Top Tweets for #MESpine2024
This 3 part research roundtable series was born from Ron Davis's #MECFS24 meeting. Some people on our team brought up mechanical #MEspine issues & questioned how they might relate to the myriad molecular results being presented at the meeting.
#MECFS #LongCovid #MEspine2024
Next Friday: research roundtable with Robert Naviaux!
Dr. Naviaux is a Professor of Genetics, in the Departments of Medicine, Pediatrics, & Pathology & is an internationally known expert in human genetics, inborn errors of metabolism, metabolomics, & mitochondrial medicine.
Thanks to @ThapaliyaK for presenting at the @RenegadeRes research roundtable #MEspine2024!
He and the group he's part of are doing amazing work!
NCNED research fellow, Dr Kiran Thapaliya, was invited to present at the @RenegadeRes International Research Roundtable for #MECFS.
Dr Thapaliya’s presentation shared NCNED’s findings from 3T and 7T MRI studies identifying brain stem impairments in both #pwMECFS and #pwLC.
A brief summary of my lightning talk at yesterday's @RenegadeRes roundtable. In my talk, I proposed criteria for evaluating hypotheses on the role of spinal conditions in #MECFS and outlined an inflow/outflow hypothesis that seeks to meet these criteria. 1/8
Why the brainstem? Brainstem inflammation can cause multisystemic symptoms because the vagus nuclei located there serve as the central hub for innervating all internal organs Neurons extend to every organ and inflammation is transmitted, leading to widespread symptoms #LongCovid
Our traditional pre-roundtable group screenshot. :) #MEspine2024
@RenegadeRes @Really_Richelle @NovaSupport @RenzPolster @ThapaliyaK @IsabelRamirezRD @doc4care @KatBoniface @AthinaHall @scott_scientist @NeuroWeaverATL @JeffLubell_C19 @BluesteinLinda
We went over 2.5 hours again! There were really interesting presentations and great discussion among patients, caregivers, researchers, and clinicians.
Thanks to everyone who came. 🙏
#MEspine2024
The recording of #MEspine2024 Part 2 is up!
- Recap of Part 1
- @ThapaliyaK: Imaging the Invisible: Multi-Modal MRI Reveals Brainstem Abnormalities in ME/CFS
-@RenzPolster: An ME/CFS hypothesis with brainstem connections
- Discussion
https://t.co/vweGxWmZ6m
The recording of #MEspine2024 Part 2 is up!
- Recap of Part 1
- @ThapaliyaK: Imaging the Invisible: Multi-Modal MRI Reveals Brainstem Abnormalities in ME/CFS
-@RenzPolster: An ME/CFS hypothesis with brainstem connections
- Discussion
https://t.co/vweGxWmZ6m
Reminder to register for the Research Roundtable tomorrow at 1pm EDT!
#MEspine2024
https://t.co/1UGQcTwrYR
Friday - unifying discussion on the impact of brainstem compression on mecfs and the human condition.
#MEspine2024
One #MEspine2024 presenter, @RenzPolster, talking about a study from another presenter, @ThapaliyaK.
I'm really looking forward to the conversations we're going to have on Friday! 😃
#MEspine2024 #brainstem
"Henrich, the senior author of the study, reported, “You really shouldn’t have activated T cells in the spinal cord or the brainstem. We are seeing evidence of this immune response in areas we don’t typically see in the setting of an acute viral infection.”
https://t.co/0JpvRbOzGJ
@doctormom63 common themes between "infectious" and "mechanical" cases:
- dysregulated cerebral blood flow
- activated CNS innate immune system (*neuroinflammation*)
- brainstem dysfunction
- mast cell activation
- / ICP
- ...
The first author of the paper this was referring to, @ThapaliyaK, will be presenting on Friday at #MEspine2024.
I hope you will join us, @NeuroWeaverATL!
One #MEspine2024 presenter, @RenzPolster, talking about a study from another presenter, @ThapaliyaK.
I'm really looking forward to the conversations we're going to have on Friday! 😃
Interesting MRI study in #MECFS:
⬆️ hippocampal volumes, correlating with severity measures, ? indicative of ⬆️ myelination to compensate for ⬇️connectivity between brainstem und hippocampus.
Possible role of glia?
https://t.co/OVZQvpSpiH
We got a lot of great feedback on the mechanical basis #MEspine2024 roundtable last month!
Check out @CortJohnson's summary of it: https://t.co/V4xcJUljNB
Join us for Part 2 this Friday! https://t.co/ZdNPs1vtDB
'Light-headed' doesn't quite cover the chaos caused. #JohnVsJonVsME Scary Science #GreatestMEdicalScandal @JohnVsJonVsME #MESpine
Ps. Have you signed up for Part 2 of @RenegadeRes "Mechanical Basis/Brainstem Research Roundtable"?
https://t.co/65ozN2xqDG
Join us this Friday, Nov 1, at 1pm EDT for the second Mechanical Basis/Brainstem Research Roundtable!
@ThapaliyaK & @RenzPolster will present
Register: https://t.co/4cJAfoG1jZ
Watch Part 1: https://t.co/KLEENuvfIX
#MEspine2024 #MEspine #MECFS #LongCovid #CCI
Science Alert: 'We Just Got More Evidence That Long COVID Is a Brain Injury'
'The exact nature of long COVID is still coming to light, but we just got some of the best evidence yet that this debilitating condition stems from a brain injury.'
https://t.co/FvmLA3Qo4M
Wow! Is this really a MSM piece on microglia??? Be still my #MESpine2024 heart! #pwLC #pwME #NEISVoid
BBC: 'The cells that protect your brain against infection could also be behind some chronic diseases'
Microglia are the brain's resident immune cells..what happens when they go rogue?
'they may even play a key role in conditions such as long Covid & ME'
https://t.co/SlWEr3bnD4
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