Top Tweets for #HTAAD
Please read my latest regarding my journey with #htaad: “Issue #7: Pumphead & Another Day, Another Open Heart” https://t.co/zpb9ElnWF8
You can see all issues here: https://t.co/F0hxoIxxcz
#aorticdissection #aortaed #cardiotwitter #genechat
Read my latest: “Issue #7: Pumphead & Another Day, Another Open Heart” https://t.co/uhxkj3URMT
#aorticdissection #aortaed #htaad
2/ My goal is to increase awareness of #aorticdissection and to educate about #thoracicaorticdisease #tad #htaad by telling my story.
I'm posting individual links to my blog posts below as I now write about my third, and hopefully last heart surgery.
After over 16 years of balancing my genetics career with my own genetics journey with #htaad, I elected to step away from genetics and medicine. I spent a year doing other things and wasn't remotely fulfilled. Turns out, in the end, there's no denying... #iamageneticcounselor.
This is what got me through #aorticdissection and 3 heart surgeries.
My ❤️!
My son is now pushing 6'5" so his once upper end of normal aortic root is now VERY normal. My daughter will begin screening in a few years.
#htaad

Please consider reading Issue #5: To Repair or not? To Repair. There Was No Question. https://t.co/SKEW9tQgft
#aortaed #aorticdissection #taad #htaad #htad
Causes of thoracic aortic aneurysm include hardening of the arteries (#atherosclerosis), genetic predisposition (#Marfan, #LoeysDietz, vascular Ehlers-Danlos #veds, #Turnersyndrome, non-syndromic #HTAAD)... (1/2) #aortaed
Read my latest: “Issue #4: We Plan, God Laughs, Aorta Ed, and Goodbyes” https://t.co/7DY9sFIwpk
Please don't forget to read previous issues and to subscribe!
#aortaed #aorticdissection #htaad #taad #htad
Just published "The GC with TAAD - Issue #3," where I discuss empathy, genetic testing, family surveillance, and the moment I experienced #aorticdissection.
#aortaed #taad #htaad #htad
https://t.co/g6oEgxoNul
My chart says I have #marfan. Not because I do, but because providers unfamiliar with my case rarely understand why I don't. I grew tired of constantly (often unsuccessfully) educating when I just wanted to be a patient. We need more #aortaed
#htaad #htad #aorticdissection
Read my latest: “My wife's essay regarding complications during MV repair” https://t.co/YKQZWt1cci
Read my latest: “My wife's essay regarding complications during MV repair” https://t.co/YKQZWt1cci
Please consider subscribing to my newsletter about my journey with hereditary aortic aneurysm and dissection. Posting an essay my wife wrote on Friday re: complications during robotic MV repair- warning: 'tis a tearjerker. #htad #htaad #taad #aorticdissection #genechat #cardiogen
Read my latest: “Grad School Diagnosis and Valve Repair” https://t.co/QLrcKmgQcz
Please read and subscribe to my newsletter about my journey with hereditary aortic aneurysm and dissection. First issue published tonight. #htad #htaad #taad #aorticdissection #aortopathy #genechat #cardiogen
Read my latest: “Grad School Diagnosis and Valve Repair” https://t.co/QLrcKmgQcz
Questions about genetic testing for hereditary thoracic aortic aneurysm disease? Check out easy-to-understand info for patients & families now on our website. #genetictesting #HTAAD https://t.co/PCi9PeIlAj
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