Top Tweets for #SoftBones
New #CME program on #Hypophosphatasia from @medliveofficial!
Learn how #HPP presents across the lifespan, #EnzymeReplacementTherapy evidence, and strategies for coordinated care. Watch + earn credit here: https://t.co/wigZhuT0Tv
#MedicalEducation #MedEd #Orthopedics #SoftBones
Dental implants update
6 week visit. See the surgeon again in September to schedule next surgery for the screw caps
But - he wants to also put 2 more implants in. So it’ll be another 6 months from that surgery before I’m ready for my final teeth
#softbones
#janssubstitooths
THANK YOU to our caregivers who go above and beyond. On #NationalCaregiversDay, we want to applaud the many individuals who selflessly help others living with HPP. Whether you are a caregiver by profession or taking care of a loved one, we recognize your dedication.
#SoftBones
This weekend, we had the opportunity to exhibit at the 2022 @SoftBonesHPP National Patient Meeting. Thanks to everyone who stopped by our booth to say hi! #SoftBones #HPP #Hypophosphatasia
We’re excited to attend the 2022 @SoftBonesHPP National Patient Meeting and connect with healthcare experts and members of the hypophosphatasia community. See you in Orlando! #HPP #SoftBones
Very proud of Davis. He received his Teenage Advisory Council t-shirt for Soft Bones in the mail today. He and members of this council designed this shirt. Great job D! #softbones #HPP
Believing in yourself is the first step to doing what you aspire to do. #HPP #softbones #raredisease #MotivationalMonday
TOMORROW, all clinicians are invited to join Steven Mumm, PhD, Washington University School of Med for a presentation on #HPP #Genetics at 12pm EST presented by #SoftBones & @ProjectECHO. For more info or to register: https://t.co/7n4m8IRAqE
Wishing everyone a HAPPY and HEALTHY New Year!
#HPP #SoftBones #NewYear #NewYears #holiday #HappyNewYear #2022
Each day is brand new. Leave yesterday behind and embrace today.
#MotivationalMonday #softbones #raredisease
Today is #WorldHPPday ❤️ 🦛❤️ If you feel crummy and or think it’s just arthritis or fibromyalgia please check your alkaline phosphatase (alp) and talk to your dr. They are taught not to look at low alp.#hpp #softbones #raredisease #hppheroes #wearerare #hppstrong #strensiq
Today is #WorldHPPday ❤️ 🦛❤️ If you feel crummy and or think it’s just arthritis or fibromyalgia please check your alkaline phosphatase (alp) and talk to your dr. They are taught not to look at low alp.#hypophosphatasia #hpp #softbones #raredisease #hppstrong #strensiq
#PatientSpotlight Growing up with #HPP has never been easy for Blynda. Though she faces challenges daily, her message is clear. It is important to support the #SoftBones Foundation to bring light and awareness to this disease.
#MotivationMonday A happy life does not just come without hardships, mastering those hardships is the beauty of a happy life.
#softbones #HPP #raredisease
#MotivationalMonday It's all about your attitude, no matter what happened or what's ahead! Believe in yourself! #softbones #raredisease
We are excited to announce the launch of the Soft Bones ECHO Program, a telementoring series to connect and educate healthcare professionals about hypophosphatasia. Physicians interested in registering should email [email protected]. #softbones
National Watermelon Day! A fruit that's easy on the mouth and can be a great refreshing summer treat. Eat it as is or blend it into a juice! #softbones #watermelonday
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