A Chronic Voice

I share #ChronicIllness, #ChronicPain & #disability info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth

[A Chronic Voice @AChVoice]

Don't forget to check out the revamped #website, and visit our #AboutPage for more info and resources. My aim is and always will be to raise #awareness about lifelong #illnesses from VARIOUS #perspectives. Context matters. 👉 https://t.co/g1G2fHMse6

#ChronicIllness #disability

[A Chronic Voice @AChVoice]

"There’s also the incredible #healing power of #nature: noticing the #seasons change, the wildlife we encounter on our walks & #appreciating the beautiful area in which I’m fortunate enough to live.": https://t.co/N5QI2xCbgI by @sswarbo

#ChronicallyIll #MentalHealth #spoonie

[A Chronic Voice @AChVoice]

"1 Item I'd Really Like to Try for #PainRelief is: The #money to properly care for myself. The money to hv the #surgery I needed 2 yrs ago, or the physical #therapy, or afford better food, the massages that increase then reduce #pain. — Bridget": https://t.co/L2ULwOtR39 #NEisVoid

[A Chronic Voice @AChVoice]

"Burnout in #ChronicIllness is..addressed thru structural change, #pacing, #boundaries & realistic expectations. This is why so many #spoonies feel like #burnout advice doesn’t work for them. It wasn’t designed with their reality in mind.": https://t.co/yyEsC9Ac7V

[A Chronic Voice @AChVoice]

"In spite of how this “feels,” it’s really a beautiful thing to recognize that our bodies & #brains use #shame to help us stay safe..That being said, when we are little ones, growing up in #dysfunction, #healthy shame can turn #toxic.": https://t.co/PKfEmq1fwR by @jenniferkindera

[A Chronic Voice @AChVoice]

"A simple #question that gets to this concept [of DBT] is..What else is #true? Not as a way to dismiss the hard thing. Not as toxic #positivity. But as a genuine #cognitive interruption..a way of seeing the bigger pic when the ADHD #brain has narrowed it": https://t.co/gphkdBHeAc

[A Chronic Voice @AChVoice]

"In the right [#brain] hemisphere, people with chronic primary #pain showed shallower grooves in several regions..These are linked..to the processing of #sensory perceptions &..processes involved in assessing & processing pain": https://t.co/OMQdKVrnKG via @medical_xpress

[A Chronic Voice @AChVoice]

"Some people..equate asking for #FinancialAid to begging. These comments are esp hurtful when it comes from #family..Having given it some thought, I think it is alright for any1 – #sick or #healthy – to receive help in any form if it is a true need.": https://t.co/FAeLKbBvgH

[A Chronic Voice @AChVoice]

"Don’t assume that your #doctor knows or remembers how long you’ve been in pain. If you’ve been experiencing pain for a year, a month, or a decade, your doc needs to be reminded & remind them regularly": https://t.co/68oguKRLSF by @globetrotteri #ChronicPain #InvisibleIllness

[A Chronic Voice @AChVoice]

"But the #echocardiogram did reveal an abnormality — my #MitralValve had prolapsed; one of my heart chambers was leaking. There was severe #regurgitation, as blood flowed backwards into my lungs with every beat.": https://t.co/9tWtSMt10M

#cardiology #HeartDisease #HeartSurgery

[A Chronic Voice @AChVoice]

"So maybe I can give my disease the #nickname Alexander! That way I can say things like “Alexander is being a real jerk today”..or “Alexander is better than cancer but I still want him to leave me alone & never come back"": https://t.co/XWGcQF2It8 by @SarahSisbot #ChronicPain

[A Chronic Voice @AChVoice]

"There are so many diff types of #energy too, we mostly think about the physical energy..But what about #mental energy, like I am using now to write this blog post in a heatwave, or to read a book or do a puzzle.": https://t.co/M6JtlHb5wX by @bloomingmindxx #MentalHealth #spoonie

[A Chronic Voice @AChVoice]

"[People] dispense #advice for exercise, but are not there beside you when you are struggling to sit up in bed. Or maybe you are already doing more #exercise than them, despite #ChronicPain!": https://t.co/NDQISV2vkw

#NEisVoid #disability #InvisibleIllness #ChronicIllness

[A Chronic Voice @AChVoice]

"people don’t seem to be able to distinguish #MentalHealth w #mental #disabilities. I hv #autistic children & I see their struggles daily, yet I’m the 1 who struggles to get them help, at school..with the hospital & even the benefit system": https://t.co/ql5abLpatf by @RaisieBay

[A Chronic Voice @AChVoice]

“#Insects ..have a perhaps surprising amount of wisdom when it comes to #DecisionMaking. Many #insect #ProblemSolving skills have, in fact, inspired #algorithms for efficient deliberation in real-world human industries.”: https://t.co/9jTlP9o6md via @bbcworld #decisions #decide

[A Chronic Voice @AChVoice]

"Out here, every step is a #choice, not just to #move, but how. It's about moving smarter: staying in #motion without betraying your #body. Honoring the landscape and your #limits.": https://t.co/CN5rnu4OWe #ChronicIllness #hiking #outdoors #trekking #disabled #spoonie #lupus

[A Chronic Voice @AChVoice]

“Ordinary & universal, the act of #writing changes the #brain. From dashing off a heated text #message to composing an op-ed, writing allows you to, at once, name your #pain and create distance from it..a shift that reflects #resilience.”: https://t.co/VbqogYL0yy via @yahoo

[A Chronic Voice @AChVoice]

"Whatever the issue, it seems as if we spend the first half of our lives shutting down feelings to stop the hurt and the second half trying to open everything back up to heal the hurt.": https://t.co/E7mfHojgof by @BreneBrown

#healing #PersonalGrowth #midlife #LifeJourney

[A Chronic Voice @AChVoice]

"Many with #ChronicIllness or #disabilities need to adapt their houses to make things more #accessible. This can be a simple change..but often we need to invest in certain areas that may not come cheap": https://t.co/9EgcQF48gp

#MondayBlogs #accessibility #ChronicPain

[A Chronic Voice @AChVoice]

"The past few weeks I have been dreading a #mammogram ..It’s such a blessing when getting a good test result, because it doesn’t happen every time. So many of us with multiple #ChronicIllnesses aren’t used to good news.": https://t.co/h13gwONglf by @ehrmanlisa1 #ChronicPain

[A Chronic Voice @AChVoice]

"Whilst #gifts are often meant to be pleasant surprises, it can be tricky when it comes to #ChronicIllness. Unless you're familiar with the person & know what sort of gifts they'd love, it might be a good idea to check beforehand.": https://t.co/H2zvkrWhCL #disabled #MondayBlogs