Top Tweets for #ItsNotInYourHead
Well done Kevin McCairn! Replication Trumps peer review
#invisibleillness #itsokaytoonotbeokay
#itsnotinyourhead
#hope4theinjured
Hypovolemic Shock couldnt hold me down
im home, in my bed and stable
below are my pre and post of my plasma
my labs will be traveling to the lab tom and will have before and after panels of cytokines, immune markers etc-
the filters itself went to patho so i didnt get to take a picture of that
on the left is my plasma pre treatment-
on the right is my plasma post treatment-
i received 10 CC of stem cell GROWTH FACTORS and 1 Liter of Saline after i was stabilized and back on my floor
so far… my brain fog has dramatically lifted and improved, my neuropathy in my hands and feet are improved
my resting heart rate which is usually in the 90s with my POTS is now in the 70s - no dizziness or shortness of breath on standing and highest heart rate standing was 108 compared to previous standing heart rates ranging from 120-170
my blood pressure’s almost textbook normal at 120/79
hope yall hope
ITS FUCKING WORKING
@KevinMcCairnPhD @CharlesRixey @Fynnderella1 @IreneMavrakakis @joevaron @Kevin_McKernan @pizzapicklespur @MaryBowdenMD @53v3n0fn1n3 @PierreKory @drpaulmarik1 @DoctorCole @SabinehazanMD @brucep13
@Jikkyleaks @open_vaet
im gonna take a rest
~ Nurse Lyndsey
Just a bad day all the way around! Glad this isn’t an executive order! Try telling my small bowel/colon all those microbial changes are from my brain! #itsnotinyourhead #microbiome #organicdisease
#SIBO #IMO #ISO #ibs
Well, this is disappointing! Are we really going back to the 'IBS is in your head' era? Thought we were past that by now. 🙄
I'm sure so many can relate to her story #tamikascott #SWVXSCAPE #swvandxscape #Xscape #itsnotinyourhead #younotalone
The voicemail the mother left proves every bit of what tamika said about her mother and sister☹️then the mother had the nerves to threaten her with violence confirming if the mother had to make a choice who to save it will be latocha so sad #SWVXSCAPE #swvandxscape #TheQueensOfRB
Thrilled to be at the #isswsh2023 course and meeting!
Always working towards more enjoyable sex for more people. #sexualmedicine #itsnotinyourhead
@WesElyMD @patientled @Survivor_Corps #Solidarity is what we need to be heard, your message is reaching far and wide. The advocacy groups are doing an amazing job and together we will be heard #LongCovid #ResearchLongCovid #itsnotinyourhead #pandemicwithinthepandemic #BeKind
@LCNMUK @long_covid @LongCovidSOS @LongCovidKids @LongCOVIDPhysio @patientled #longcovid #itsnotinyourhead #researchlongcovid Will the gaslighting stop now? Conversations happening @WHO https://t.co/icTYdElwuW
RT @MeredithLNO: Lab ranges are based on an average within a sick population - NOT what’s optimal. #functionalmedicine #chronicillness #itsnotinyourhead
It’s #IBSAwarenessMonth! 10% of the world’s population suffers from IBS. Up to 80% of those individuals may also have SIBO. #IBS and #SIBO are real, organic diseases of the gut microbiome. #ItsNotInYourHead.
Growing up labelled hypochondriac has consequences. You are doubtful of yourself. You start to believe you are just a ‘worrier’. I did a FB post about this. I my had over 100 likes and 56 comments in an hour of people sharing their story. As a community, we have deep pain.
I was recently diagnosed with 2 #autoimmune diseases (Narcolepsy & Hasimoto’s Thyroiditis). I’ve had symptoms for years and am so thankful for being able to name my experiences and to be able to move forward in my health journey with resources. #chronicillness #itsnotinyourhead
One of our recent papers, "#ItsNotInYourHead: A Social Media Campaign to Disseminate Information on Provoked Vestibulodynia," is now OPEN ACCESS!🎉
Read the full paper here: https://t.co/xWafZ5wx2N
@DrLoriBrotto highlights large gap between info on the prevalence/treatment options for provoked vestibulodynia and what is accessed by affected women and health care providers.
Knowledge translation fills this gap and delivers this info to those who need it! #itsnotinyourhead
🚨 New podcast alert! 🚨
The @WomensResearch podcast has a new episode out! It's all about using social media to facilitate #KnowledgeTranslation for two @msfhr Reach Award campaigns - #DebunkingDesire and #ItsNotInYourHead. Listen to the podcast here: https://t.co/PzRuiO0Pgt
September is
National #SuicidePreventionMonth
#PainAwarenessMonth
Please RT & add your hashtag to raise awareness!
Prevent #SuicideDue2Pain
#SundayThoughts
If you are suffering mentally and physically from endometriosis related pain, this is a must read! Print this out. Show it to your doctors and your bosses! These methods are very tangible!! #endometriosis #cpp #pelvicpain #itsnotinyourhead
Self-management strategies to consider to combat endometriosis symptoms during the COVID-19 pandemic
https://t.co/sPRn01sS06
Helpful guidance from @horne_research and international colleagues!
Check out the #ItsNotInYourHead social media campaign report championed by our very own @DrLoriBrotto! The #ItsNotInYourHead campaign was created to raise awareness about Provoked Vestibulodynia.
@msfhr @ubcshr
Learn more here >> https://t.co/YOTZmVxFUc
“I wonder is it racism, right? Is it they’re not taking me seriously because I’m a woman of color? Are they not taking me seriously because I’m an international student? But there’s no way of knowing.” #PelvicPainProject #ItsNotInYourHead
The Doctor Doesn’t Listen to Her. But the #Media Is Starting To. - @TheAtlantic. https://t.co/sL5SYDq4dL
#womenshealth and #womenshealthissues #ItsNotInYourHead
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