Top Tweets for #MeCFS
‘Energy-limiting and post-infection conditions encompass a range of syndromes, including ME/CFS, long COVID, postural orthostatic tachycardia syndrome (POTS), and fibromyalgia,’ #ELCI #FHBP #MECFS #POTS #Fibromyalgia #LongCovid
"The RACGP’s Specific Interests group aims to ensure frontline GPs shape the management of post-infection and energy-limiting conditions." #ELCI #FHBP #MECFS #LongCovid
YOUR DONATION DOUBLED!
#EmergeAustralia needs your help to power our services. Funding for our Health and Patient Support Services ends 30 Nov!
Until 30/6 your donation will be x2, up to a total of $20k, thanks to an anon donor.
Double your impact today https://t.co/c576x98J7e
Wow, I don't think I've ever seen this before!!
In Austria there is a government concept on how those affected by ME can receive better care. But it has not yet been approved.
In this clip, four former health ministers appear to advocate for the issue.
#pwme #millionsmissing
年一の挑戦、陶芸。
一昨年と昨年は抹茶碗。
自作の抹茶碗で毎日お抹茶をいただいてる。
今年は小皿1つと平皿の絵付け。
出来上がりが楽しみ。
集中しすぎて汗が額から垂れたし、背中もびっしょり💦
いつか大作に挑戦したいな。
#湯治旅
#コロナ後遺症 #LongCovid
#慢性疲労症候群 #MECFS
宿には所々にお花が生けてあるのだけど、どれもさりげなく感じるようなのがいい。
こちらの紫陽花も庭に咲いているもの。
そしてちょこんと置いてある小さな花瓶には野の花。
こういうのが好き。
#湯治旅
#コロナ後遺症 #LongCovid
#慢性疲労症候群 #MECFS
@Mae_DayJ @PAF_Foundation @haredottir @Nice_White_Lady @caramind93 @KSHernandez2 @maysoonzayid @angmarsbane10 @migrainesallday @TinuSpeaks @SynceNerd_Carli @Tinu @taras_rhymetime @MikeeMort @DisabledDem @digitalsista @BibiBlossoms @QueerlyAutistic @4WheelWorkOut @NormalFreeZone @Aoiferocksitout @champagnestalli @karriehiggins @kateisresting @JessicaGimeno @riotheatherrr @WritingLair @ask_tinu You don't want to miss #TheyWillKillYou, playing next in the #ChronicLoaf stream
https://t.co/5PuCyOjKoJ
#HappyJuneteenth #Juneteenth #DisCo #ForTinu #spoonie #NEISvoid #ChronicPain #mecfs #FilmDis #FilmFriday
この宿の朝ごはんが好き
鯵の開きと和朝食
美味しい牛乳やヨーグルト
フレッシュジュースもいくつか選べる
焼き立てのパンはパリッフワッ
食後のデ���ートがちょっとついてさっぱり
時間帯も調整しわかれてるから静かにゆっくり食べれる
#湯治旅
#コロナ後遺症 #LongCovid
#慢性疲労症候群 #MECFS
部屋の絵
この宿が好きな理由の一つ
三日月の絵があること
ここは薄青、過去に泊まった部屋
他の部屋は色違いで薄緑だったり、黄金色だったり
なんだかホッとする絵
#湯治旅
#コロナ後遺症 #LongCovid
#慢性疲労症候群 #MECFS
👀20 mins on #MECFS in recent 🇦🇺 parliamentary
Senate Estimates
🎥 https://t.co/nyQPQ7oqjl
Thanks @SenatorJordon 🙏
Discussion covered telehealth barriers, housebound & bedbound patients, specialist access, long GP consults and disability support pathways @Mark_Butler_MP @AlboMP
YOUR DONATION DOUBLED!
#EmergeAustralia needs your help to power our services. Funding for our Health and Patient Support Services ends 30 Nov!
Until 30/6 your donation will be x2, up to a total of $20k, thanks to an anon donor.
Double your impact today https://t.co/c576x98J7e
@Mae_DayJ @PAF_Foundation @haredottir @Nice_White_Lady @caramind93 @KSHernandez2 @maysoonzayid @angmarsbane10 @migrainesallday @TinuSpeaks @SynceNerd_Carli @Tinu @taras_rhymetime @MikeeMort @DisabledDem @digitalsista @BibiBlossoms @QueerlyAutistic @4WheelWorkOut @NormalFreeZone @Aoiferocksitout @champagnestalli @karriehiggins @kateisresting @JessicaGimeno @riotheatherrr @WritingLair @ask_tinu Our last documentary for today is "13th". Hop into the #ChronicLoaf stream to watch it with us
https://t.co/5PuCyOjKoJ
#HappyJuneteenth #Juneteenth #mecfs #DisabilityCommunity #neisvoid #spoonie #ForTinu
International Declaration in Support of Research and Drug Development for ME/CFS and Long Covid
https://t.co/3zGq1aNcZd
Image is from June 2026 IACFS/ME Newsletter
#MEcfs #LongCovid
Car window/bumper stickers and leaflets still available on our website in the meantime.
There are also seperate versions of the leaflets, one for LC and one for ME. Sorry for amateur screenshots, but back of leaflets attached in pics.
#LongCovid #MECFS
Or you can order our leaflets or car window/bumper stickers here -
https://t.co/PCzWTNejn3
Pinning this to my profile for visibility since I lost all my old posts.
Hopefully updates regarding the #LongCovid #MECFS billboard campaign coming soon
(please don’t worry about donating, we’re trying to figure things out behind the scenes after a period of inactivity)
We want to keep fighting for research and treatment for both #longcovid and #mecfs. If you would like to support what we do, please consider donating to our gofundme.
https://t.co/TC3XiQBQef
How many of these troops will never recover? People with #mecfs have sounded the alarm for decades. IACCIs must be taken seriously. I caught the flu in 1991 at the age of 23. I am disabled and mostly confined to bed. RFK needs to resign. @RepMcCormick
https://t.co/GGyJuZ4JiI
Im Crash von letzter Woche ging mit die Fähigkeit verloren, am Handy zu lesen.
Es ist einfach immer ein Glûcksspiel und alles, was eins kann, ist ein Segen. #MeCfs
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