learn more:
https://t.co/L8BpqH5gf8
#SeeBeyond #HHTAwareness
AVMs are one of the most common characteristics of HHT, but they’re also easy to miss. @ucsfhospitals Dr. Hetts discusses what an AVM actually is, how they can impact health and why we should take them seriously. Watch and share: https://t.co/uERUi3sa4J
#SeeBeyond #HHTAwareness
Today we're watching how Hollywood portrayals hereditary hemorrhagic telangiectasia (HHT) by watching House MD season 3 episode 16 (Top Secret). Watch along and tell us what you think they got right and wrong.
#SeeBeyond #HHTAwareness
This week kicked off HHT Awareness Month, an opportunity for the community to come together in pursuit of our shared goals: awareness, education & a cure. By donating now, you can directly impact the programs that push us forward: https://t.co/KwGUJFlJle
#SeeBeyond #HHTAwareness
Why do HHT patients get nosebleeds? 🤔 As we kick off HHT Awareness Month, our "Beyond the Visible" campaign tackles unseen challenges.
Watch Dr. Al-Samkari, from @massgenbrigham explain the science behind nosebleeds in HHT: https://t.co/zwgdPoObWt
#SeeBeyond #HHTAwareness
June is HHT Awareness Month with June 23 as Global HHT Awareness Day!
Today begins a month-long community celebration that raises awareness for hereditary hemorrhagic telangiectasia (HHT). Learn more at https://t.co/vkxnx6zagW
#SeeBeyond #HHTAwareness
HHT Awareness Month is almost here — are you ready to help us raise awareness? We have free resources available for you to share on social media, tips for setting up your own fundraiser, and printable posters.
Get involved: https://t.co/GmnDxYCIOO
#SeeBeyond #HHTAwareness
We're celebrating! @CDCgov has included HHT in their Bleeding Disorders Awareness Month campaign after years of Cure HHT advocating for inclusion. This is a significant step in raising awareness. Let's keep spreading the word! #HHTAwareness
Mark your calendars! We're 100 days away from HHT Awareness Day. Let's start the countdown and spread awareness.
#HHTAwareness #100DaysOut #CureHHT #SeeBeyond
HHT: Bleeding disorder caused by a blood vessel disorder. 🤯 It's the 2nd most common inherited bleeding disorder. Join us in raising awareness this month! Support patients & medical research. #HHTAwareness #HealthFacts #ResearchMatters
🚫HHT doesn't affect daily life significantly.
✅HHT can have a profound impact on daily life, from managing frequent nosebleeds to dealing with more serious complications like strokes or organ failure. Support, understanding, and proper medical care are essential. #HHTAwareness
🌍 Did you know today is World #HHTDay? Join us in raising awareness about Hereditary Hemorrhagic Telangiectasia! Learn how VASCERN's HHT Working Group is enhancing knowledge and care for HHT patients👉https://t.co/UE92WAkKyx
#HHTAwareness #Rarediseaseawareness
Hereditary Haemorrhagic Telangiectasia (HHT) is a rare genetic blood vessel disorder affecting many individuals in Ireland. Many HHT patients rely on blood donors for their survival and well-being.
Learn more at https://t.co/lgJCCNaokc ❤️ #WorldHHTDay #HHTAwareness #HHTIreland
The bridge will be lit in red & blue for Global HHT (Hereditary Hemorrhagic Telangiectasia) Recognition Day. https://t.co/SofaX6ENi8 #HHT #HHTAwareness @HHTCanada #yeg #LightTheBridge
My most sincere gratitude to @curehht for making this possible and for their tireless efforts in advocating for patients and making a cure for HHT a possibility #AllRoadsLeadToACure #HHT #RareDisease #livingwithHHT #HHTAwareness #HHTCentersofExcellence (3/4)
For my niece who died of a brain bleed at age 3, for my sister and her multiple brain surgeries, for my cousin passing out at the gym due to a brain bleed. #StridesForStrength #cureHHT #HHTawareness #HHT #RareDisease https://t.co/TjtxgsyEZW
THIS THURSDAY (8/19) - HHT will be the featured topic on the @CDCgov's popular Public Health Webinar Series on Blood Disorders! Please share this post with your colleagues and register today: https://t.co/znaN5LJDy2.
#HHT #CureHHT #HHTEducation #HHTAwareness
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