Top Tweets for #Hdyo
Second 'RUN 4 HDYO' in honour of the life and legacy of Liv, while raising funds for the Olivia (Liv) Martinez Scholarship Fund to help more young people attend the #HDYO Congress in 2027. It was such a privilege to meet Liv’s father, Vince, whose advocacy for mental health and support for people and families affected by Huntington’s disease is inspiring.
There's a lot people don't see - and even more they don't understand.
This Huntington's Disease Awareness Month, young people are sharing their truth 💬
Our Voice, Our Truth.
The Next Generation Speaks.
Begins tomorrow ✨
#HDYO #HuntingtonsDisease
🔹Applications close March 15th🔹
Find HD community at Camp! Apply to go to HDYO North America Camp for FREE! #HuntingtonsDisease #HDYO #Community @HDYOFeed
Super fun first 5K #RUN4HDYO! 🏃💨🏃♀️
Over £2500 raised for the Olivia (Liv) Martinez Scholarship Fund for @HDYOFeed - honouring an amazing ambassador I met at #HDYO Congress in Glasgow in 2023. Liv's kindness and passion touched so many. Donate now and please support young people impacted by Huntington's disease: https://t.co/eWdq0QCsid @UCLHD @UCLIoN
We are committed to creating a community that is built on the foundation of making every single member feel valued and empowered. Together, we can support each other to create change 💙💛💚🩷 #HDYO
🎉 Big News! 🎉 We just launched our brand-new Research Terminology catalog! 🧠✨ Dive into the latest terms and concepts in Huntington’s disease research.
The definitions are designed to be understandable and can be easily translated. Check it out now! #HDYO #HuntingtonsDisease
Did you know that you can become a Youth and Young Adult Mentor?
If you’re 18 or older and live in the US, this is a great opportunity to change lives and provide peer support to other young people.
Visit: https://t.co/lSVyLbLpjS
#hdyo #nya #support #mentorship
Have a fabulous time at the @hdyofeed conference . Whilst I was caring for my bother Mark who had Huntington’s disease I made about 500 #hdyo #sybilontour and people donated over five thousand pounds the @HDYOFeed @HDA_tweeting
HDYO released data from recent surveys of the global HD community. Learn more about the findings and how surveys can help shape the future of HD care and support. #parkinsons #HD #als #neuro #biotechnology #hdyo #laboratory #sciencefacts #cure #innovati… https://t.co/zive8GSz1l
Today, fellow @HDYOFeed Ambassador Hannah joined me to talk about being a #youngcaregiver for her mom with #HuntingtonsDisease and how she's become a strong voice for the community. Take a listen here: https://t.co/7N7FKutIjy
#raredisease #HDWarrior #hdyo #help4hdlive @Help4HDI
Registration deadline for HDYO Congress!
The HDYO International Young Adult Congress is just 2 months around the corner! Don't forget, registration for this event ends on March 1. Sign up at https://t.co/TbTMBMbiQa.
#hdyo #hdyocongress #letstalkabouthd #hope @EHDN_News
AJ’s Testing Story - tune in on Thursday at 12 pm. Link to come and will have closed captioning in multiple languages.
#genetictesting #hope #letstalkabouthd #huntingtonsdisease #hdyo #sharedstories
As we begin 2025, we look back on all of the Huntington’s disease research news and progress the field has made in the last 12 months. #alzheimer #hdyo #cure #stem #science #biotechnology #knowledge #laboratory #research #brain #education #scientist #HD… https://t.co/mxa8CuOwIV
RESEARCH UPDATE - In case you missed it, Roche announced late last week that the GENERATION HD2 study had completed recruitment.
What's next? Check out the details or visit HDYO News at https://t.co/pPIJCx504X.
#research #roche #clinicaltrials #hope #hdyo
In an update shared today, uniQure announced alignment with the US drug regulator on key criteria for accelerated approval of drugs for Huntington’s disease. #scientist #HD #research #stem #alzheimer #education #hdyo #neuro #parkinsons #cure #biotechnolo… https://t.co/GjxYwdf0ZK
You have one week left to join us for an inspiring webinar with HDYO!
📅 Date: 25 November
🕒 Time: 7pm
🔗 Sign up now: https://t.co/gYGGXrJT2j
#HDYO #HuntingtonsDisease #Webinar #YouthEmpowerment #Advocacy
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