Top Tweets for #HSwarrior
I DNT like having HS 😞 #hswarrior
Hey friends! You guys have seen me post about going to #Sedona to shoot a music video about the disease I battle, #HidradenitisSuppurativa. I just dropped it today with another #HSWarrior doing the vocals. This was the location where I did my guitar parts, with #CathedralRock as my backdrop. The music video is in the comments below! I’d love to hear what you think!
I had an amazing panel today on #HidradenitisSuppurativa with another amazing #HSWarrior as well as partners from UCB. So thankful for these opportunities and these wonderful people helping out in the medical field!
And thank you so much all to you guys for all the well wishes and support on my HS Journey. The love and support means everything.
If I thought it would help, I would skin myself.
Like guys…
I’m so tired of being in pain.
I’m so tired of abscesses draining.
I’m so tired lf not being able to do or wear whatever I want.
I’m so tired of being stuck at home.
HELP!
#HSWarrior #HS #HidradenitisSuppurativa
Lose the weight it’ll go away with healthy eating and exercise. #HidradenitisSuppurativa #HSWarrior #HSisBeautiful #awareness
What a great project this turned out to be!
Checkout the behind the scenes of the making of - HELP (The Use of Assistive Aids) -
Thanks to my wonderful photographer Nigel Ramotar.
#yourfavoriteshooter #hidradenitissuppurativa #hsisbeautiful #hswarrior #medicalmodeling
Reminder Hidradenitis Suppurativa comes in all types of people. Here’s one of my worst flare ups. #yourfavoriteshooter #HidradenitisSuppurativa #abscess #flareup #disability #skincare #chronicillness #autoinflammatory #boils #woundcare #hswarrior #invisibleillness #chronicallyill
Most of the time I mentally and physically ready to just collapse‼️
My body is in constant pain from my flare ups with my chronic illness called Hidradenitis Suppurativa. The fact that I’m not laid up in a bed or hospital is a miracle. I give props to every warrior.
#hswarrior
Working with a chronic illness seems almost impossible sometimes.
I really thought I would be able to handle going back into the workplace, but my body had different plans. It only took less than a week for a flare up to form and cause extreme pain.
#hswarrior #chronicallyill
Have you ever had to fight for your life?
In May of 2024, I had a tussle with the devil, but the God I serve prevailed. I had a massive infection in my left leg and extremely severe lumbar stenosis.
#hswarrior #invisibleillness #chronicallyill #health #vlog #hs #Disability
What assumptions did you hear towards your chronic illness?
People thought just because I was outside at events or working events, I was in tip top shape. NO, I sacrificed my body and health to be here!
#hswarrior #invisibleillness #chronicallyill #health #vlog #chiropractor
As a chronically ill person, what would you add to this list?
I’ve noticed how much people want to sympathize with me rather than understanding the pain that I’m in. This disease makes my life more challenging than most. #hswarrior #invisibleillness #chronicallyill #health #vlog
Back surgery was one of the most life changing parts of my hospital stay. It altered how I looked at being able to have a future. Seeing myself moving around and actually able to go long distance is the change that I need. #HidradenitisSuppurativa #vlog #chronicillness #hswarrior
IDEOM #HidradenitisSuppurativa Workgroup Chair Dr. David Rosmarin recently discussed developments and advancements in #vitiligo and #AtopicDermatitis at #RAVE24.
Learn more here: https://t.co/z0UbCZD28x
#DermTwitter #Dermatology #HSAwarenessWeek #SupportHS #HSWarrior #DermPath
David Rosmarin, MD, presented developments and advancements in both vitiligo and atopic dermatitis at #RAVE24. In his vitiligo discussion, Rosmarin reviewed phase 3 data of #ruxolitinib cream and key points from the subgroup analysis.
https://t.co/VjpTMcVXGH
La vida me ha dado alguna que otra batalla, pero esta se ha convertido en la más difícil de pelear. Sueño con despertarme un día y que tengamos una cura o más remedios para el dolor crónico. Por más investigación y más visibilidad. 💜🦾
#HSwarrior
#hidradenitissupurativa
Here’s my recovery with Hidradenitis suppurativa and back surgery. It went from being a couple days stay needed then turned into a 2 week hospitalization visit. Now the recovery process is to relearn everything. #HidradenitisSuppurativa #vlog #chronicillness #hswarrior
Boils for 10 years?! The shocking truth doctors miss https://t.co/QRsCgWSM8H
#diagnosednotdismissed #HSwarrior #misdiagnosedforyears #findyourhscommunity #flareFighter #livetheihadhs #youarenotalone #morethanboils #healthtok #earlydiagnosismatters #HidradenitisSuppurativa
…just had my colonoscopy and at the age of 50, I have some of the gastrointestinal issues that are common/comorbidities for people who have #hidradenitissuppurativa #HS I’ve had this Chronic illness since the age 11. #hswarrior
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