Top Tweets for #ICGAW
Thank you to everybody who raised their voice all around the world in support of growth awareness week. It will have made a big difference. There will be parents now thinking they aren’t alone. #thankyou #whatawonderfuleffort #ICGAW
What a brilliant Growth Awareness week. Did your school mention growth awareness day in assembly? Let us know. Do you have unanswered questions? Get in touch. Do you want to support our work? Please do https://t.co/OgptGYXpcM #ICGAW #goodgrowthgoodhealth
In the last week we have made loads of noise about #growthconditions. What about the psychological impact? For those living with the condition, or those trying to bring up children with one, it is OK to talk about how you feel. #ICGAW @TimetoChange
Undiagnosed? Imagine what it is like to have a child not growing normally, and nobody can tell you why! There are many children out there with undiagnosed growth conditions. https://t.co/Sxw8Xjlqe9 #weneedmoreresearch #ICGAW #goodgrowthgoodhealth #ICGAD
Find out more about growth conditions – Russell Silver Syndrome https://t.co/Dsd1GTJbhD #RSS #ICGAW #SRS #RussellSilver
I wasn't dx till I'd stopped growing (which happened aged 13). If I had been, I could've had growth hormones (daily injections). Glad I never had to make that choice.
I was offered jaw restructuring in my teens, but mum + I turned it down as it offered no clinical benefit. #ICGAW
It's Growth Awareness Week #ICGAW I have Leri Weill Dyschondrosteosis - a super-rare mesomelic dwarfism.
Due to gene deletions, my growth is disproportionate.
I'm 155cm tall, so people don't see me as dwarf, but I have complicated deformities, am a ♿ + clothes are a nightmare!
It's Growth Awareness Week #ICGAW I have Leri Weill Dyschondrosteosis - a super-rare mesomelic dwarfism.
Due to gene deletions, my growth is disproportionate.
I'm 155cm tall, so people don't see me as dwarf, but I have complicated deformities, am a ♿ + clothes are a nightmare!
It is Growth Awareness Week #ICGAW time to tell the world that “Height is nature’s early warning signal; a visual alarm for parents and physicians.” Find out more https://t.co/IHaNVvMGu3 #parenting #childgrowth #mumsnet
All of next week use your Twitter account to make the loudest shout for child growth. Change your profile, retweet us and #telleveryone https://t.co/dAYiMowS3v #ICGAW #goodgrowthgoodhealth
“Children have a short time to grow & a lifetime to live with the results”. Is your child growing normally? #ICGAW #ICGAD #childgrowth https://t.co/PO8XvbGFMS
What does having a child with a growth condition mean? Read Samuel's Story to find out at https://t.co/gso9pWUQTu #ICGAD #ICGAW #goodgrowthgoodhealth #parenting #parent
Growth Awareness Week and Growth Awareness Day #ICGAD #ICGAW how can you help? Follow us, retweet us, email your friends, tell your school, tell you GP #lettheworldknow find out more https://t.co/o1QtoIOQWl #growthaware #goodgrowthgoodhealth
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