Top Tweets for #LADAOrg
#LADAorg is honored to stand with other stakeholdrs in this important effort!
🎉 The #SeniorsAct just passed the House Energy & Commerce Health Subcommittee by voice vote! And it's easy to see why, 93% of Health Subcommittee members and 85% of the full Committee cosponsor. Overwhelming bipartisan support. Next stop: full committee markup!
at the @ACRheum ‘s
#RheumAdvocacyConference26
“amplifying patient voices” representing @LADAOrg - as a person living with #Lupus & other #Rheum diseases.
#LupusAwarenessMonth
I ❤️ @LADAOrg
Thank you @KathleenArntsen
This #Lupus warrior is going to “amplify her patient voice” with @ACRheum
#LupusAwarenessMonth fun.
#RheumAdvocacyConference26
#LADAorg was honored to sponsor the @MasonicResearch 3rd Annual 1958 Gala to support #lupus #autism and #cardiovascular disease research at the @ADKBankCenter. Kudos to @mkontari and the #MMRI Team for hosting such a wonderful event. @KathleenArntsen @Annezab @Dave_Arntsen
Thank You @LADAOrg @KathleenArntsen and Team 💪💜🦋 for always including the patien's voice, caregivers, and care-partners
#LADAorg #Lupus #LupusAwareness
#LADAorg is honored to sponsor a table at the @LupusResearch Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch. @Lupus_Chat @KathleenArntsen @Annezab @Dave_Arntsen @CaringForLupus @MilDiva81 @LupusColorado @MasonicResearch
#LADAorg is honored to sponsor a table at the @LupusResearch Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch. @Lupus_Chat @KathleenArntsen @Annezab @Dave_Arntsen @CaringForLupus @MilDiva81 @LupusColorado @MasonicResearch
The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference.
@LADAOrg @KathleenArntsen @Annezab @Dave_Arntsen @TiffanyAndLupus @TrishaReads8 @Lupus_Chat @LupusMI @MasonicResearch @carrainc @ACRheum @LupusInitiative @RheumResearch @LupusNE @IAFaccess @US_Pain Thanks for all the support and encouragement in helping make this possible for me! #LADAorg
Really inspiring to hear from Patient Advocate, @whitneywarriors at #ACR25 as she shares her experience on how she navigated transitions in her life & shared key takeaways for both patients and providers for how best to prepare for life transitions. ↴ #LADAorg #LupusChat
So excited about Dr. Daniel Whibley’s (@DanielWhibley) presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
#LADAorg #LupusChat
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
#LADAorg #LupusChat
Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
#LADAorg #LupusChat
Really inspiring to hear from Patient Advocate, @whitneywarriors at #ACR25 as she shares her experience on how she navigated transitions in her life & shared key takeaways for both patients and providers for how best to prepare for life transitions. ↴ #LADAorg #LupusChat
Learning a lot in an #ACR25 session led by Dr. Irene Blanco & hearing Patient Advocate, @GraysonGoal speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat
Spotted us in Dr. Martha Delgado’s #ACR25 session! In case you didn’t know #LupusChat gave a presentation at the @NIH_NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg
If you’re at #ACR25, make sure to stop by the lupus community booth in the Exhibit Hall at booth 2121!
Our founder, @TiffanyAndLupus is there with @LADAOrg! Stay tuned as she shares updates on new & intriguing studies on lupus and rheumatic conditions!
#LADAorg #LupusChat
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
#LADAorg #LupusChat
Dr. Jillian Rose gave a remarkably informative presentation on Sexual Health & Rheumatic conditions
🔹 99% of women w/SLE have reduced arousal
🔹56% of women w/Sjogrens exp vaginal dryness
🔹89% of men w/Systemic Sclerosis exp erectile dysfunction
#ACR25 #LADAorg #LupusChat
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