Top Tweets for #MSBarometer
Yesterday EMSP presented the #MSBarometer at the European Charcot Foundation's MS Initiatives meeting. A first for 2025–2027: NMO & MOGAD join MS in the Barometer — long-missing pan-European data, finally in view.
Thanks #EuropeanCharcot for the warm exchange!
#MSBarometer2027
Jó reggelt from Budapest! 🇭🇺 We are at #EAN2023 @EANeurology during the next 4 days. Visit us at the Neurohood in the exhibition hall to find out more about @eumsplatform and our initiatives.
@eumsyouth #MSNursePRO #IMSS #MSCAB #MSBarometer @HTx_H2020 #MoreEUROPA #PaediatricMS
Measuring #energysavings, #emissions & lower bills doesn't capture whether #EU is tackling #energypoverty effectively. Our founder highlights the #MSBarometer as a tool that measures how #health & #social policy affect people with #MultipleSclerosis. Do we need an EP Barometer?
During @EnergyPovertyWk session on need for #data to measure #EnergyPoverty & actions to address it, I mentioned a project I led for @eumsplatform, looking at how #health & #social policies influence daily life for people with #MS. Here's the link:
https://t.co/OubXeKyKaY
#ECTRIMS2021 | In the next three days we are going to be present at the @ectrimscongress 🔴⚫
Visit our booth and feel free to get in touch with us about the #MSBarometer #MSNursePRO or any of our projects.
You can find us here 👉 https://t.co/uRy09Np7bS
Today is @CarersDay The #MSBarometer highlights huge disparities in #MS care in Europe, including the lack of social support provided for informal carers, especially #youngcarers There is a need for more targeted support.
Read more👉 https://t.co/BdW7hXM00o
Die Impfquote in #Münster ist hoch. Doch wie bewerten die Menschen die #Corona-Maßnahmen? Ein Blick in das aktuelle Münster-Barometer: #wnplus #msbarometer https://t.co/WZ7nVKmLX3
🤷♀️How can #MS impact the daily life of a person with the condition?
🎙EMSP's @emmadragon tells us and expands on the #MSBarometer in time for #WorldBrainDay2021 on our latest podcast.
🎧 Have a listen: https://t.co/ZwWLELoOCP
@emmadragon discussed the impact of #COVID19 on the #MultipleSclerosis community, the impact of the MS diagnosis on the lives of people. Check the #MSBarometer to learn more.
This year #WorldBrainDay2021 is focusing on MS on 22 July.
🎙On our latest #podcast, we sit with our member @eumsplatform to discuss #WorldBrainDay2021 and its theme to Stop Multiple Sclerosis.
🎧 Listen here: https://t.co/ZwWLELGq1p
🙌Stand with the 1 million+ people with MS in Europe and learn how you can support them.
@eumsplatform President @pcarrascal reminds us about the inequalities exiting across European healthcare systems. #MSbarometer
Full report available: https://t.co/OqTGOc41QS
To learn more about the how #MultipleSclerosis is managed across Europe, have a look at the #MSbarometer: https://t.co/OqTGOc41QS.
Inequities between countries are appalling. Lets work together to change this.
We need #MS care to be improved today. The COVID-19 pandemic has placed new strains on our health and social systems. However, it provides an opportunity and political momentum to invest in and reorganise these systems.
🌍 #WorldMSDay #MSConnections
#MSBarometer examines #MS management, care & support across 35 countries in Europe with themes, including policy, otpimal care, DMDs, symptomatic treatments, rehabilitation, employment & social support, research, policy & paediatric MS.
👉 https://t.co/j8t5sh2MWM
#WorldMSDay 🌍
The #MSBarometer highlights the huge disparities in #MS care in Europe. We see issues in access to appropriate healthcare, HCPs, & social support for people with MS + their carers across the continent. Follow us this #WorldMSDay 🌍 to learn more & help us make noise together 📢
“I have a dream... that people living with #MS won’t need to be afraid in the future to ask for help. EU strategies must be converted into legislation to recognize the rights & needs of all the people & the diversity in our society.” - MEP @MetzTilly
#MSBarometer #IDPWD2020
“I have a dream... that people living with #MS won’t need to be afraid in the future to ask for help. EU strategies must be converted into legislation to recognize the rights & needs of all the people & the diversity in our society.” - MEP @MetzTilly
#MSBarometer #IDPWD2020
“We need to move from working FOR the patients towards working WITH the patients” - @LyudmilNiN @eupatientsforum
#MS #MultipleSclerosis #MSBarometer #IDPWD2020 #IntegratedCare
Our next speaker @LyudmilNiN from @eupatientsforum shares the most important principles of integrated care and illustrates his key messages through 3️⃣ case studies from Europe.
#MS #MultipleSclerosis #IDPWD2020 #IntegratedCare #MSBarometer
“We need an integrated approach to maximize impact and outcomes for neurological disorders to leave nobody behind. Only 24% of countries in the world have a neurology plan in place.🌍🧠 Not good enough...” - Donna Walsh @EUneurology
#MS #MultipleSclerosis #IDPWD2020 #MSBarometer
“Social inclusion affects everyone, but people who are in a vulnerable situation need to be empowered. They need to receive adequate information and support at the right time & in the right place.” - @emmadragon
#MS #MultipleSclerosis #MSBarometer #IDPWD2020
Director of @MyEDF @catherinenaugh joins the discussion highlighting the opportunities from the European disability agenda:
➡️ European Disability Strategy
➡️ Work-Life Balance Directive
➡️ Digital inclusion - safe and accessible e-health
#MSBarometer #MS #IDPWD2020
“We must act together” Our President @pcarrascal takes the floor presenting the challenge of social inclusion in Spain 🇪🇸
“Having #MS is enough. It shouldn’t be harder with a social protection system that doesn’t make sense”
#MultipleSclerosis #IDPWD2020 #MSBarometer
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