Top Tweets for #LifeWithME
Das Fenster leicht öffnen, um für einen kurzen Moment die Sonne auf der Stirn zu spüren.
#LifeWithME
3/5
Yet, we had our moments - her soft laughter echoing in a room unaccustomed to joy.
Even restrained, her presence touched me.
I was again more than a figure in a bed.
I was her parent.
I still mattered.
#LifeWithME #SmallVictories
#SevereME
Oh, my, this was a noisy day. This afternoon Thor, the god of thunder ⚡ made so much noise that the ground shivered and so did our house. And just now a military helicopter 🚁 flew straight over our rooftop, and it was definitely not a silent arrival. #lifewithME
I bought my robot vacuum cleaner over a year ago. Only last night I felt like unpacking it. Now I'm going to assemble it and see how it works. I hope it doesn't make too much noise.
#lifewithME #ME #MECFS #robotvacuumcleaner
Carvings and other creative endeavors for the #ScareME @RenegadeRes Halloween contest are not limited to pumpkins. 🎃 My latest is a vegetable I wasn’t going to get around to eating. #LifeWithME. Here is…
Spider on a Spaghetti Squash.
CRUSHING FATIGUE & PAIN after 2 hours with a small group in a quiet and controlled setting. Just voices. No music. No TV or background noise. Minimal movement. Still intolerable. This is a decade with ME. I know many of you know exactly what I'm talking about. #pwME #LifeWithME
Verse reminder before you sleep; Don’t forget to thank God for all he has done ❤️
#FaithfulGod #CPUTMedia #CPUTMediaCreatives
Why is it the days that I need to sleep well I don’t 🤦♀️
Went to sleep at my usual time but woke up at 2.30am & couldn’t go back to sleep 😫
#lifewithME #wiredbuttired
#twitterstormready👊
It’s our 33rd wedding anniversary today and for the first time since 2020 I sat downstairs & watched a programme with my husband. Felt very good! See what happens tomorrow 🙏🤞
#lifewithme
Ate the egg white radio active sandwich for my gastric emptying study which was disgusting 🤢. First scan done, 5 more to go! At least I’ve got a bed to lie down on!
#lifewithme
Thank you for tagging me in this @TomKindlon! For those who are interested in hearing me share my lived perspective as a “nurse turned patient”, I began speaking at the 1 hour, 50 minute mark.
#PostViral
#ME
#MEcfs
#LifeWithME
#AAN
#POTS
#MCAS
#MG
#HAE
Recording now available for NIH conference: "Advancing ME/CFS Research: Identifying Targets for Intervention & Learning from #LongCOVID" (day 1 = Dec 12)
https://t.co/MtMhyShj1O
See images for agenda including speaker list (also part 2)
#MEcfs #CFS #PwME
@Columbia_CII
1/
Tonight at dinner I grabbed two knives and exclaimed “It’s Brittany, bitch!,”much to @Demon_Diva_Dani’s chagrin. #lifewithme
Apone’s line “assholes and elbows” in #aliens has always made me laugh. I’ve been shouting other unrelated things since he said it -
Nipple tassels and turtle doves!
Taint Chips and rectal hair!
Frau Blucher and horse whinneys!
Squatch Pubes and Minute Maid!
#lifewithme
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