Top Tweets for #LookSharpForRB
Your voice matters in the RB Research Community. Join us to learn about upcoming research opportunities and events at https://t.co/HyCBSCkElo
#retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB #PatientEngagement
RB Fact: 80% of those with heritable #retinoblastoma have bilateral tumors, 15% have unilateral tumors and 5% have trilateral tumors. Trilateral means that the child has tumor in both of their eyes and in their brain.
#RB #EyeCancer #KnowTheGlow #LookSharpForRB #PatientEngagement
RB Fact: 95% of children with heritable retinoblastoma did not inherit the RB1 mutation from their parents. They are the first in their family to be affected with retinoblastoma.
#retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB #PatientEngagement
RB Fact: Heritable retinoblastoma encompasses 45% of all reported cases.
#retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB #PatientEngagement
Leukocoria (white pupillary reflex) & strabismus (misaligned eyes) are the 2 most common signs of #retinoblastoma. Share info about the signs of #RB to promote early diagnosis.
#RBAwarenessWeek #RetinoblastomaAwareness #RbWeek #KnowTheGlow #LookSharpForRB
#Retinoblastoma is the most common childhood eye cancer but it is still a rare disease. Raising awareness for #RB can increase early diagnosis and improve patient outcomes.
#RBAwarenessWeek #RetinoblastomaAwareness #RbWeek #KnowTheGlow #LookSharpForRB
May 8 to 14 is World Retinoblastoma Awareness Week! Share information about the signs of retinoblastoma to promote early diagnosis!
#retinoblastoma #RB #RBAwarenessWeek #RetinoblastomaAwareness #RbWeek #KnowTheGlow #LookSharpForRB
RB Fact: Retinoblastoma is a cancer that often occurs because both copies of the RB1 gene that normally suppresses retinoblastoma are lost from a developing retinal cell in children.
#retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB #PatientEngagement
Stay tuned to our social media this month as we share #retinoblastoma facts!
#RB #EyeCancer #KnowTheGlow #LookSharpForRB #PatientEngagement
Our Retinoblastoma Champions use their skills and lived experience with #retinoblastoma to promote patient partnership in research. Send us a message or visit our website to learn how you can get involved!
#RB #EyeCancer #KnowTheGlow #LookSharpForRB #RBChampion #PatientEngagement
Ivana is an #RB parent, CRRAB co-lead, and a #retinoblastoma champion. You can read about how her son motivated her to get involved in research and her experience with various projects in our booklet: https://t.co/L3C6rOsIUA
#EyeCancer #KnowTheGlow #LookSharpForRB
This month we're featuring the stories of CRRAB's Retinoblastoma Champions and learn how and why they got involved in #RB research. For a sneak peek read our booklet on patient engagement in research: https://t.co/L3C6rOsIUA
#retinoblastoma #EyeCancer #KnowTheGlow #LookSharpForRB
Learn about how having one eye enucleated effects retinoblastoma survivors' hearing at this seminar held by York University at 2pm ET: https://t.co/Q6SlfkPAun
#retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB
One recent study aimed to identify areas of clinical care improvement for #retinoblastoma patients by looking at instances of suboptimal management. Read the paper here: https://t.co/LzMpVwQT3X
#RB #EyeCancer #KnowTheGlow #LookSharpForRB
Read about what outcomes retinoblastoma survivors and parents of retinoblastoma survivors deemed valuable in this recent article: https://t.co/Fi9Hi892AI
#retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB
Thank you to everyone who attended the 2022 Virtual #Retinoblastoma Research Symposium. Your participation has made this an impactful event! Stay tuned for the summary email & we'll see you at the next working group meeting!
#CRRAB2022 #RB #EyeCancer #KnowTheGlow #LookSharpForRB
#Retinoblastoma research priority 2 asks what second cancer screening is optimal for heritable #RB survivors. We are discussing what studies can be conducted to increase knowledge in this area and solve this priority problem.
#CRRAB2022 #EyeCancer #KnowTheGlow #LookSharpForRB
CRRAB is currently evaluating the #Retinoblastoma Journey Map as a tool for keeping track of a patient's #RB journey. Learn about how we plan to analyze the data collected from the pilot project at the Symposium!
#CRRAB2022 #EyeCancer #KnowTheGlow #LookSharpForRB
Did you know CRRAB is currently celebrating its fifth birthday?We're looking back at the history and some of the highlights during the 2022 Retinoblastoma Research Symposium!
#CRRAB2022 #retinoblastoma #RB #EyeCancer #KnowTheGlow #LookSharpForRB
Welcome to the 2022 Virtual #Retinoblastoma Research Symposium! We are excited for a day of sessions developing co-directed #RB research. Stay tuned to our social media accounts, where we will be showcasing the highlights!
#CRRAB2022 #EyeCancer #KnowTheGlow #LookSharpForRB
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