“Non-pharmacological interventions are not extras.”
Our Chair @Jeanette_Lupus reminds us what people with lupus live with every day.
In our Swiss Knife Survey, 84.9% reported fatigue, 72.8% joint pain and 62.6% muscle pain.
https://t.co/QOCI5TsVyX
#EULAR2026
OMG! I was counting the days until their release on Tuesday. I have never been so excited to sit in my drs waiting room this am #summerreading ☀️📖💁🏻♀️💜
🏃♀️ According to @lupusreference et al., physical activity could improve fatigue, depression, HRQoL, strength and function in SLE.
Yet only 11% to 29.8% of people with SLE met WHO PA recommendations.
Lifestyle may help fatigue, but is it that easy?
#EULAR2026
@AChVoice@NWIOPodcast It takes a long time to share our patient journey; but, let’s hope with this thoughtful, storytelling approach, we’ve helped another patient with theirs. Sheryl, you truly are a #patientchampion 💜💁🏻♀️👏👑
Myasthenia gravis…
*Is a rare, neuromuscular, autoimmune condition
*Causes muscle weakness
*Can make it hard to see, swallow, breathe, and walk
*Can affect anyone, regardless of age, gender, or ethnicity
Learn more at
https://t.co/eR3bIYlZda
People with #lupus are concerned with potential side effects of drug interventions as well as disease worsening such as hair loss, rashes, weight gain, gastrointestinal problems; outcomes that may be socially challenging to young women and men in the prime of their lives.
#Lupus onset typically coincides with critical years for education and career advancement, lupus profoundly disrupts working lives. We need better diagnostic tools and treatments so that we can achieve our life goals! #LupusAwarenessMonth#LupusAwareness
Classification criteria are used to define #lupus research study populations due to lack of specific #biomarkers resulting in combining heterogeneous patients with various disease manifestations and pathophysiologies and pathogenesis into one group. #LupusAwarenessMonth
#Fatigue is the most prevalent and incapacitating symptom experienced by about 85 to 92% of people with #lupus, resulting in decreased physical and mental function, and 50% of patients rated it as the most disabling symptom. #LupusAwarenessMonth#LupusAwareness
🌎 May 20 is #ClinicalTrialsDay!
Clinical trials play a critical role in advancing safer, more effective treatments for people living with lupus.
#LupusTherapeutics, the clinical affiliate of the Lupus Research Alliance, is dedicated to accelerating new therapies through innovative research and meaningful patient engagement—ensuring the diverse lupus community has access to more treatment options.
By partnering with leading research centers, biopharma, and community organizations, Lupus Therapeutics is helping transform lupus clinical trials and drive progress, awareness, and hope.
Learn more and get involved: https://t.co/HRSZDjoyMY
#CTD2026 #LupusClinicalResearch #LupusAwarenessMonth
Not a hot take: The company that approves whether or not your medication is covered should not be the same company that sets the prices for your medication AND the same company that also sells your medication.
https://t.co/LtzgsXG2yR
Not a hot take: The company that approves whether or not your medication is covered should not be the same company that sets the prices for your medication AND the same company that also sells your medication.
https://t.co/LtzgsXG2yR