Lupus Association

Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.

[Lupus Association @LADAOrg]

Kudos to @csroadvocacy for bringing rheumatology stakeholders to Capitol Hill to discuss #Access to care and treatment issues with policymakers. #LADAorg is honored to share our #PatientPerspective.

[Lupus Association @LADAOrg]

Day 1 of #BIOPACE26 was filled with informative sessions on advocacy, policy access and research and development. #LADAorg loved connecting with KOLs like @nkartatx CEO Paul Hastings and
@IAmBiotech CEO
John Crowley. #PatientVoice

[Lupus Association @LADAOrg]

This #RSVAwarenessMonth, learn how expecting moms can take steps to help protect their babies from severe #RSV illness either through maternal vaccination or infant immunization: https://t.co/JLocBhMQbx

[Caring For Lupus @CaringForLupus]

Invisible Disabilities Awareness Week Oct. 18 - 24th 💜🦋💜

#Lupus
#Lupuschat
#LupusAwareness

[CARRA @carrainc]

💜 Patient and caregiver voices were one of the highlights of the Pediatric Lupus @FDA Workshop that CARRA helped organize to accelerate drug development. Shout out to @LADAOrg for empowering patients and families for this - and so many other - important opportunities!

[Lupus Association @LADAOrg]

@LupusOrg #LADAorg is honored to be a member of MAPRx and we’ll be there!

[Laurent ARNAUD @Lupusreference]

✅ Please help us disseminate #STRIDE. This is an important study in which we are trying to map systematically #access and #availability of care in #lupus, across the world 🌎 Our target is AT LEAST ONE ANSWER PER COUNTRY, which we will not be able to achieve without your help 🙏

[CARRA @carrainc]

💜 Patient and caregiver perspectives were so essential to the recent Pediatric #Lupus @FDA Workshop! Thank you to @LADAOrg for empowering patients and family members to share their insights! 🙌

[Lupus Association @LADAOrg]

Kudos to Elizabeth for sharing her impactful #Carepartner journey with Miah. @CaringForLupus

[CARRA @carrainc]

💜 Patient and caregiver voices - such as Elizabeth SantaCruz - were a highlight of the Pediatric #Lupus @FDA Workshop. Thank you to @LADAOrg for empowering patients and family members for this - and so many other - important opportunities! 🙌

[Laurent ARNAUD @Lupusreference]

✅ A pleasure and an honor to discuss innovative #treatment strategies for systemic #Lupus at the IX Armenian National #Rheumatology Conference🙏
The friendship between France and Armenia is strong, and we are excited to launch new bilateral #research opportunities together 🇫🇷🇦🇲

[American College of Rheumatology @ACRheum]

With the school year underway, we thought it was an appropriate time to provide caregivers with guidance on how to navigate school when you have a child with a rheumatic disease, as school can present unique challenges. We have the answer in this short video, https://t.co/wCbes7c6C1, with board-certified Pediatric Rheumatologist, Dr. Miriah Gillispie-Taylor, answering this question and more as part of our playlist, Little Joints, Big Questions. This video explores the value of communication between families, educators, school nurses, and health care teams.

Check out the official website for Rheumatic Disease Awareness Month at https://t.co/vyqnBYW3Ql for additional resources to help families navigate life with rheumatic disease. #RDAM #PedsRheum

[Lupus Association @LADAOrg]

Thank you, @CAgovernor for signing #AB2009 by @PhillipChenCA and @AsmSolache. By modernizing California’s source plasma donation center regulations, this law will ensure that patients who depend on plasma-derived medicines have access to them when they need them most.

[American College of Rheumatology @ACRheum]

NEW ISSUE ALERT! The September 2026 issue of ACR Open Rheumatology is now available → https://t.co/yYoGV18rM5 @ACR_Journals

[Aravind Palraj @Rheumat_Aravind]

Fibromyalgia is not “imagined pain.”

The largest genetic study to date - spanning 2.5 million individuals - identified 26 genetic risk loci, strengthening the biological basis of fibromyalgia and opening new paths to understanding pain biology.

A meaningful step forward in a condition that patients have long struggled to have taken seriously.

#Fibromyalgia #Rheumatology @DurgaPrasannaM1 @IhabFathiSulima @FibroHealthOrg #PainMedicine #Genetics #MedicalResearch

[Lupus Association @LADAOrg]

Wonderful information, thank you. @CaringForLupus @Lupus_Chat

[ACR Simple Tasks @ACRSimpleTasks]

Explaining a child's rheumatologic or autoimmune diagnosis to your family and friends can feel overwhelming. Pediatric Rheumatologist Dr. Miriah Gillispie-Taylor shares tips for having an honest, age-appropriate conversation. For more, visit https://t.co/p8d9T1EP6w.

[safebiologics.org @SAFEbiologics]

ASBM’s former chairman, Dr. Madelaine Feldman, participated in the first panel of yesterday's #AfPASummit26: “The bottom line in pricing needs to be brought back to the patient’s ability to access the medication. For example -Many times affordability could be achieved by allowing the patient to pay their cost share (co-insurance) on the lowest post rebate/discount price of the drug.—including by basing cost-sharing on the lowest post-rebate price, especially for Part B drugs." @MattieRheumMD @patientaccess @LADAOrg @GlobalCRC @WarOnCancer @CSROAdvocacy

[U.S. Pain Foundation @US_Pain]

Overwhelmed patient. Overloaded provider. An appointment that misses the mark despite good intentions.

Patient advocate Tom Norris offers a path forward in the quest to create #OneMovement for #ChronicPain.

Read + share: https://t.co/5xEziQZOys

#OneVoiceForPain #LetsChangePain

[safebiologics.org @SAFEbiologics]

Today at 2 p.m. ET, ASBM’s inaugural chairman, endocrinologist Dr. Richard Dolinar, participates in a fireside chat at the 4th Annual #BESAFE Conference @JohnsHopkins Bloomberg School of Public Health in Washington, D.C. He’ll discuss compounded GLP-1 medicines, falsified products, and the need for increased regulatory enforcement by @US_FDA

Learn more about the risks of unsafe pharmacy compounding at https://t.co/9cY15BV8rQ @waroncancer @BeSafenofakes @GlobalCRC @LADAOrg

[American College of Rheumatology @ACRheum]

Supporting a student with lupus takes more than awareness—it takes practical tools. As students with lupus head back to the classroom, you can play an important role in helping them stay healthy, supported, and engaged in learning. Download our free resources to learn more → https://t.co/vyqnBYW3Ql

[U.S. Pain Foundation @US_Pain]

#AllAges → #CountlessDiagnoses → #MillionsOfStories → #OneMovement

Each week of #PainAwarenessMonth has built toward this one.

We’re starting Week 4 with a look at #ChronicPain policy & why it matters.

Read + share: https://t.co/5S0U3HyWQc

#OneVoiceForPain #LetsChangePain