#HPPStrong - Twitter Hashtag

almost 5 years ago

Hoy 30 de octubre, es el Día Mundial de la #Hipofosfatasia 🧬 Compartimos la información de @AsociaAeryoh para dar visibilidad y concienciar sobre esta patología #EnfermedadesRaras #HPPTogether #HPPStrong #letsbeheard

AERyOH @AsociaAeryoh

almost 5 years ago

Hoy 30 de octubre se celebra el Día Mundial de la Hipofosfatasia, una enfermedad ultra rara que afecta a 1:100.000 personas de Europa. Desde AERyOH nos sumamos al día mundial de la visibilización y concienciación de esta #EPF

AsociaAeryoh's tweet photo. Hoy 30 de octubre se celebra el Día Mundial de la Hipofosfatasia, una enfermedad ultra rara que afecta a 1:100.000 personas de Europa.
Desde AERyOH nos sumamos al día mundial de la visibilización y concienciación de esta #EPF https://t.co/J2kyK1oNYH

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Soft Bones HPP @SoftBonesHPP

almost 5 years ago

Soft Bones is bringing awareness all year round including on this #WorldHPPDay. To learn more, check out episode one of our podcast “Bona Fide HPP” https://t.co/dFOWqohGC5 Also available on Spotify! #SoftBonesHPP #hppaware #hppstrong

SoftBonesHPP's tweet photo. Soft Bones is bringing awareness all year round including on this #WorldHPPDay. To learn more, check out episode one of our podcast “Bona Fide HPP” https://t.co/dFOWqohGC5
Also available on Spotify!
#SoftBonesHPP #hppaware #hppstrong https://t.co/cwFuRp1BVz

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Sharon Talkington @gems4life

almost 5 years ago

Today is #WorldHPPday ❤️ 🦛❤️ If you feel crummy and or think it’s just arthritis or fibromyalgia please check your alkaline phosphatase (alp) and talk to your dr. They are taught not to look at low alp.#hpp #softbones #raredisease #hppheroes #wearerare #hppstrong #strensiq

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Sharon Talkington @sharonnmylife

almost 5 years ago

Today is #WorldHPPday ❤️ 🦛❤️ If you feel crummy and or think it’s just arthritis or fibromyalgia please check your alkaline phosphatase (alp) and talk to your dr. They are taught not to look at low alp.#hypophosphatasia #hpp #softbones #raredisease #hppstrong #strensiq

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Soft Bones HPP @SoftBonesHPP

almost 5 years ago

On this #WorldHPPDay, let’s all be heard! Today we come together to bring awareness to this rare disease #HPP. Let us all educate media, healthcare practitioners, family members, friends and our local communities. https://t.co/OsayqXln2j #SoftBonesHPP #hppaware #hppstrong

SoftBonesHPP's tweet photo. On this #WorldHPPDay, let’s all be heard! Today we come together to bring awareness to this rare disease #HPP. Let us all educate media, healthcare practitioners, family members, friends and our local communities. https://t.co/OsayqXln2j #SoftBonesHPP #hppaware #hppstrong https://t.co/xLUuye5pC7

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Soft Bones HPP @SoftBonesHPP

almost 5 years ago

In the spirit of Let's All Be Heard, #HPP advocates can come from all ages and demographics. Meet Emerson. #WorldHPPDay #SoftBonesHPP #hppaware #hppstrong

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Soft Bones HPP @SoftBonesHPP

almost 5 years ago

As a baby living with #HPP, August’s journey has not been easy, but with the loving help of his mother Mercedes and father, they are determined to get through it as a family. Check out their story & updates here. #LetsAllBeHeard #WorldHPPDay #SoftBonesHPP #hppaware #hppstrong

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Soft Bones HPP @SoftBonesHPP

almost 5 years ago

Get involved in #WorldHPPDay and participate in our photo challenge! Submit your photo along with a caption (be creative!) to [email protected] or tag us on social media @SoftBonesHPP. For more info: https://t.co/1rwIOVRbzS #SoftBonesHPP #hppaware #hppstrong

SoftBonesHPP's tweet photo. Get involved in #WorldHPPDay and participate in our photo challenge! Submit your photo along with a caption (be creative!) to worldHPPday@softbones.org or tag us on social media @SoftBonesHPP. For more info: https://t.co/1rwIOVRbzS #SoftBonesHPP #hppaware #hppstrong https://t.co/kM0L24HGQC

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Soft Bones HPP @SoftBonesHPP

over 5 years ago

News in Tennessee: ELSA (Ensuring Lasting Smiles Act), requiring "all private group and individual health plans to cover medically necessary services resulting from a congenital anomaly or birth defect" is up for vote. It only takes a minute to call your legislator! #hppstrong

SoftBonesHPP's tweet photo. News in Tennessee: ELSA (Ensuring Lasting Smiles Act), requiring "all private group and individual health plans to cover medically necessary services resulting from a congenital anomaly or birth defect" is up for vote. It only takes a minute to call your legislator! #hppstrong https://t.co/wp04jhxPEZ

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Soft Bones HPP @SoftBonesHPP

over 6 years ago

Tomorrow is #rarediseaseday and so we are sharing some facts about HPP. We may be rare but together we are #HPPstrong #RDD2020

SoftBonesHPP's tweet photo. Tomorrow is #rarediseaseday and so we are sharing some facts about HPP. We may be rare but together we are #HPPstrong #RDD2020 https://t.co/i4cTBHTM6a

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Soft Bones HPP @SoftBonesHPP

over 7 years ago

Save the Date for the First Soft Bones 2019 Webinar "Emotional effects with living with a Chronic rare disease" Time and dial-in information to come #HPPstrong, #HPPrare, #chronicillness