Top Tweets for #MeAwarenessMonth
International #MEAwarenessMonth has just ended and, with the first day of June, I, a #pwME #SevereME, washed myself at my basin for the first time this year. Lovely hot water! #MECFS #MyalgicEncephalomyelitis

My pain
My fatigue
Agreeing to flare together at the most inconvenient time possible.
Credit Unknown
#ChronicTruths #MySeveralWorlds
#FibromyalgiaAwarenessMonth #ASAwarenessMonth #MEAwarenessMonth

Post exertional malaise (PEM) is the hallmark symptom of #MECFS
It’s not fatigue following activity. It is a dramatic deterioration and worsening of symptoms.
Short video explainer - triggers, symptoms, and management.
Repost for the last day of #MEAwarenessMonth
Just in case someone has anywhere for me to live. Or can help me escape constant abuse.
Just a reminder.
#MEAwareness #MEAwarenessMonth
#MyalgicEncephlomyelitis
#MECFS
#PEM post on #MEAwarenessDay🤕
Help me escape abusers. Declining fast🪦
$250wk #DSP rent neg- room, land, cabin- safety needed #Melbourne 🇦🇺
💸Fund: https://t.co/damvsrCMta
☕️BMaC: https://t.co/08ItFNWgMY
🎁AmazonAU: https://t.co/yB0N3TshGx
ᯓ➤Beem: Halcionandon
#Mecfs #PwME

💙📚 In 'Unwell Women' a book that covers the whole of the history of medicine Elinor Cleghorn gives 6 PAGES to ME!
It's coming to the end of #MEAwarenessMonth & we are livestreaming with Elinor tonight at 7pm on X, YT & FB.
We will be speaking about ME & Long Covid!
📺 Recording will be avail.

There is no NHS specialist service for people with #VerySevereME.
Read that again.
There is no NHS care at all, even if you become so seriously ill.
This needs to change NOW.
#SevereMErgency #VerySevereMErgency #MEAwarenessMonth
My husband’s care costs have reached £65,000 – we’ve had to sell our flat https://t.co/FvIUfNl36U
If you’re in the northwest of Ireland, Dr Amolak Bansal is speaking in Sligo tonight — the final date on @IrishMECFSAssoc’s national tour for #MEAwarenessMonth. Radisson Blu Hotel, 5:30pm. Free.
28 years with MECFS
I've been mild
Moderate - life shrank
Severe
Very severe - where I disappeared
I've lived through every version of this disease, while not being believed.
And I carry all of them in my bones.
Credit: La2Arceri
#MySeveralWorlds
#MEAwarenessMonth

Great free read for this long weekend during #MEAwarenessMonth! Charley Kakel shares his beautiful short story “PenPals” with us in honor of #MillionsMissing.
Charley’s wife, Lauren, has #SevereME.
Snuggle in! Print & audio: https://t.co/IZ8uVF35BR
#MemorialDay #pwME

Chronic Fatigue Syndrome is a terrible name for a disease. It does not convey the severity or the nature of the condition.
“It trivialises and stigmatises the illness.” - Dr Anthony Komaroff
Repost for #MEAwarenessMonth - now optimised for phones.
Seo nasc don agallamh a rinne mé le Raidió Fáilte le haghaidh ME Awareness Month: https://t.co/loEL6VKwLm #MEAwarenessMonth #Gaeilge #pwME #Disability
BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project.
Unfortunately @DrOscarDuke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
Beidh mé ar Raidió Fáilte maidin amárach ag labhairt faoin tinneas ME, agus faoi mo scannán Na Doirse (https://t.co/k0ZrKEmIHb). #pwME #MEAwarenessMonth #Gaeilge #Scannánaíocht
It's #MEAwarenessMonth - a time to help people understand what this illness takes from you, quietly and constantly.
I’m always coping
yet I'm still hoping.

George Monbiot describes the treatment of #MECFS as “The Greatest Medical Scandal of the 21st century”. Repost of the introduction to my 27-minute explainer video for #MEAwarenessMonth — now optimised for phones.
@sunsopeningband Thanks Todd, it's really shitty of him, especially as he'd been part of a campaign to increase awareness, we'd wrongly assumed he had some decency & empathy.
Great timing as well - #MEAwarenessMonth
5 Jahre Vorträge,
5 Jahre Aufklärungsarbeit.
Die Folien meiner Vorträge sind unverändert gültig.
#MECFS #PEM #PEMistnichtVerhandelbar
#MEAwarenesshour
#MEAwarenessMonth

Extremely grateful to @weandmecfs for their very generous support for #SequenceME
#MEAwarenessWeek #MEAwarenessMonth
#pwME #MEcfs #ME
Huge news for ME/CFS & Long Covid research 💙
The UK Government is co-funding Sequence ME & Long Covid — and the WE&ME FOUNDATION is proud to be one of the investing partners supporting this groundbreaking project. https://t.co/5qCK3OX3KZ
#MEAwarenessMonth #pwme #myalgicE #MECFS #millionsmissing #severeME #photophobia #hyperacusis #POTS #art2cureME #canyouseeMEnow #balletdancer #zorgbetervoorME #chronicillness #science

Wow, this work is incredible!! I haven't been able to read everything yet, but it's already an emotional roller-coaster.
Make sure to check out the beautiful, emotional and intimate art works!!
https://t.co/wa2pQTr0GW
#pwme #myalgicE #millionsmissing #severeME #art2cureME

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