Top Tweets for #MeawarenessWeek
Thx for the great mutual aid list for those with severe ME for #MEAwarenessWeek, Nele
If you can help one or more of these deserving souls, I thank you β€οΈβπ©Ή
Stay safe π·π¨π‘π
If you want to do something small for #MEawarenessweek that makes a direct impact, you can donate to the fundraiser of someone with #MEcfs. And/or retweet them.
I'm going to share some fundraisers from people with ME under this post, feel free to add yours if you're a #pwME β¬οΈ
9 years ago π¬π (came up as a FB memory).
'New' followers won't know that in the first few years of my M.E campaigning I semi-regularly went on local radio (and once on telly π).
Good times π
#MEAwarenessWeek #MEcfs
together across the M.E. and Long Covid communities, and to help push for a more accurate, respectful, and scientifically grounded future.
Great work @LongCovidAdvoc ππ
#MEAwarenessWeek #Mecfs #pwME #MyalgicE #LongCovid
7/7
Another really important Instagram video from @franhaddock_
#ME #pwME #MEAwarenessWeek
https://t.co/4aB7JJFCzY
Appropriate for #MEAwarenessWeek, I am putting being a #pwME first today.
Health before work.
Paws crossed, the newsletter will get done tomorrow.
A busy week has caught up.
I'm not 'crashed' but fluctuations are wild today.
#MEcfsc
Urgent work cropped up today, the newsletter will be created/sent tomorrow.
#MEcfs
People with #ME need protection from disbelief. Decades of dismissal and trivialisation of the disease has resulted in widespread misunderstanding, neglect, and harm.
#MEAwarenessWeek
To those subscribed to our newsletter (email),I'll be creating/sending a review of #MEAwarenessWeek this afternoon.
That will include-
Research briefing
@LongCovidAdvoc open letter
π
#pwME
ME Ladies come get me! Currently single and accepting applications π
Well done @Ramyisback and @NeleHelena stoked for you guys! π
#MECFS #MEAwarenessWeek #MyalgicEncephalomyelitis
#MillionsMissing
To help a friend or loved one with #ME, continue to invite them to social events and share news with them, even though they might not be able to join in. Don't let them feel excluded and forgotten.
#MEAwarenessWeek
To help a friend or loved one with #ME, continue to invite them to social events and share news with them, even though they might not be able to join in. Don't let them feel excluded and forgotten.
#MEAwarenessWeek
To help a friend with #severeME, send a card showing that you are thinking of them and don't expect a reply. Offer to collect prescriptions, help with shopping or posting letters.
#MEAwarenessWeek
PEM dependent, it will be added to our YouTube channel for the M.E. community to watch in a few days time.
If youβre interested in where the science is, and where itβs going, please join me
π· 6:30pm (UK time)
π· Live on LinkedIn - https://t.co/1mRku3Y5kW
#MEAwarenessWeek #pwME
Dr Charles Shepherd interviewed for ME Awareness Week on UCB Radio - Listen in!
Listen in to the interview on Catch Up (available for the next 30 days) via the link in our blog: https://t.co/R9wqj8XI3V
#MECFS #SevereME #MyalgicE #MEAwarenessWeek #MEAwareness
People with #ME need medical care at home wherever possible to avoid the risk of flare up or relapse caused by attending GP's surgeries, clinics, or hospitals. For people with #severeME leaving home may be impossible under any circumstances.
#MEAwarenessWeek
Please be reassured that many of us in Parliament do care & are working at bringing about meaningful change Change is inevitably slow but Iβm really encouraged"
#MEAwarenessWeek #pwME #ME #MEcfs
Extremely grateful to @weandmecfs for their very generous support for #SequenceME
#MEAwarenessWeek #MEAwarenessMonth
#pwME #MEcfs #ME
Huge news for ME/CFS & Long Covid research π
The UK Government is co-funding Sequence ME & Long Covid β and the WE&ME FOUNDATION is proud to be one of the investing partners supporting this groundbreaking project. https://t.co/5qCK3OX3KZ
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