Sharon Talkington

[Help Hope Live @helphopeliveorg]

"1 in 10 people have a rare disease in the U.S. We are not meant to walk this journey alone." A powerful letter from our ambassador @sharonnmylife to the community of hope she and her husband discovered after his diagnosis on #WorldHypophosphatasiaDay: https://t.co/Dqau1YmRj1

[Sharon Talkington @gems4life]

@helphopeliveorg @sharonnmylife Thank you HHL for inviting me to share my heart and recognizing World Hypophosphatasia Day!

[Help Hope Live @helphopeliveorg]

"I must receive as well as give as a caregiver." Today is National #CaregiversDay! Our Ambassador @sharonnmylife explains what she's learned about caregiving - and herself - as a caregiver for her husband as he lives with hypophosphatasia.

[Sharon Talkington @gems4life]

Today is #WorldHPPday ❤️ 🦛❤️ If you feel crummy and or think it’s just arthritis or fibromyalgia please check your alkaline phosphatase (alp) and talk to your dr. They are taught not to look at low alp.#hpp #softbones #raredisease #hppheroes #wearerare #hppstrong #strensiq

[Sharon Talkington @gems4life]

@ddtalk7 and I were so honored to share these tips with you at the #abilitiesexpo2020 #HelpHopeLive #hopeisnotcanceled #hypophosphatasia

[Help Hope Live @helphopeliveorg]

When’s the last time you “Checked In” at Help Hope Live on Facebook? Do you know how to set a realistic Facebook Fundraiser goal? Our latest post features 9 must-have tips for Facebook fundraising—for #GivingTuesday and beyond. #hopetip https://t.co/AxN9PILPI2

[Sharon Talkington @gems4life]

Hpp webinar tonight! Register now. 😊

[Sharon Talkington @sharonnmylife]

Today 6pm ET hear a patient and dr share about #hypophosphatasia register now at https://t.co/YWH0fnwLsW or call 1-844-335-0372

[Sharon Talkington @gems4life]

So thankful! ❤️

[Sharon Talkington @sharonnmylife]

Thanks to all who donated so far the Facebook fundraiser has $910 and Help Hope Live with update in a few days. We are so thankful! https://t.co/B79v91BSBC #GivingTuesdayNow #hopeisnotcancelled #hypophosphatasia

[Sharon Talkington @gems4life]

Happy Giving Tuesday Now! Please consider giving in some way today here or your favorite cause. <3 #GivingTuesdayNow #hopeisnotcancelled #hypophosphatasia

[Sharon Talkington @gems4life]

@AlexionPharma Love Evie's story of hope for a baby diagnosed with OI 2 in the womb but it was actually hpp which is treatable! Click the link and scroll to see the video of her story! ❤️

[Alexion @AlexionPharma]

When an ultrasound revealed that Evie had extremely fragile and transparent bones, doctors told expectant parents John and Lindsey that it was not likely their baby girl would live long after birth. Watch Evie's story: https://t.co/uvWMeGX5w2 #HPPAwarenessDay

[Sharon Talkington @gems4life]

So honored to share our #hpp #hypophosphatasia story today with @ddtalk7 at @AlexionPharma for #hppawarenessday Is your alkaline phosphatase low? It could be hpp and there’s a treatment for that. #strensiq #livingthedream #Bostoninthefall

[Sharon Talkington @gems4life]

So excited about this meeting! <3 <3 <3

[Sharon Talkington @gems4life]

@SoftBonesHPP This is going to be amazing! Can't wait!!!! <3

[Sharon Talkington @gems4life]

@SoftBonesHPP This is going to be amazing! Can't wait!!!! <3

[Sharon Talkington @gems4life]

#GivingTuesday @helphopeliveorg is #freethefee as they are waiving all credit card fees that day!!! Help us reach our goal to help with unpaid medical costs such as the handicap van that David needs this winter!!! #hypophosphatasia #hpp #SoftBoneshpp https://t.co/79mZPandIl

[Sharon Talkington @gems4life]

Dave walking on video and a blog post with the story behind it!!! :) <3 @helphopeliveorg #Sharonnmylife #DavenSharonTalk #hypophosphatasia #hpp #SoftBones #sothankful #socialgood https://t.co/33EwL0sRyU …

[Sharon Talkington @sharonnmylife]

Dave walking on video and a blog post with the story behind it!!! :) <3 @helphopeliveorg #Sharonnmylife #DavenSharonTalk #hypophosphatasia #hpp #SoftBones #sothankful #socialgood https://t.co/4Uykx86jA8…https://t.co/E82YdpXvcj

[Sharon Talkington @gems4life]

Urgent!!! Dave needs a handicap van by winter. https://t.co/x1ZnUz8lEg

[Sharon Talkington @sharonnmylife]

URGENT!!! Dave needs a handicap van by winter! Details here. https://t.co/7eh6KexEXb

[Sharon Talkington @gems4life]

This is going to be amazing!!!

[Soft Bones HPP @SoftBonesHPP]

One month until the Indianapolis HPP event Stand with HPP Have you signed up yet. Kids welcomed along with family and friends come learn about HPP and meet others. https://t.co/6C10USnRbE

[CFUCDF @CFUCDF]

Love them ❤️@GlobalGenes @HZNPplc @biopharmaglobal @MadisonMcLaugh @RecordatiRare @ThePatientExp @RareDiseases #CFUCDF

[sue Kr @d3sert]

Please Tell your friends and family use this link https://t.co/egxpTFmbap Then Click on Evie's Video and watch all or part of it. By clicking on the link and watching the video Soft Bones will get a donation. Its simple and only takes a few minutes of everyones time..