Top Tweets for #Help4HDLIVE
#Help4HDLive host, Lauren, joins podcast episode with Stat News The Readout Loud today with hosts Allison DeAngelis, Elaine Chen, & Adam Feuerstein. Take a listen this afternoon!
https://t.co/5Y0ZmNlfMH
Today on #Help4HDLive listen at 1pm PST as Lauren shares thoughts about the public hearing linked below that's currently happening, #HDResearch updates, & more. #HuntingtonsDisease
Click to hear podcast: https://t.co/cJp9DCw6ZM
Follow our social media to stay informed on upcoming events, resources, research, & more! https://t.co/GWI02EAVXC
Also check out our YouTube - #Help4HDTV, & podcast - #Help4HDLive on Spreaker, iHeartRadio, Spotify, & iTunes. #HD #JHD #TogetherWeAreStronger
π£ New Podcast! "Cognitive Symptoms in HD with Todd Knaack" on @Spreaker #cognitivehealth #cognitivesymptoms #help4hd #help4hdlive #huntingtonsdisease https://t.co/L7tWmerwuY
Don't miss this week's episode of #Help4HDLive as Todd Knaack joins Lauren discussing cognitive symptoms in #HD. Details below.
Guys, make sure to tune in TODAY at 4 pm ET for a great show on cognitive symptoms in #HuntingtonsDisease. I am so excited to have @ToddKnaack on with me to really delve into these cognitive symptoms and how they affect someone with HD. You're definitely going to want to listen to this episode! :)
Here's the link (available at 4 pm ET): https://t.co/6IoxIkkGb4
You can also find it on iHeart, iTunes, Spotify, and the @Help4HDI website. #raredisease #HDAwarenessMonth #CognitiveHealth #cognitivehd #executivefunction
HD Expert Dr. Karen Anderson from @MedStarGUH joined me today on #Help4HDLive to talk about mood symptoms in #huntingtonsdisease. You can take a listen to the show here: https://t.co/ZjHpv7RdOu
You can also find it on iHeart, iTunes and Spotify.
#raredisease #mentalhealth #HDAwarenessMonth #MentalHealthAwarenessMonth @Help4HDI
#Help4HDLive starts TOMORROW 1pm PST! Join Lauren for this episode focusing on mood symptoms & #MentalHealth in #HD!
Tune in: https://t.co/cJp9DCw6ZM
Listen later on your streaming service: Spotify, iTunes, iHeartRadio, etc...
The #HDAwarenessMonth Proclamation Event! Listen as Lauren describes this event in her city tomorrow at 1pm PST on #Help4HDLive! #HuntingtonsDisease #HDEvent #advocacy
https://t.co/cJp9DCw6ZM
Listen later: Spotify, iTunes, iHeartRadio, etc...
I have been super sick since the @Help4HDI HIPE event in Baltimore, but I'm so grateful to Katie Jackson and Katrina Hamel for covering the podcast for me this week. Did you catch this week's show with them? Take a listen! #huntingtonsdisease #raredisease #Help4HDLive
https://t.co/zr7T2zOnv3
"Tell us more about #HDAwarenessMonth!" --We would love to! π π π
Join Katie & Katrina this week on #Help4HDLive TOMORROW to hear how you can bring awareness about #HD/ #JHD families! #Help4HD #HDAwarenessMonth #HuntingtonsDisease
https://t.co/cJp9DCw6ZM
"After being publicly dismissed as βthe swamp,β by a government official, Rachel Reising turning that moment into something bigger." Tune in TOMORROW at 1pm PST on #Help4HDLive! #HD #HDAdvocate #speakup4hd
https://t.co/cJp9DCw6ZM
@rachelreising96 joins me TOMORROW (Friday) on #Help4HDLive.
After being publicly dismissed as βthe swamp,β by a government official, sheβs turning that moment into something bigger - using her voice to advocate, to challenge, and to live out loud for herself and the entire community.
#HuntingtonsDisease #raredisease #StandUpSpeakUp4HD #IAmTheSwamp @Help4HDI
https://t.co/iSYYpzluSQ
"...after we were asked & embarrassed numerous times by people in public who didn't know what was going on,Β he stopped going out as much." Tune in to #Help4HDLive to hear how families face #Chorea!
https://t.co/cJp9DCw6ZM
Check out our #Help4HDLive show for this week! Katie Jackson and Jamie Holloway talk about the chorea (movement) associated with #HuntingtonsDisease.
You can take a listen here: https://t.co/QzpMIDAWiW
You can also find us on iHeart, iTunes, Spotify, and the @Help4HDI website.
Find out what's currently going on with the #FDA in regards to #HDResearch in this update with host, Lauren, on #Help4HDLive @ 1pm PST TODAY! #HopeOnHold #HDAdvocacy #HD
https://t.co/cJp9DCw6ZM
Listen later: Spotify, iTunes, iHeartRadio, etc...
Make sure to tune in TODAY at 4 pm EST. @Help4HDI #Help4HDLive #podcast #raredisease #huntingtonsdisease
Tune in at 2pm PST to #Help4HDLive #HDUncut with Sarina Smith as she shares about her HD advocacy in DC &more! #HuntingtonsDisease #HDAdvocate https://t.co/SLDAY6NEe3
Hear from #HDAdvocates, Lauren & Jeremy, as they discuss current events regarding the #FDA on #Help4HDLive from last week! #HopeonHold #HuntingtonsDisease #HDResearch
https://t.co/FWho3vlyqx
Hey guys! Jeremy Renz and I were planning on doing the #Help4HDLive podcast today, but it's been an absolutely exhausting day for the both of us, so instead we will be hopping on and airing the show tomorrow after we can rest and recharge a bit. We'll be providing an advocacy update and all that's currently going on with the FDA, with UniQure, and what the community can do to help. So please tune in tomorrow for this important show. We love you guys! - Lauren
@Help4HDI
#HuntingtonsDisease #raredisease #Voice4HD #StandUpSpeakUp4HD
Be a part of the #Help4HDLIVE! Bring the rough days, sweet memories, helpful resources - your story in an uncensored show for the #HD community. Interested in being on the #HDUncut series? Please email [email protected] to discuss details.
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